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Just a update on Eric

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User
Posted 12 Jul 2014 at 21:50
Hi Carol, you also have to look after yourself. Have you considered looking at getting some support for your mum from the local authority or at the very least a carers assessment for yourself

Bri

User
Posted 12 Jul 2014 at 22:58
Hello Fiona Julie,

Thank you both for the replys we all have days that you feel what next no doubt something else will happen but hey thats life.Well fingers crossed that was my last call round to mums given her meds got her washed and nightie on.she seems ok within herself.Erc not so good took his temparature as he was soaking with sweat but freezing his temp is really low still wont let me call anyone I always respect his wishes you know how stuborn our OH are when they get to this stage in dx anyway I am sure he will be ok hes a strong one.

Julie hadn't forgotten about the wee bizzem word had to think how I could explain it but I call Carolann that sometimes so its not bad my Grandad never swore so rather than say you wee bu***r would call you a wee bizzem. Yes to the Billy Connley did use the phrase.

Carol

User
Posted 12 Jul 2014 at 23:33
Hi Bri

I thought someone would ask that question thats a long story try to make it brief this is just the norm for me now.I did get her carers in 3 times a day for personal care making sure she was washed and dressed meds given and personal night care but I still had to go round to visit her it didn't workout on both sides so its back on me she wo.t let them in the house now.I promised mum I wouldnt let anyone put her in a home so a promise is a promise and no I am not an only child there is five of us but they dont speak to her anylonger thats family for you.

Feel I have aged 10years since giving up work I have help from our daughter when she has a day off work so Im not alone.

Thank you for the concern I am turning into a right little winger

Carol

User
Posted 13 Jul 2014 at 08:30

You are not a whinger wee wifie. ~You appear to be an angel in disguisehttp://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-innocent.gif !  http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-innocent.gif

Far from it. I've been in a mildly similar situation where you try to juggle family life and caring for somebody else but that was without my man's cancer popping into the equation.
If you feel you are whinging, and feel it helps then - whinge away on here.
We are all listening and feeling for you.
Just a few minutes a day for yourself can help. It doesn't have to be much. Just a quiet place to empty your mind or listen to a bit of music.
Otherwise you'll be like an elastic band and just snap.
Take care. You are doing a grand job.
Sandra

Edited by member 13 Jul 2014 at 08:32  | Reason: Not specified

We can't control the winds - but we can adjust our sails
User
Posted 13 Jul 2014 at 08:54
Haha....thanks for clarifying that Sandra. I was trying to work out if Carol was saying she had become a Tory ( right winger) or joined a football team as a right winger.

Carol

As Sandra says you are not a whinger. Sometimes just writing down how things are can be very therapeutic. So sorry to hear of the difficulties with carers and family. But make sure you do think of yourself now and again

Bri

User
Posted 13 Jul 2014 at 10:28
Good morning Bri good job Sandra can spell if Julie read that she would think it was one of my Scottish words.

Carol

User
Posted 13 Jul 2014 at 10:31
Posting on here will be a great psychological help to you. You need all the help you can get so keep whinging away!!
Stay Calm And Carry On.
User
Posted 13 Jul 2014 at 11:01
Hi Carol what a tough time you are having... it must be a huge strain on you. Yoou most definitely are not a whinger and letting go on here often helps trust me!

I know you say Eric is tough one and stubborn but please get him to see a dr if his temperature is low or high and he is sweating profusely. I do not want to be a worry wort or to scare you unnecessarily but this can be an early sign of a bigger problem. You should have been given a special chemo log book in that there are a set of conditions to look out for graded green, amber and red. It should also give you a number to call if you are worried and want to discuss it.

I would not forgive myself if i diid not say this to you, if Eric has weakness in his legs or any back pain alongside the sweating then please make that call better to be reassured ...or of course you could tell me to bizzem off and stop fretting!!

Xxx

Mo

User
Posted 13 Jul 2014 at 12:28
Thank you Mo I always take your advice and please never hold back on anything as when I joined this forum Mick and Eric had much the same journey you helped with Eric starting Chemo .We have the book that is why I take his temp he was in the red colum its not the first time he has been there last time called the helpline on record booklet was told to call 999 he wouldn't allow me he was fine the next day.Eric does have spinal mets and I remember your warning of. spinal compression (is that what you were warning me about) Eric's attitude is that he is dying getting what treatment is avaliable at this stage.(hope I havenot offended anyone with Erics hey ho feelings but that has always been his nature)

Mo thankyou again how are you?

User
Posted 13 Jul 2014 at 15:19
Dear Carol,

What a remarkable woman you are! To be going through all this and still keeping your sense of humour..you really ARE an angel in disguise.

My wife and I fully understand the mountain you have to climb daily. We know the feeling, So much care to give and so little time for yourself.

By the way, I did leave a message in your inbox here a few weeks ago. If you find it, can you let me know?

Warmest wishes,

George and Lynn

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B2PCa
User
Posted 13 Jul 2014 at 16:52
Carol

Yes it is SCC i am. alluding to unfortunately the profuse sweating happened to mick a couplle of times before both of his SCCs. I know Eric is taking things as he does but early treatment can be the difference. Regrettablhy although it is talked about all the time it is rarely spotted even by so called specialists. It usually takes a lot to convince a GP or a and e junior doctor that they could be dealing with this.

If Eric feels ok and has no other symptoms it may bbe just HT or something. I hope so as there is little you can do if he wont get it checked out.

I am doing ok thanks pottering along all quiet afte Karen and Marks wedding last week.

Best wishes

Xx

Mo

User
Posted 18 Jul 2014 at 11:16

Hi Carol,

Thinking of you and Eric. X

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
 
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