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User

Posted 16 Dec 2024 at 00:23

I will try again soon.

I guess you probably think im crazy when sildenafil works the majority of the time- its just it doesnt always and there seems more side effect risk from that.

Question- Can you get an autoinjector for Invicorp injections?

Thanks.

User

Posted 15 Jan 2025 at 23:30

I would really appreciate the info on your shortcuts !

User

Posted 16 Jan 2025 at 09:06

Originally Posted by: Online Community Member

I would really appreciate the info on your shortcuts !

What short cuts? The longer the better.😁

User

Posted 09 Feb 2025 at 12:31

Originally Posted by: Online Community Member

I would really appreciate the info on your shortcuts !

What short cuts? The longer the better.😁

Do you know if you can use an auto injector for invicorp and if so does it need to be a certain size?

Thanks.

User

Posted 09 Feb 2025 at 12:58

Sorry mate, I haven't a clue on auto injectors.

User

Posted 17 Mar 2025 at 18:55

Originally Posted by: Online Community Member

Are you storing correctly and at the right temperature? Have you changed pharmacy and is it possible that the pharmacy isn't storing it correctly? Or have all the fails been from one batch of 5 that might have been sitting too long in an HGV somewhere round Hull docks?

And are you ensuring you take it on an empty stomach?

Why an empty stomach Lyn? I wasn't told that!

User

Posted 17 Mar 2025 at 19:31

Originally Posted by: Online Community Member

And are you ensuring you take it on an empty stomach?

Why an empty stomach Lyn? I wasn't told that!

Unfortunately Lyn has not posted on here for almost a year.

As far as I'm aware some ED pills are more effective on an empty stomach but injections are not influenced by food intake.

Edited by member 17 Mar 2025 at 19:33 | Reason: Typo

User

Posted 19 Mar 2025 at 20:12

Goodness ......... is Lyn OK - she was a wealth of knowledge!

User

Posted 27 Mar 2025 at 08:47

Originally Posted by: Online Community Member

Goodness ......... Is Lyn OK - she was a wealth of knowledge!

Andy62 has been in contact with her. She's fine but very busy. Hopefully, one day she'll return. I miss her a lot.

Back to Invicorp, just in case any of you lads don't know, apparently there's a bit of a shortage. I'm in N.Lincs and was unable to get any when I went for my prescription yesterday. I was gutted, but the wife wasn't. 😕 Unbeknown to her, I've stockpiled a couple of packs and kept them in the fridge in the garage. One morning next week I'll get up early and have an injection. I'll run upstairs, proudly open my dressing gown, and scream, "It's a miracle! I've been cured!" That'll teach her. 😁

User

Posted 28 Mar 2025 at 12:25

After over 2 years of hormone therapy where my libido flat lined it finally came back only to find the pharmacy can't get invicorp 😭. I don't know when the supply issue will be resolved.

User

Posted 02 Jun 2025 at 11:40

hi Guys I was offered this treatment ie Invicorp but i'm not a great fan of needles, what do you think guys should I try it or just wait ? i'm 6mths after op .. and i'm 61... thanks

Edited by member 02 Jun 2025 at 11:41 | Reason: Not specified

User

Posted 02 Jun 2025 at 12:18

Depends how desperate you are Kev. The injections aren't a problem mate. The way Invicorp, lifted my spirits and my todger, were well worth it.

Edited by member 02 Jun 2025 at 15:38 | Reason: Typo

User

Posted 02 Jun 2025 at 12:47

Thanks Adrian, might give it a bash ....

User

Posted 02 Jun 2025 at 13:07

Put your brave pants on and get on with it, the injections "cured" me after 2 years of trying other stuff.

User

Posted 02 Jun 2025 at 15:18

cheers Fran, im gonna go for it...

User

Posted 18 Jun 2025 at 14:43

So I have my appointment for the ED dept ref Invicorp injections. I gather they will show me how to inject etc. will I have to demonstrate?

User

Posted 18 Jun 2025 at 22:24

Hi Kevuk.

My wife went with me to my ED clinic. A nurse supervised a Caverject injection. Then told us to take a walk around the hospital grounds to see if anything popped up. Unfortunately it didn't. However she prescribed Invicorp which I collected from my local pharmacy. I self injected and it worked.

