Lutetium 177 treatment sessions.

User

Posted 21 Dec 2024 at 10:48

Hi guys, can anyone give me a detailed account of their experience of the lutetium treatment sessions.

If and a big if that is the treatment I was to have it would be 120 miles from home. Just wondering about the practicalities of that potential treatment.

Thanks Chris

User

Posted 21 Dec 2024 at 13:49

I would also be interested too, as I’m sure Phil1969 would as they are possible future treatments for us..

Cheers

Phil

User

Posted 22 Dec 2024 at 09:47

Hi colwickchris

I presume you've been referred by your oncologist to the Royal Marsden hospital in Sutton or Chelsea for the possibility of receiving lutetium 177 which unfortunately is self funded at the moment.

I had a zoom conversation with one of the doctors there a few days ago,they felt that my bone mets we're not showing enough spread on my last psma pet scan in November to warrant the expense of the treatment at this time in my journey I was advised to wait for now and use other treatment options that are open to me and when the time comes to contact them.

I'm hoping that when that time comes it will be available on the NHS as this treatment is "eye watering expensive"( the words of the consultant I spoke to)

I wish you well on your treatment options as it can be an anxious time knowing which way to turn....regards Phil

User

Posted 22 Dec 2024 at 11:11

Phil, thanks for your reply, we are taking advantage of company medical insurance, the treatment would be at a Genesis centre in Windsor. It may not be approved by the Lutetium specialist or the insurance company because the proposal is not the standard protocol. Some long term members will know of Jamie from the Mill.

Thanks Chris

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