Lutetium 177 treatment sessions.

Phil, thanks for your reply, we are taking advantage of company medical insurance, the treatment would be at a Genesis centre in Windsor.  It may not be approved by the Lutetium specialist or the insurance company because the proposal is not the standard protocol. Some long term members will know of Jamie from the Mill.

Thanks Chris 

A lady called Lynn Eyre on here has a tremendous knowledge of all prostate situations and treatments, and posters treatments and may well have the insight you are looking for, but she has not posted in here since April, so unsure if she is still checking in or not.

Andy, I also saw something about being picked up and dropped off, and during my last SABR treatment there was a lady who was chauffeured to and from the clinic not sure if it was a limo. My wife has often said she would have liked a motorbike, can you still get a motorbike and sidecar, would that be adequate  😀? Thanks.

Paul, I know of Lynne's knowledge and I have met her at one of the social gatherings we used to have. I don't think any of her men had lutetium treatment, talking to one of the prostate nurses on Friday she can put me in touch with someone in a similar situation but not exactly the same situation. Thanks for the reply.

Thanks Chris 

Interesting info re the Lutetium. Thanks guys.

And would be good if it became free on the NHS but I can’t see it. As far as i can tell the benefits aren’t brilliant.

in the meantime I’ve just gotta wait till mid Feb to see if or when they’ll put me on the Radium 223. No scans booked up so presumably they’ll just use PSA as a guide. I do see that Lutetium can be used after the Radium which i suppose is good…..

Take care 

Phil

I have seen a study of a few men who underwent lut177 treatment in similar circumstances. One had an excellent result some had moderate success and others a failure.  There is no guarantee that it will be offered as detailed below.

Thanks Chris 

"I reviewed Christopher in clinic today. His recent PSMA PET scan has identified new left internal iliac lymphadenopathy, as well as retroperitoneal lymph nodes, and a highly suspicious left supraclavicular fossa lymph node. There is too much disease here to consider radiotherapy or SABR. I have said I think now is the time to consider further treatment for his cancer. I know Christopher has been loath to consider treatment thus far because of hormonal side-effects.

Ordinarily, the recommendation in this circumstance would be for indefinite LHRH analogues and the addition of a novel anti-androgen. I think in his case, I would use Abiraterone and low dose Prednisolone. I think this is likely to control his cancer for four to five years. An alternative would be to continue observation if he is loath to consider hormone treatment, but we would have to set a threshold or some idea of when we may consider instituting hormone treatment. I think further observation may come with a modest detriment to overall how long he may live.

The third option would be to consider Lutetium-177. This is unorthodox, but I have had one patient where this has occurred. To even consider this, he would have to have a consultation with Dr xxx down in Windsor, and it may be that his insurer will not fund this, but it is certainly a possibility that can be explored."

Hi Chris.

Have you managed to get any more information on the Lut 177? 

I don’t think it’s an option for me due to cost versus efficacy. Just not worth it for a few months extra if you’re lucky.

Phil_1969 has been offered a new immunotherapy trial subject to tests etc… This might sound more interesting. 

Cheers

Phil