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PSA on the rise

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User
Posted 08 Oct 2024 at 22:22

Lexi, my oncologist was described as a bit of a maverick. PSMA and SABR to local hot spots is probably a more modern approach.

Agree the single low PSA does not meet the criteria for PSMA scan. 

Ulstermans PSMA scan can found something at ten times lower , CJ did not spot anything untill it was around 200 ?  Not sure about paying for a scan at this point. My nurse said the original plan was to wait for the PSA to reach 1 , the oncologist had a higher figure in mind. PSA velocity or reaching 3 seems to be the factors to decide my next step.

Thanks Chris 

 

 

User
Posted 04 Dec 2024 at 14:29

We met with Consultant Oncologist this morning. MRI and CT scans haven't picked up anything and PSA has remained at 0.2.

It's a case of watch and see. Will be reviewed again in 4 months.

User
Posted 04 Dec 2024 at 16:33

Lexi,good there is no rise. I had lots of CT and bones scans during the trial I was on, they didn't see anything at a PSA of around 0.5. 

Your situation is a good example of the short comings of the less sensitive PSA test.

Hope all goes well for the future 

Thanks Chris 

User
Posted 04 Dec 2024 at 20:42

Thanks Chris. Going to try and relax a little and enjoy the build up to Christmas.

Best Wishes 

User
Posted 03 Apr 2025 at 15:44

PSA has risen to 0.4 so doubled in 4 months. Got oncologist appointment next week.

What should we be requesting?

Was refused a PET scan by the Radiology department end of last year .

Thanks 

Edited by member 03 Apr 2025 at 15:48  | Reason: Not specified

User
Posted 03 Apr 2025 at 16:19

At identical situation,  a PSMA PET was considered the best and logical option. The insurance didn't cover so husband payed from the pocket. It worked. Little  spots were spotted and treated. I  hope nowadays that test is not at such a high price as it was 3 or 4 years ago, or NHC or insurances decide bearing the cost.

Good luck!

Edited by member 03 Apr 2025 at 16:22  | Reason: Not specified

User
Posted 03 Apr 2025 at 17:17
Lola - what kind of treatment did your husband have for the hot spots? Were they lymph nodes? Will be pushing for PET scan next scan.

Thanks for replying and I hope all goes well for your husband.

User
Posted 03 Apr 2025 at 17:41

He first started HT. 2 months later,  RT to the spots and also, as a prevention, to the pelvic area was added. Once finished RT,  continued HT. 2 years in all. The  length of HT differs according to oncologists' criteria.

Right now we happen to be on our way to the hospital for his periodical check. Last one, six months ago his PSA was considered undetectable (O.O-), don't remember exactly.

He's fine now. 

Push to get the PSMA.

Whatever you want asking me, feel free to write or post me.

Good luck!

User
Posted 03 Apr 2025 at 20:58

Hi Lexi

I refer you  back to my previous post last year. You need to push for a PET scan which is what I had. My PSA was up to 1.2 and the PET scan showed cancer cells in a bone in the pelvic area. I was referred for SABR treatment that pinpoints where the cancer is. Only 3  sessions this time last year. I suffered with fatigued following this but nothing too problematic.  I am still on 3 monthly PSA tests and my latest was 0.16 so all good. These days you have to be really pushy and make your case so do not take no for an answer! I think I am  fortunate as my oncologist has been brilliant and so in tune.

Good luck.

User
Posted 05 Apr 2025 at 09:36

He has never had his testosterone checked and I wonder if this is something we should be requesting?

User
Posted 05 Apr 2025 at 10:26

As far as I know, testosterone is a hormone existing in every man. The purpose of HT is to reduce the production of testosterone as it's supposed to be food for prostatic cells growth. Therefore, when in HT it will be periodically checked to see if the the level is low enough. Don't know if checking it regardless being in HT or not is necessary o recommendable. Once HT is over testosterone will progressively come back.

Edited by member 05 Apr 2025 at 10:28  | Reason: Not specified

 
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