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Diagnosed Oct 2023 prostate Cancer

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User
Posted 08 May 2024 at 16:36

You are spot on there Dave!

User
Posted 20 Jun 2024 at 00:07

Hi Guys, here I am reporting progress of my radiotherapy, 20 session's through May 2024.

Radiotherapy was not all that bad. Nice staff treating me well. Preparation taking a hour, which passes well enough. 

During treatment my bowels were unpredictable. Each time I pee it burned, I joked to family as if I drank red hot chilli peppers for a month. That is still with me 18th June. But nothing I could not tolerate. Obvious I now await outcome. A few months it seems.

PSA low. I now worry about HT daily. As recommended I am strength building. It's difficult, I have to start so low I feel weak. I read about bone density loss of muscles mass. Maybe I should except belng 70.

I personally wanted to show my treatment outcome. Might help one who considering HT with radiotherapy.

I hope all treatment in future goes as well as mine. Fingers 👉 for all our future's.

User
Posted 20 Jun 2024 at 00:21

PS I must add. Peeing 20 times a day 4/5 through the night. That is still with me. I am hoping it will one day be normal again.🫰

User
Posted 17 Oct 2024 at 23:40

Hi once again. Have been following all you guys. Despite not commenting on my condition.

Nothing different to you guys. Abiraterone 1000mg going down, forth prostat3 injection Monday next. Feeling pretty good. Sex drive low and Despite trying both Viagra and Sildnfil nothing great going on down there. PSA under 0.1. Let's hope it stays this low late November next blood test. As for low to zero love life, I know we were warned, but it's  still disappointing and hard to except. As I am feeling quite healthy. I actually forget about my condition/illness. Reminded when then occasion arise, or not arise as I should say.

Hope you are all well. Keep some good news coming 

User
Posted 18 Oct 2024 at 09:00

Glad to hear you are doing ok John. We were diagnosed at around the same time, so have been interested to see how you have been getting on.

I share your pain with the libido side of things, having had only partial nerve sparing surgery. Nothing happening at all in that department! As you say, although expected, it is a big blow when it happens isn't it.

Great news on the blood results though 👍 

User
Posted 18 Oct 2024 at 13:12

Hi John,

Good results and I’m glad you’re feeling healthy.

I know what you mean about your sex life. I had no interest in sex when I was on HT although I can feel changes happening now I’ve finished. We experimented and found I was very sensitive to touch which gave me immense pleasure and even a semi erection. I was also still able to have an orgasm sometimes with my wife using a male masturbator. Don’t know if you’ve tried this but might be worth a try?

Good luck, 

Derek

User
Posted 18 Oct 2024 at 18:00

Originally Posted by: Online Community Member

Hi John,

Good results and I’m glad you’re feeling healthy.

I know what you mean about your sex life. I had no interest in sex when I was on HT although I can feel changes happening now I’ve finished. We experimented and found I was very sensitive to touch which gave me immense pleasure and even a semi erection. I was also still able to have an orgasm sometimes with my wife using a male masturbator. Don’t know if you’ve tried this but might be worth a try?

Good luck, 

Derek

I echo the above but with a pump and with a Vibrating Penis Head Massager ( £12.99 ebay ) can acheive satifaction on a small semi and be amazed how good it feels , wife has a similar toy , never say never .

User
Posted 20 Oct 2024 at 05:44

Thaks all for return of your post's. 

I can't say it's nice to know other's are on same boat. As I would not wish this on anyone.

Unfortunately my seminar vessel's are cancerous. So an organism will be out of the question. The old boy makes an effort at an erection, he wouldn't get a standing ovation for.

My wife is great about this and understanding. I think one has to throw the towel in and visit Ann Summers.

Oh! Hot flushes, three a night. One of three throughout the day. 

Peeing no problem throughout day but twice a night minimum.

Considering Maggies or similar, so I can have a proper moan to someone. I could not possibly tell anyone I know what I just shared. My mates know of course. I won't get any sympathy as I look far healthier than any of them.

Anyway let's hope for good future for all. Thanks for taking the time to read all my nonsense 

User
Posted 20 Oct 2024 at 07:15
Having your seminal vesicles removed will not remove the capability to have an orgasm, they are removed by every prostatectomy.

What you will lose is any seminal fluid ejaculate and the ability to father children.

Orgasm still feels great after treatment!

User
Posted 21 Oct 2024 at 23:53

Francijl I hope than info is right. I am learning of you guys. A year ago I had not heard of PSA. I however still have my seminar vessel's. As it was guided towards radiotherapy and HT. As apparently 5 lymph nodes and seminar vessel's contamination. Incidentally my diagnosis T3b N1 nothing at bone. T prostate contamination what's the rest. I take it T3b is a little worse than T3a and N1 is seminar vessel's contamination ? Good health to all

User
Posted 22 Oct 2024 at 07:15
No, the T3B indicates seminal vessel involvement. The N1 indicates a lymph node is involved.

User
Posted 22 Oct 2024 at 07:55

Originally Posted by: Online Community Member
What you will lose is any seminal fluid ejaculate and the ability to father children.

As they say, cutting the vas diferens makes a vas diferens. 🤓

 
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