Like most prostate procedures, it's slightly embarrassing having a supervised injection. But you only need to be shown once, then they deem that you're able to do it yourself.

Good luck, mate.👍

User

Posted 14 Jul 2025 at 07:30

Hi. Thanks for the info, am currently on a 6mths waiting list.

User

Posted 03 Aug 2025 at 20:13

Think we have some cheap Cialis spam - reported it!

User

Posted 02 Mar 2026 at 08:09

I am about to try a pump and my greatest fear is, will the ring be hard to remove once its in place and you've got that "hard on"? Do you know if anyone has had trouble with that?

User

Posted 02 Mar 2026 at 08:10

I think a needle would s*** me up....

User

Posted 06 Apr 2026 at 15:16

Have a look at my suggestions re injection technique. And also storage.

User

Posted 09 Apr 2026 at 14:21

I've had mixed results with Invicorp. Sometimes a decent useable erection but more often an erection for one minute with a very flushed face. So it's going out of my penis and straight into my blood stream. I use the Soma pump with two stretchy rings if I want to be certain about it.

User

Posted 09 Apr 2026 at 18:01

Hi Sixtyplus

I can understand your fear but don't let thal stop you from using a VED. I chose VEDs and have been using it for over 15 years with great success. The most important factor in successful use of a vacuum pump is to shave your pubic hair which will provide a goos seal for creating a vacuum and also make it easier and painless to remove the ring/s.

I have a recorded a video which may help you. If you email me ([email protected]) I will send you a copy.

'Physics is like sex: sure, it may give some practical results, but that’s not why we do it.' Richard Feynman (1918-1988) Nobel Prize laureate

User

Posted 05 May 2026 at 21:49

Hi all, at just over 5 months post RARP (nerve sparing) I had an appointment with the urology nurse today to try and to be shown how to use Invicorp.

I have been taking Sildenafil 50mg twice a week on prescription with no noticeable effects. I am using a Soma erect VED for penile rehab, but for various reasons, I just can't get on with it to maintain an erection usable for penetrative sex.

I was getting pretty despondent tbh. I injected myself under supervision in hospital and it was easier than I imagined with no pain whatsoever. It had swift, impressive and long lasting results! I was elated to see my first proper erection in 5 months, I was starting to think I would never experience one again. I live a long way from the hospital, so by the time I got home the effects were wearing off, so my wife dodged a bullet! 😁

So I am now patiently waiting for my prescription to get sorted. I still cling to the hope natural erections will return, it's still relatively early days on that score. But in the interim, or if they don't I now have a good option which I'm very grateful for.

Edited by member 06 May 2026 at 07:46 | Reason: Typo

User

Posted 05 May 2026 at 23:05

Good luck, try not to get to hung up on 1 component of a sexual relationship, good though they are you will still need to work out how to successfully integrate the injections with foreplay etc. Took me 2 years to recover, the injections were I believe integral to the recovery.

User

Posted 05 May 2026 at 23:09

Originally Posted by: Online Community Member

Hi, Dave.

I felt exactly the same as you. I hope that your natural erections will return, unfortunately I doubt mine ever will. I'm delighted that Invicorp has worked. I just wish more men in our position would at least give it a go.

Good luck luck, mate.👍

Edited by member 05 May 2026 at 23:16 | Reason: Additional text

User

Posted 06 May 2026 at 12:19

Thanks both. This has really given me a big morale boost (but point taken about not focussing solely on that aspect of a physical relationship). I would recommend that anyone who has thought about injections, but is squeamish or worried about the process gives it a go. The thought of injecting yourself, is way, way worse than the reality. Nothing to lose and everything to gain. It really doesn't hurt at all and (huzzah!) it does exactly what it says on the tin phial!

Edited by member 06 May 2026 at 12:27 | Reason: Not specified

User

Posted 07 May 2026 at 07:33

I had a RALP with 50% nerve sparing, an emergency bowel resection after complications and are now just over 4 months out. I am using 5mg of tadalifil per day and other than twinges here and there are not getting any where near a normal erection. I am also using daily/ every other day a Soma erect II VED device.

I initially tried alprostadil but had very painful penile pain and about a 3 hour erection on the standard first clinic administered dose so after feeding this back , then approached my CNS for invicorp. I had already been trained on alprostadil injections so I was prescribed a first dose of invicorp without it being administered in clinic so self administered at home .

