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Simon Story Chapter 2

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User
Posted 08 Dec 2017 at 19:27

Good luck Si. I do read all these posts more now as it is becoming nearer territory to me. God knows your worries , but to me getting through to spring is good enough before any more angst. I’ve been told maybe Abi and Chemo and I guess I’ll be lucky to be at least offered that. Good luck and enjoy xmas

User
Posted 08 Dec 2017 at 20:47
Good luck with the Abbi Si.

Ido4

User
Posted 08 Dec 2017 at 21:49
Si

Hope all goes well with the treatment and not too many side effects.

Thanks Chris

User
Posted 08 Dec 2017 at 23:33

Hope it does the trick and the side effects are kept at bay Si.
Hopefully see you early in the new year

Bri

User
Posted 09 Dec 2017 at 04:41
Sorry to hear that you need to start Abbi again, fingers crossed it does the job for a long time.

Kev

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 09 Dec 2017 at 09:41

Good luck with the Abbi Si

I hope it's as side effect free as last time and that Christmas can be enjoyed as much as possible

Edited by member 10 Dec 2017 at 11:06  | Reason: Not specified

We can't control the winds - but we can adjust our sails
User
Posted 10 Dec 2017 at 10:35
Thinking of you Si , you had a good run on Abbi last time .

Fingers and toes crossed for no side affects and a reduction in PSA.

Love to you all

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 10 Dec 2017 at 10:58
Good call Si, hoping the Abbi does the trick again. I assume John will go on it soon or chemo. Latest PSA is 77 and still no new treatment here.

Good luck mate, you’ve dodged it well so far and I’ve no doubt you can keep it on the run.

Love Devonmaid

Xx

User
Posted 02 Feb 2018 at 15:52

So i managed to hit my 5 year survival on Christmas eve and things at the moment are getting just a bit awkward

At the end of last year i went hormone resistant and 6 cycles of Cabazitaxel  really did nothing with quite a bit of progression so we thought to try Abiraterone for a second time

So my starting PSA was 4.44 nearly the highest it has been

After two weeks it dropped  to 2.4 two weeks later it was 2.26 two weeks later 2.4 and yesterday 2.86 so we will give it four more weeks then probably call it a day.

Not too many choices left now but i am sure Jamie will come up with something.

Si xx

Don't deny the diagnosis; try to defy the verdict
User
Posted 02 Feb 2018 at 16:22

Si

Everything crossed hoping Jamie can help your long term fighting spirit get that PSA back down.

Ray

User
Posted 02 Feb 2018 at 17:37

Si, that's very interesting: first, that cabazitaxel did nothing for you (I've had one cycle and will find out on Monday if PSA has been impacted and in three or four cycles if a scan shows progress or not) and more particularly, that you've had a second go with abi. I haven't been offered that and rather assumed that if something has been tried and ultimately failed that it couldn't be tried again. Shall have to talk to Oncologist about that! I had been told, however, that my PCa could be "rechallenged" (Oncologist's word) with docetaxel (my first experience with that having been cut short). Have you been offered that?

We'll both need something experimental soon the way things are going.

Keep thinking positively!

AC


User
Posted 02 Feb 2018 at 17:57
Hi AC

I have had docataxel 5 years ago when I was first diagnosed and had good results with it

Abbi was stopped after 20 months because they thought it caused me to have tachycardia so it was worth trying again

My thoughts at the moment is to try the testosterone flood and starve I am talking to a guy in the states who was on the trials just need my oncologist to agree 😀😀

How is the Cabi going

Si

Don't deny the diagnosis; try to defy the verdict
User
Posted 02 Feb 2018 at 18:02

Good luck Si and AC.

We can't control the winds - but we can adjust our sails
User
Posted 04 Feb 2018 at 18:16
Not sure what prompted me to look in tonight maybe a gut feeling 😜

So not the best news , what is the flood and starve thing ?

Always thinking of you .

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 04 Feb 2018 at 18:43

Hi Si sorry missed this. Scary times yeh !! Not sure what to say really except I can only hope the best for you and a new plan. I have bone and whole body CT booked end March — surely they’ll find something this time ?? I hope you feel well in yourself although I get the mental torture. It’s like a millstone isn’t it. Keep fighting friend

User
Posted 05 Feb 2018 at 15:14
Hi Si, sorry to read that PSA is not playing ball.

I did read a while back about testosterone overdose and in the vast majority of a small trial there was great success so hope you can sit on Jamie and make him find a way.

Always rooting for you.

kev

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 05 Feb 2018 at 17:32

I'll put my cabi experience in the Cabazitaxel Next thread I started a month back to keep things tidy.

AC

User
Posted 05 Feb 2018 at 21:04

Si, is docetaxel a possibility again? I have also read about the flood & starve theory; let’s face it, your cancer has never played normally so maybe you are exactly the person to try this. Fingers crossed Jamie goes for it x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 06 Feb 2018 at 17:46

Lyn and Si, the flood and starve trial got a lot of coverage around 1 December last year and reference to it can be found on the main web site for PCUK . I think they are still recruiting to the trial. Google "flood and starve Prostate Cancer" and there are several hits.
AC

User
Posted 06 Feb 2018 at 19:08

Hi AC

No trials in the UK only America and i think a small one in Germany, i am in email contact with the oncologist running it in the U.S and i am sure this is the route i will be going down

Lyn yes i can do Docataxel again but i do not want to do it during spring and summer i will try to get through to September/October and give it a second go them

Thanks All

Si 

Don't deny the diagnosis; try to defy the verdict
 
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