Almost a year on after RARP

User

Posted 30 Apr 2024 at 21:46

That’s Brilliant news Adrian, I’m really pleased for you.

Onwards and Downwards,

Derek

User

Posted 30 Apr 2024 at 22:10

👍😁

Dave

User

Posted 30 Apr 2024 at 22:21

Originally Posted by: Online Community Member

Great news Adrian, especially as you were Gleason 9.

I'm a realist Kev. T3a, EPE, Gleason 9, means there is still a big chance of recurrence. However, there are others on here who had similar that have made it without BCR.

Logically, you'd think that if you had a high Gleason, it would raise its ugly head more quickly than a less aggressive one, but I dont think it works like that.

So far so good.🤞

I did over celebrate. Fell asleep on the garden bench and feel a bit stomachy now.🤢

Edited by member 30 Apr 2024 at 22:23 | Reason: Additional text

User

Posted 31 Jul 2024 at 11:22

I've just got my, 18 month, PSA check, still undetectable <0.02. 👍

As delighted as I am, I'm still thinking of you lads, whose results have not been as good.

Best of luck to all of you.

User

Posted 31 Jul 2024 at 11:41

So pleased for you , in the words of my football team " We march on "

Vern.

User

Posted 31 Jul 2024 at 11:59

Originally Posted by: Online Community Member

So pleased for you , in the words of my football team " We march on "

Cheers mate. We're the lucky ones. However on this site, even if things aren't going to plan,"You'll never Walk Alone"

User

Posted 31 Jul 2024 at 12:03

Great news Adrian!

That's got to be worth a celebratory pint or two in the garden 🍻

Cheers and good health.

Kev.

User

Posted 31 Jul 2024 at 17:36

Great news Mate 👍

User

Posted 31 Jul 2024 at 20:32

Adrian56,

That's great news. Long may it continue.

JedSee.

User

Posted 01 Aug 2024 at 17:14

So good to see/hear positive news. Thanks for sharing, Adrian. Onward and upward!

Twelve on

User

Posted 12 Sep 2024 at 13:40

Hello all,

Ive just joined the forum, and have been reading through numerous posts.

I had my op in August last Year. It went very well, and I was out by lunchtime the next day. I had no problems with the catheter, and it was removed after 10 days. I was one of the lucky ones, as I have had no leakage problems.

My question is, everything is still dead as a Dodo down below. Nothing, not even a twinge. I've tried the Viagra, and the pump. I've read that it can take up to 2 Years, before seeing any improvement? However a doctor told me that if you have not seen any improvement after a Year, You never will??

Anyone care to comment?

Cheer

Mike

User

Posted 12 Sep 2024 at 14:13

Hello Mike.

Welcome to the forum mate.

I'm pleased the op went fine and that you're not suffering with incontinence. You're a lucky lad.

As for ED. My op was non nerve sparing. I was told I would not get any natural erections again and unfortunately, 18 months on, this has been the case. Invicorp saved me. Now that I've mastered the injecting technique, it guarantees an erection. I'll add a link a thread on the subject.

I was prescribed the drug by my GP following a hospital ED clinic appointment I had 5 months after my op.

https://community.prostatecanceruk.org/posts/t29845-Hooray-for-Invicorp

Best of luck mate.

Edited by member 12 Sep 2024 at 14:14 | Reason: Additional text

User

Posted 12 Sep 2024 at 14:31

Hi Adrian,

Thanks for the warm welcome.

I havnt gone down the injection route route yet, as I was told by my Consultant that he managed to save most of the nerves??

Thanks for link, I will check it out. Much appreciated

User

Posted 12 Sep 2024 at 18:14

Good result <0.02. I wish I knew what my readings beneath 0.05 were.

User

Posted 12 Sep 2024 at 19:14

Hi Pete.

Presumably <0.05 is the lowest your lab measured to.

5 out of 6 of my results were <0.02, they were all from one lab. One of my results was <0.05 but that was a different lab.

Although your results have slightly increased, they look stable and I hope they remain that way. 🤞

Good luck mate.

User

Posted 01 Nov 2024 at 11:06

Morning folks.

Just got my 21 months post op PSA test results back. <0.02 🥳 'undetectable'

What's even better is all my routine blood checks are satisfactory. Liver function is spot on, giving me the green light to go to the Club to celebrate. 😁

Good luck to all you lads, who are awaiting results.🤞

Edited by member 01 Nov 2024 at 19:41 | Reason: Typo

User

Posted 01 Nov 2024 at 11:38

Great news Adrian!

Enjoy that celebratory pint or 4 😬

User

Posted 01 Nov 2024 at 12:31

Great news mate now relax ! No test for me yet as was put on 6 monthly.

Vern.

User

Posted 01 Nov 2024 at 12:55

Fantastic news Adrian!

Hope you don't work your liver too hard at the club.

Cheers,

Kev.

User

Posted 01 Nov 2024 at 14:30

Originally Posted by: Online Community Member

Morning folks.

Just got my 21 months post op PSA test results back. <0.02 🥳

What's even better is all my routine blood checks are satisfactory. Liver function is stop on, giving me the green to go to the Club to celebrate. 😁

Good luck to all you lads, who are awaiting results.🤞

Excellent news Ady, that reminds me I must take a walk to my surgery to enquire about the results of the test I did over a week ago. They never seem to bother if I don't chase!

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