The standard first dose is 25mg (about 30 units on syringe )) from a 35mg ampoule of invicorp and due to the penile pain and long erection previously on alprostadil i only injected 10 units ( about 7-8mg )
It was firm enough for intercourse and was pain free which initially was great.
I then had a priapism (4 hour erection) though even with this low dose and had to go to A&E for urgent treatment .

After being admitted by the urology team overnight for observation the consultant in the morning then removed invicorp ( obviously) from my prescription list.

Has anyone else had this severe reaction and if so is there an alternative ?

Reading the instructions provided in the invicorp pack this reaction seems to be very rare so I am obviously very disappointed.

thanks Ant

Edited by member 07 May 2026 at 07:36 | Reason: Typo

User

Posted 07 May 2026 at 07:41

Were you advised to use sudfed and walk up and down stairs if the erection lasted longer than necessary? I was and found it worked, allowing us to get some sleep without a perpetual stiffie! Also, using Sildifenal AND injections used to be a big no no to avoid priaprism risk.

User

Posted 07 May 2026 at 10:11

Originally Posted by: Online Community Member

Has anyone else had this severe reaction and if so is there an alternative ?

Hello, mate.

May be you are super reactive to penile injections? As you say, it is very rare for priapism to be a side effect.

Here's a link to a similar conversation.

https://community.prostatecanceruk.org/posts/t29515-priapism-invicorp-qustion

I suppose it depends what you class an erection as. You describe yours as 'firm enough for intercourse', that how I'd describe mine. Not rock hard, and something that you could crack toffee on. My 'swelling' gradually decreases over 4 or 5 hours, which I'm not concerned about, in fact I find it quite comforting. 🙂

User

Posted 07 May 2026 at 10:57

thanks for the reply

I took the first Sudafed at 1.5 hours after injection and I noticed nothing had started to reduce. I started walking round the house at 2 hours. I continued to walk round until about 2.5 hours and then took another Sudafed. At 3 and a quarter hours after continued walking round there was still no movement so took the decision to get ready and go to A&E . I had not taken a tadalifil that day and also the day before to also try and reduce that risk.
i checked in and advised the issue (with the sense of urgency stressed to the receptionist ) and was seen by a triage nurse within 10 mins and then by a doctor about 10 mins later. As I had already taken 120g of Sudafed without any real change they were unwilling to administer the usual injections of phenylephrine so after about another 10-15 mins I had the blood removed by syringe.

Edited by member 07 May 2026 at 11:10 | Reason: Add more info

User

Posted 07 May 2026 at 14:43

Ok sounds serious! I am going to take your reaction as a positive sign, you also said earlier on that 5mg of sildefinal gave a response. So I think you may be getting ahead of yourself at only 4 months out.

I found I only needed 1/4 of the dose initially recommended by the consultant and I eventually recovered enough to only need a "non clinical" cock ring.

All of this "development" with me was 2 years post op. Interesting as well I also ended up with serious post op complications that resulted in peritonitis and a 3 week stay in hospital. So don't underestimate how long it may take to recover.

One other thought, have you tried an "event dose" of sildefinal (20mg I think). When I was trying sildefinal at the daily dose it just gave me bad side effects and no hardon! I had more success with event doses but TBH it seemed to help "get it up" but I couldn't "keep it up"! That is why I got into cock rings they were transformative for our experience.

User

Posted 07 May 2026 at 17:09

Originally Posted by: Online Community Member

Were you advised to use sudfed and walk up and down stairs if the erection lasted longer than necessary?

Is that Sudafed the decongestant tablets? I wasn't told anything about that or getting rid of a long lasting erection, other than A&E if it lasted more than 4 hours

Originally Posted by: Online Community Member

Also, using Sildifenal AND injections used to be a big no no to avoid priaprism risk.

This was part of my briefing. The urology nurse has written to my GP asking him to prescribe Invicorp and stop my repeat prescription for Sildenafil. I was warned not to take the two together as it very significantly increased the likelihood of priapism. I imagine the same applies to Tadalafil?

Edited by member 08 May 2026 at 07:51 | Reason: sorting jumbled quotes out!

