Thanks all. John is absolutely fine now - sadly, the family matters have come one after another. None will be resolved quickly and we need to be very strong to get everyone else through so I think after the initial firefighting John was just overwhelmed with sadness. The problems are nothing in comparison to what some on the forum are facing and we will of course survive
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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A lot going on for all you and I concur with the other posts wishing you good luck, glad it wasn't a heart attack, respect for your charitable work and no comment on the choice re. sex and malaria .... apart from both have their dangers!
dl
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Blooming heck Lyn you have been busy , Gambia, blue lights, heart attack, sex and Malaria all in the same week. Seriously I am glad that John is OK .
BFN
Julie X
NEVER LAUGH AT A LIVE DRAGON |
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Dad had his consultation today with Mr P.
PSA has risen but (this will mess with the heads of all debating the significance of PSA fluctuations) when the blood sample was taken, it was sent to two labs - the first to our local hospital where Mr P is based and the other to the GP's preferred lab in Harrogate (I think I have posted here before that it is allegedly common knowledge amongst medics in our area that PSA tests come back higher from Harrogate than from St James's).
Well, case proved. Dad's Leeds result was 0.30 and his Harrogate result was 0.32 - a difference of nearly 7%
Taking the .3 as reliable, it is a rise of 50% in 6 months but Dad & Mr P have agreed to leave it for 12 months before next test. I can't say I feel thrilled about that but on the basis that dad is pretty clear he would not agree to any treatment anyway, it seems a bit pointless to him to create anxiety that he will then do nothing about. Joy.
Edited by member 03 Feb 2015 at 00:17
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"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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Doesn't sound as though it's helping much with your anxiety though, Lyn. In the end, it's his decision and if he and Mr P are happy with that,you've got to let them get on with it. Relax on this one till next year, even if you'd have preferred a more pro-active response.
Paul
Stay Calm And Carry On. |
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Lyn,
Am I like your dad? Well of course not, except perhaps for one similarity which is attitude to PCa the more you survive. A topic rarely touched on here and maybe not elsewhere? Its not that you’ve given up on thankfully a long fight nor do you feel invincible but the more I survive the more I’m aware of others my age and younger in all health areas that do not. From that the quality of life, which always scored high on my list of wants, becomes increasingly important.
If it’s any comfort and not wishing to upset anyone: would I let my kids/relatives influence my health decision, No, perhaps it’s an age thing :)
Good luck to all
Ray
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That time of year again - the 3 months seem to come around so quickly! John & I saw the onco last night, scores are in and PSA has stayed stable at 0.04 so it certainly seems that 0.02 - 0.04 is his 'normal'. Next appointment in August which will be 3 years on from RT and then we will move to telephone consultations every 3 months rather than face-to-face. In the meantime, next appointment with the uro will be June, 5 1/2 years post op.
We had a good chat about stress and anxiety - Mr B said he felt much better afterwards :-)
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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Hi Lyn,
Really good news (always welcomed). Long may it be continued.
Steve
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OH Lyn
That's great news, so pleased to hear this.
Lots and lots of love to you both
Allison xxx
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Lyn
Great news and reassuring to others who may have to follow the same path, as Steve said long may it continue.
ThanksChris
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Absolutely Fabulous news I am so glad for you, so 2-4 is your new normal also loving the wise cracks from you, keep them coming.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif
BFN
Julie X
NEVER LAUGH AT A LIVE DRAGON |
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Great news Lyn...when are you joining the 6 months to a year club...I could do with some company and a friendly face :)
Bri x
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Excellent news, Lyn. i was wondering about the 6 monthly club as well!
Paul
Stay Calm And Carry On. |
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Great news, Lyn and John.
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Thanks all - with other things going on, we really needed some good news I think. As do many on here right now - thinking of you all xxx
Bri / Paul, not until the 10 year mark apparently - perhaps because Stan's disease did not behave normally?
Edited by member 02 Apr 2015 at 01:52
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"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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Julie, I don't know where I am going wrong. I am the least empathetic person in the world and yet I must have one of those faces that makes people want to spill their hearts :-( Mr B was very stressed last night so we gave him some good advice. I met a man on a train who told me all about his problems with his aging mum and his job. Two women left my training course today in tears (in the first 5 minutes .. I hadn't even got to the ground rules) and a third took up my whole lunch break with a worry about her children.
I might resign and become a till operator at Asda. People don't tell them stuff, do they?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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Lyn
first of all great news for you and John we all need and love good news any time we can get it.
Secondly being a till operator at Asda will not help you at all, they get it all the time usually from little old ladies on pension day. I sometimes think being an underwater basket weaver might be a good trade to have and use. No-one in their right mind would want to talk underwater.!!
xx
Mo
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Great news Lyn. All the best.
