15 years on (continued)

User

Posted 24 Jul 2014 at 17:02

Hi TG

It's nice to see you posting and as always you are thinking of others, did you know they are trials being carried out on bone mets to the lower spine using HiIFU..

All the best

Roy

User

Posted 24 Jul 2014 at 23:16

Speaking from my own previous encounters, not many I'm pleased to say, I can understand the value of a good backing group be it family friends or any combination of either. TG and Karen have it in abundance that is clear to us all and rather reassuring I feel. Good night dear friends immerse yourselves in it.

User

Posted 26 Jul 2014 at 09:55

Hi all,

A little bit more from the front.

News is a bit mixed, on the pain side I went 4 days relatively pain free only to be in a lot of pain 2 days ago around the rib area. Oramorph has reduced the pain and yesterday went fairly well but very very tired. I have an infection on both legs with about 15 "eruptions" on both legs. Thankfully although a bit tender they have not broken open....yet! They were treating this with Fucibet cream and an intravenous antibiotic. They have stopped this from last night as they think it might be effecting my liver adversely. This is the main problem with my latest liver bloods going haywire. My GGT should be 60 and my ALP should be 30-130, both are over 1400. Who gives a toss about PSA !!

I see my oncologist on Wednesday following a blood test on Monday when we will discuss the effects the relatively new drug Enzalutamide is having. I will have been on these " bombs " for 7 weeks. My concern is that it isn't working and at £3000 plus per month he might feel that it should come to an end, we shall see.

Onto the main issue, my spirit is high, I feel generally well apart from the tiredness and the fight continues. We are having the downstairs loo converted to a damp room. Unfortunately despite 31 years Army servce I don't qualify for a grant for this from SSAFA, British Legion etc. as it is means tested and Karen is still working and I get a good pension. Hospital bed, wheelchair etc. etc. will be provided by the hospice though. So I am looking at getting home towards the end of next week, beginning of week after that.

On that upbeat note I will sign off,

Wishing you all the very best,

Life is for living

Barry ( alias Barrington )

Edited by member 26 Jul 2014 at 10:00 | Reason: Not specified

User

Posted 26 Jul 2014 at 10:20

So glad to hear you will be going home soon. Like others on the site we are following your brave journey and thinking of you and your family.

Max

"You can only play the hand you're dealt"

User

Posted 26 Jul 2014 at 13:24

Thanks for the up-date Barry, nice to see that you will soon be going home again, I see that SSAFA and RBL won't fund your wet-room, have you tried the Social ?

Best wishes, Chris.

Shirley's post :- Hi Barry, How are you dealing with this hot weather? We feel absolutely whacked after just a short excursion up to Sainsbury's! (five minutes' walk normally, about ten or more just lately!!) Hope Karen is coping with all the upheaval, and let's hope the wet room works for you. We hope the move next week goes well, it is something to look forward to.

Love and best wishes, dear friend,

God Bless,, Shirley xxxxxxxxxxxxx

User

Posted 26 Jul 2014 at 16:00

Hi Barry

Pleased to see you posting and the news you will be going home shortly. Hope things pan out better at your oncologist visit than you anticipate.

Shame you can't get any funding for your wet room, but it will be worth the cost in the long run. I had one built a couple of years ago now as I find stairs a problem. It has paid many a dividend for me, so hope you find the same.

Hope they can get the levels of pain vs meds sorted a little better still for you, as high levels of pain meds will leave you feeling tired and wiped out.

Wishing you and family the very best.

VJ sends you and Karen her love and best wishes too.