User

Posted 20 May 2026 at 16:09

So, it seems my relief at discovering an effective solution for ED was premature. 2 weeks after my hospital visit to be shown how to use Invicorp, I still don't have any. The hospital wrote to my GP asking them to prescribe and I have called various times to chase it up. I've been told, "the doctor is reviewing it", "a senior partner is reviewing it","it's being processed etc". Yesterday I had a text from the pharmacy to say they were preparing my prescription, hoorah!

However, on checking on the NHS app, the only approved prescription was for a sharps box! I queried this with the surgery today who confirmed this, a sharps box to use for Invicorp syringes I haven't received was the only prescription approved! Furthermore, I was told the GP surgery would NOT now be prescribing Invicorp to me, as there was no "patient care plan" in place, or some such.

I spoke to the urology nurse who taught me how to use it and supervised my first self administered injection. She was super helpful and said the surgery was talking bollox! she will write to them again to explain the procedure and insist that they prescribe. If they refuse, she will be able to prescribe me some direct from the hospital, but it's a 2 hour round trip, so not an ideal long term solution.

I'm pretty annoyed about this petty bureaucracy impacting my quality of life tbh. It'll get sorted I'm sure, just venting. Apologies!

User

Posted 20 May 2026 at 16:27

Sadly , now I’m 11 yrs down the line and incurable , it is blatantly obvious they tell you will have ED and promise a clinic and support and medications , but it quite simply isn’t true and isn’t happening. There is a lot of work going on behind the scenes to try and improve this. Way back when I had surgery I took matters into my own hands and was lucky enough to be able to self fund and meds etc. If you wait for them to sort it , it will inevitably be too late already. I bought Invicorp privately and had great success. I read the leaflet and just did it myself. Now I’m way down the line and on HT for life , I’d rather mow the lawn in honesty

Good luck. Forge ahead. A pump is VITAL

User

Posted 20 May 2026 at 16:58

Thanks Chris, I'm not as far in this journey as you and that's all very disheartening. I have a pump and am using it diligently every day for rehab. For various reasons though, it does not work for me for sex. I know others have had success in that regard, but it just isn't for me. The one time I have used Invicorp it was a revelation, easy to administer, pain free and effective. So to be told I can't access a highly effective treatment for a debilitating side effect of surgery, due to petty bureaucracy is infuriating.

I'm a stubborn so and so. I'll keep plugging away. I'll pay for it if I have to, but if it's been approved by the NHS and recommended by a hospital ED Nurse, I shouldn't have to surely?

I hope you have many more years of lawn mowing (or whatever else you enjoy) ahead of you! Which reminds me, my own lawn is long overdue a cut!

Edited by member 20 May 2026 at 17:10 | Reason: Extra text

User

Posted 20 May 2026 at 17:16

Is there a complaint system in place. It's disgusting that such a low value is put on a natural human bodily active that has huge benefits emotionally, mentally and physically too. It also affects two people

User

Posted 20 May 2026 at 17:25

Hi again, Blokeuptheroad.

It is disgraceful that you are not being prescribed Invicorp. I'd be phoning your GP's, Practice Manager and complaining. I'd be threatening to take the matter further with my MP or contacting the local news channels.

You shouldn't have to act like that, but sometimes', it's the only time 'they' listen!

Good luck, mate. 👍

User

Posted 20 May 2026 at 20:11

So I've drafted a complaint letter to the practice manager. I'm sitting on it for now, to give them chance to respond to a chivvying letter from my urology nurse sent to them today. She said she'd copy me in. I'm still baffled how, or why a GP can refuse treatment recommended by a hospital and which has such a demonstrable positive effect on someone's health and wellbeing. Utterly baffled.

I'm very angry about this and prepared to go into battle with them by any means available to me if they dig their heels in.

User

Posted 20 May 2026 at 20:28

And now you've got all this added stress of complaing etc etc which you shouldn't have. Having just sent an email to PALS last week, which brought about a positive result the next day and a phonecall from a consultant to apologise, ( very limp and luke warm apology it was too) , I'd say send the complaint straight away.