Bazza
Ten years since diagnosis, seven years of good QOL - last two years hell. I was once Spartacus - but my body is weak now. Cancer will be the victor with the ultimate irony that after it has has killed me, destroyed my family, denied me of 25 years or so of travelling, food enjoyment etc, the sheer irrelevance of its purpose means that all its little brain dead cancer cells will die too. GOOD!!! |
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Hi Lyn
Great news on the results. As for your desire to change your profession, believe me becoming a till operator or anything that requires face to face contact with the public is like jumping out the frying pan into the fire. Maybe the best job would be to become a Nun, but reading your posts in the past I don't think you would be able follow the rules required lol.
Roy
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Hi Lyn, good news. In terms of people telling you their stories you do have that understanding face and you give good straight forward comments to people which makes us feel confident. I certainly was reassured when you have responded to my concerns. All the best. Georgina
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Pleased to hear your John has had a good PSA result.
Thank you for all the advice you have given me on this forum during the last 2 years - this is much appreciated.
Sending best wishes.
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Very good news on hubby's latest result Lyn....
PS....... If the looks on the faces of till operators at my local supermarket this morning are anything to go by you wouldn't want to enter into any deep meaningful discussion with any of them....http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif
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Great PSA results John, good news, love it
Si
Don't deny the diagnosis; try to defy the verdict |
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Hi Lyn,
Good news and we all love good news http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-cool.gif
Nil desperandum
Allister |
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OH My I couldn't stop laughing , I know have this image in my head of Lyn as an Asda checkout lady dressed in a Nun's habit and very sternly telling people that they can't buy the BURGERS. http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif
BFN
Julie X
NEVER LAUGH AT A LIVE DRAGON |
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Gone off Asda - too green.
At Morrisons, staff are required to be nice to customers. That's no good.
Tesco has replaced till operators with machines
What colour do staff wear at Sainsbury's?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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Alathays, nice to see you posting! Are you just going away on a cruise or just coming back?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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August result came in today at 0.08 so John's 'normal' of 0.02 - 0.04 apparently extends upwards sometimes ... instinct is that it has been inflated by 3 weeks of cycling in France 🚲
Edited by member 18 Aug 2015 at 23:25
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"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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Lyn
This is why as long as I stay <0.1, I'm a happy bunny and don't want to know more. I am sure you're right about the cycling - thankfully golf doesn't throw up the same problem - it does mess with your brain, though! I get my next result next week. With all that's going on with dad, it's the least of my concerns at the moment!
Paul
Stay Calm And Carry On. |
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Lyn
It must be so relieving for you both for Johns psa results to continue so low.
I so hope that my own psa is down at those values in 6 years time.
By the way PCUK do have a hospitality tent at GNR as do YCR, I'll look out for you at the PCUK tent.
Hope you enjoyed France
Paul
Edited by member 19 Aug 2015 at 00:43
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I'm seriously considering having the standard test in future as recommended by the oncol. I'm not sure the angst minor fluctuations can cause is worth it...
Hoping this drops to its 'normal' range soon Lyn.
Bri
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So pleased for you Lyn.
Bazza x
Ten years since diagnosis, seven years of good QOL - last two years hell. I was once Spartacus - but my body is weak now. Cancer will be the victor with the ultimate irony that after it has has killed me, destroyed my family, denied me of 25 years or so of travelling, food enjoyment etc, the sheer irrelevance of its purpose means that all its little brain dead cancer cells will die too. GOOD!!! |
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We can't control the winds - but we can adjust our sails |
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Lyn
Good result
Even though 1 of my later results demolished my theory of too much physical activity of any kind a week before test increases PSA so I still stick with an easy week as I did on my last test. I know John is minus a prostate but we know other glands produce PSA so I would see it as normal for those glands to increase PSA with all that cycling. But whatever the cause keep enjoying what you do.
Ray
Edited by member 19 Aug 2015 at 10:33
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I feel as if I know you Lynne, you and others have and still are so much help to me ( and others )
I know I dont post as I feel I should, but don't feel my knowledge ( or lack of it ) will help just yet.
I'm so pleased for you, really good news.
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Lyn
Great news cycling really is fantastic but I am sure it pushes PSA up temporarily.
Are you using your family just giving page for the GNR? I will be doing my thing for you and Paul (Healey)on Friday when I cook the books.
Xxx
Mo
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Lyn
It is always nice to hear good news on here.
Thanks Chris
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Thanks all - John was a little panicky about it but when I checked back, he had a small rise in August 13 and August 14, both of which dropped again by the November test so I am pretty sure it is something to do with nos vacances. And of course, he doesn't just tootle around on the bike, we're talking lycra and everything :-)
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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I am Mo although I may not be worth sponsoring this year :-(
On the good news front, Yorkhull and Devonmaid will be thrilled to hear that I will be harder to spot on the TV this year as I will be sporting an e-cigarette (for those newer members who do not know, I have in the past been harangued my colleague athletes for taking ciggy breaks as I run round the Great North Run course and was once caught on camera having a sneaky one at the starting line)
Healey, I will see you in the massage queue at the PCUK tent
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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Indeed good news Lyn. You know you can do it!
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Really good news about John's results, such an encouragement ! Best of luck with the fund raising !
Fiona. xx
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Lyn , if I meet you in the massage queue can I give you a quick rub down? Diesel. x