I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

<12

Type of Prostatectomy

User
Posted 08 Nov 2024 at 04:55

Tanks MGOR for sharing the info that Liverpool NHS maybe using this new technique that Ned talked about. If you don’t mind me asking where did you hear about this? Do you have any more information about it?

Thanks

Kevan

User
Posted 09 Nov 2024 at 15:17

Kevan,

it was a hospital in California. I know this is primarily a UK site, so it might not be practical, but if still interested I will let you know.

User
Posted 24 Nov 2024 at 20:25

Originally Posted by: Online Community Member
as the incontinence is driving me mad,

Hi Dave,

I'm with you!

I had extremely bad luck with my RP in terms of bladder control:
For many week I needed 8-10 diapers per day and no (real) improvement although I did my exercises very stricly.

After 7 weeks I wanted to do something about it and odered an "EMS training unit". 250 € (= approx 250 US$).

I used it every day for three sessions per day, 30 minutes each, not missing a single training.

After approx. 2 week very small improvements showed up, and from there it improved step by step - and after 3 months of treatment I'm fully continent now.

If you consider EMS:

+ Forget adhesive electrodes, go with an anal electrode from day one

+ Buy a unit where you can configure your own stimulation programs. I needed to increase the strength of the stimulation like Arnie the dumbells in the Gym. Ended up at: 10s active - 10 s pause / 35Hz repetition frequency / 400µs impuls width  / 65mA stimulation current

+ During active stimulation intervalls: Work your urine sphincter - In the beginning it's hard, but you will master it!

+ Insertion depth of the anal electrode: In the beginning it's normal to have it in 1-1,5 inches. If you have increasingly better control over your sphincter, get the anal electrode all the way in. It boosts the training very much, but you will need (much) more current

+ Before you ask: Yes, it's totally normal for every man to stick an electrode in the butt and apply electro stimulation - at least in our situation

+ If you need more information, you are more than welcome to send me a personal message. I'm happy to help.

I got rid of truely horrible incontinence, and I'm pretty sure this works for others as well!

Very dry regards,

Henrik

User
Posted 24 Nov 2024 at 23:16

Originally Posted by: Online Community Member

After 7 weeks I wanted to do something about it and odered an "EMS training unit". 250 € (= approx 250 US$).

I think I remember some posts from a member called Steve86 https://community.prostatecanceruk.org/default.aspx?g=profile&u=52221

who had his RP in France. I think his EMS treatment was carried out at the hospital by outpatient visits.

Edited by member 24 Nov 2024 at 23:37  | Reason: Not specified

Dave

User
Posted 25 Nov 2024 at 07:46

Kevan

sorry for the delay in responding I missed your reply. It was mentioned by one of the Liverpool nurses at a recent Liverpool support group meeting. It’s been installed at Aintree hospital rather than the new Royal in Liverpool (all the same Trust and team). They are quite proud of it! 

 
Forum Jump  
<12
©2025 Prostate Cancer UK