User

Posted 21 May 2026 at 10:49

So, after ruminating about this overnight, I have just hand delivered my complaint to the surgery. It was pretty strongly worded (but polite) and made it clear that I would escalate if there was no resolution. We shall see 🤔

User

Posted 21 May 2026 at 11:03

Well done. Keep it factual, I found a timeline was helpful. Just keep in mind you are entitled to treatment that improves your health and that includes sexual health. You are merely highlighting their inefficiency and mistreatment

User

Posted 21 May 2026 at 14:29

An update. I appreciate I am spamming a useful thread somewhat, with info which is maybe not directly relevant to the thread subject. I'll stop soon, I promise! TL/DR sharp elbows have resulted in the desired outcome.

Less than an hour after hand delivering my letter to the surgery this morning, I got a text notification from Boots say they had received my prescription and would notify me when it was ready for collection. I then checked my NHS app and noticed that Invicorp had now appeared in my list of approved medications and was marked as being prepared by the pharmacy. I had checked the app only this morning and this was not there then, so this has only just been approved. I note the prescribing doctor is the senior partner in a large practice of multiple GPs, who I have never seen or spoken to before.

Now just yesterday I was told on the phone and in writing via a message on the NHS app that they would definitely NOT be prescribing me Invicorp and I should seek advice from the hospital. So this change of heart is either as a direct result of my letter or intervention by my urology nurse. Either way, it shows that unless you are prepared to directly challenge poor decisions and advocate for your own health, you can be sidelined or ignored. I have not yet had any explanation or apology but the most important issue has been resolved.

I am hugely grateful for our NHS and appreciative of some fantastic care I have received, but they do get things wrong. I do wonder how many people in a similar situation lack the self confidence to challenge their doctor and have to suffer in silence. Thanks to @Antoinette for encouraging me to submit my letter, it tipped the balance in my favour.

Fight your corner if you have been unfairly treated. "The squeaky wheel gets the oil".

User

Posted 21 May 2026 at 14:45

That has made my day! Seriously thank you. I'm so pleased.

I never like to force my husband but we were both very dejected after a phone call. I thought I've had enough, he deserves to be treated with more respect than this. I wrote an email to PA LS and he changed it, checked it added a brainwave idea to add a timeline and he sent it. I was really astonished at the speed of what happened . Without thar we'd have still been waiting for something that was 2 months overdue and could go towards making his cancer curable.

Well done. Another step to recovery

User

Posted 21 May 2026 at 14:50

Well done, mate!

I have found that you often have to be politely assertive to be heard by the NHS. Its often been said on here that you are best to manage your own health issues rather than relying on a system which is often broken.

User

Posted 13 Nov 2026 at 06:06

Here's a recent video by 'The great' Dr Scholz on 'Sexual recovery after surgery' including penile injections. It's been viewed 8,500 times in 5 months, which indicates to me, that this is a big issue. The comments are also worth reading.

https://youtu.be/a6EECEAomto?is=dwm5_xaiH_FJQb2k

He recommends, within a month after surgery, using them twice a week. I doubt that's possible in the UK. Injections weren't even mentioned to me until I had an appointment at the ED clinic, six months after my RARP.

What I want to stress to you lads who are having ED issues is, these injections can restore your erections.

About a year before my surgery, I was starting to get ED issues. I'm still not sure what caused the problem, could have been heart problems, could have been a side effect of PCa, or it may have been just getting old. Anyway, I was prescribed Sildenafil which helped a bit.

Unfortunately, I also had non nerve sparing surgery, which, in my opinion, usually leads to permanent impotence.

My pre-op ED issues and and non nerve sparing RARP, were all major factors that left me unable to have natural erections. BUT, Invicorp still works for me.

How to use it and how it works:

1. Direct Injection into the side of the penile shaft (corpus cavernosum) using a very fine needle.

2. Phentolamine dilates the incoming arterial blood vessels, while aviptadil relaxes smooth muscle and restricts the veins from draining blood away too quickly.

3. Blood rapidly enters and accumulates in the chambers of the penis, producing an erection.

4. An erection typically begins in 5 to 15 minutes and lasts roughly 30 to 60 minutes. Unlike oral PDE5 inhibitors (like Viagra or Cialis), Invicorp acts locally at the injection site and does not require complex nerve signals or heavy sexual arousal to initiate blood flow.

If any of you are suffering like I did, please contact your GP and see if you can get these injections prescribed. They have proved to be a 'life saver' for me.

Give it a go and good luck.👍

Edited by member 13 Nov 2026 at 06:51 | Reason: Add link

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