Kim

User

Posted 26 Jul 2014 at 19:49

Good news on your plans to get home, Barry, thinking of you both, love Janet

User

Posted 26 Jul 2014 at 20:05

Hello all,

This is Karen again, since Barry's upbeat post this morning things have gone downhill rather fast. He became very depressed this afternoon and because of the rising liver bloods feels that he will never get home. He is not able to put a brave face on things which as you will know is not like him. We sat in the garden an hour or so ago and had a good cuddle and cry. I know that he is thinking more of me rather than himself and I wish he wouldn't. I think for both of us it is the not knowing how long this will go on or how it will end and where we don't usually dwell on this, tonight we did! Hopefully tomorrow we may both be feeling a bit more upbeat but if there is no post for a day or two, you will all know why. Night night all love from Karen and Barry xxx

User

Posted 26 Jul 2014 at 20:39

Thanks Karen. You are both in my thoughts. Hopefully Barry will be feeling better about things tomorrow. Perhaps allowing himself an outlet (crying) will help him.

As ever we are all with you

Take care

Bri x

User

Posted 26 Jul 2014 at 21:00

Thinking of you TG and Karen. Best Wishes each, Diesel. x

User

Posted 26 Jul 2014 at 21:09

Hi Karen,

Reading between the lines from Barry's post this morning I felt kinda sad, so no wonder that you have both had tears this afternoon. Well that now makes 3 of us I had quite a few tears reading your post.

I am really hoping that you can manage to get Barry back home where he wants to be.

Much love to you both.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 26 Jul 2014 at 21:09

Thankyou Karen

This is the first day I have looked in was wondering how Barry was .

I started to reply sending my best wishes to you both then I deleted it.

Now am reading how emotional he is that is what happens they dont feel sorry for themselves all they care about is thier OH and that is why we love them so much.

Right now my heart is broken but have room to send you both my love and best wishes keep strong and hold each other so tight.

Carol x

User

Posted 26 Jul 2014 at 22:34

Karen

I understand where Barry is coming from. Many people see me as this "rock", this "never say die" figure but I also cry and I sometimes find it all too much to bear. I hate this disease SO MUCH and what it does to us but we can only trust in God and the medics http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-cry.gif.

Find peace in whatever way you can ....

Allister

Nil desperandum

Allister

User

Posted 26 Jul 2014 at 23:11

Hello Karen,

With all that Barry has had to cope with it would be surprising if he was able to keep his spirits up all the time. It's good that you are able to help him and ensure he does not overtax himself. We are all thinking about him, hoping that his pain can be alleviated and problems addressed so he can come home soon.

Very best wishes to you both.

Barry

User

Posted 26 Jul 2014 at 23:37

Dear Karen and Barry, you both so obviously think of each other's needs rather than your own, and it gets so difficult to put a brave face on, in Barry's case through the pain and tiredness and in your own, your worry. I wish I could help, as we all do, maybe Barry will feel a little brighter in the morning, love to you both, Janet, x

User

Posted 26 Jul 2014 at 23:59

Your love for each other shines through your threads. A good cry will help you both at this difficult time. Thinking of you both.

Paul

Stay Calm And Carry On.

User

Posted 27 Jul 2014 at 09:35

Dear Karen and Barry,

You know each other so well after all these years. You are soulmates and you each know what the other is thinking.

I'm glad you got to have your good talk to air your feelings and to try and release some of this enormous pressure and anxiety you're both under.

Barry, you are absolutely worried sick about Karen and she feels the terrible deep worry for you.

You've just celebrated 25 wonderful years, and I know your love is stronger than ever.

Let this beautiful. strong bond you share give each of you double the strength to cope with the painful emotional days.

Wiling you both peace and comfort,

Love from us all here,

George, Lynn and Katrina

B2PCa

User

Posted 27 Jul 2014 at 10:22

Barry, Karen, I hope things are better today.

flexi

User

Posted 27 Jul 2014 at 17:54

Know where you are coming from... love to you both.

Fiona.

User

Posted 27 Jul 2014 at 19:29

Hi Karen

We are so very sorry to hear the news about Barry. I hope over the last 24 hours both you and Barry have become a little more comfortable. Very best wishes to you and Barry and your family. Thinking of you all.

Alan and Celia

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