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On Cialis 9 weeks after op

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User
Posted 19 Jun 2014 at 09:42

I have always taken my pills at breakfast rather than at bedtime and have never been woken by leg pain. During the day I do get some pain and lately have been taking paracetamol around lunchtime to alleviate it. I was thinking about stopping the Cialis as I am about to go to Austria on a bike and don't want to have the leg pain as a distraction. However, if the pain does get better or go away over time as has been referred to above I think I should carry on with it. 

User
Posted 19 Jun 2014 at 17:26
Like Countryboy, it was always John's view that the chance of an intimate life was worth the aches & pains. He has always taken the daily dose in the morning.

Edited by member 19 Jun 2014 at 17:29  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 20 Jun 2014 at 00:42
Felt the legs again around noon and took some more painkillers. Will try the half a tablet regime starting tomorrow morning. I can honestly say the discomfort in the legs was far worse than anything experienced following the op 10 weeks ago!

On a more positive note, only 2 pads during the day, although I have done a lot of sitting as we were driving home after a stop at the very interesting Elgar museum. (And no speeding motor bikes this time!)
Stay Calm And Carry On.
User
Posted 20 Jun 2014 at 09:06
My husband agrees with you SF2 about the back and leg pain. Far worse than any pain after the op, he hardly took any painkillers after he came home. This pain though has had him tossing and turning in bed just cannot get comfortable, until painkillers kick in. He is going to break his 20mg up and take them that way, until we can get back to GP. We are off for a weeks break tomorrow, just hope he has packed enough pads.
User
Posted 20 Jun 2014 at 14:48
Just a note of caution guys, there may be other reasons for leg pain, and some are more serious than others. Make sure you don't have deep vein thrombosis, sciatica, trapped nerve, pressure sores, pains from HT, kidney problems, overdoing the golf, poor gold technique, being active after weeks of recuperation, bone mets, constipation, lymphodoema .... just be cautious!
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 20 Jun 2014 at 14:59
Can't be the golf, Lyn. I haven't played for a week, and never had problems whilst playing. Maybe I need to play more! I took half a tablet earlier today, and I did not feel anything last night. My previous tablet was Tuesday night. I also didn't feel any discomfort when walking.

Being static seems to lead to problems, so I am hoping taking only half a tablet earlier in the day will significantly reduce the difficulties I have had.

Enjoy Leicester, Lyn. Hope you all have a very enjoyable time.

Paul

Stay Calm And Carry On.
User
Posted 21 Jun 2014 at 17:39

Oh! of course...it must have been me doing the splits when I was practicing my ballet....God! never thought of that.


 


Steve

User
Posted 30 Jun 2014 at 10:22

I had a week of no side effects taking half a 5 mg tablet in the morning, so have now had 4 full tablets again without the leg pain, so the simple advice is, although the instructions say take any time during the day, it is better to take them in the morning.

I'm off to see my GP in 9 days, so I am also hoping he has had his letter from Christie's telling him I need a pump. There has been no sign of life down under approaching 12 weeks post op, but I think that it is still early days.

Paul

Edited by member 30 Jun 2014 at 10:23  | Reason: Not specified

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User
Posted 09 Jul 2014 at 11:14
Just been to see my GP. Got 2 months cialis, but still no pump. GP was unsure as to procedure and was going to investigate further within the practice. Furthermore, although I was told a letter would be sent from the registrar at Christies, nothing has been received. Grrrrrrrrhhhhh!!!!
Stay Calm And Carry On.
User
Posted 09 Jul 2014 at 18:06

Hi Guys


Just to add to the conversation, I am just over a year and a half since surgery and I still take my Cialis 5mg daily. Like Lyn and a few others I take them in the morning when I get up. The difference between the dailies and the 20mg hit, is that dailies are all about blood flow and cellular health, with the added benefit in that it can help make you a bit more 'chubby' and may later on in recovery when the nerves pick up, aid an erection. It takes a week of taking the 5mg dailies to get the required dosage in you for max effect and then you are keeping it topped up. To test the difference between taking and not taking, you have to abstain from taking for a week for the drug to leave your body. I have done this on several occasions and used this evidence back with my GP to renew my repeat prescriptions as without the drug i dont get that flow that instigates semi's ( the start of spontaneous erections - morning wood etc ) which is the goal we are looking to achieve as we then know we are back to some form of normality/healing. There are people on here and I know people in other support forums I take part in who are still taking the dailies, 4, 5 years post op.


The 20mg dose is different , its about giving you an erection when you are stimulated. If that's all the GP has prescribed then I would recommend having a conversation with him as he doesn't understand the difference between the two treatments. You do need support from your urologist in this regard.


For those who don't suffer ED the way we do, healthy guys, they call the 20mg dose "The Weekender" as it lasts all weekend. It an equivalent treatment to taking a Viagra 100mg or a Levitra for effect purposes. Lots of people have issues with these kind of doses and the side effects of these are well publicized. However all I can say, is if you can persist with the 5mg or 2,5 mg daily dose then medical studies have proven the benefits for penile rehabilitation. If your GP is giving you the 4 a month 20mg and you are cutting them up thats great. You can always ask the GP for Generic Viagra ( Sildenafil ) onto of this. I am getting both. Even on a private prescription the generics cost about £1.50 for a 100mg tab at Asda or 80p online. Its not recommended to take a 100mg Viagra at the same time as a 20mg Cialis. ( I take my 100mg Viagra with my daily 5mg Cialis without a problem - but everyone is different ). 


I would say taking the Viagra and Cialis has improved the firmness of my erections - so worth having a chat with your GP/Uro to get both. On the pump, hassle them to issue the letter as this is a real must early days for exercise. ( Am not keen on the purple ring induced stiffy for sex puposes, I use mine as a gym aid ).


 


Good luck


 


Eddie

Living life to the full, there is always someone worse of than yourself. Smile and get on with it.
User
Posted 13 Aug 2014 at 23:23

Went to Christie's today for my 2nd follow up.


I was advised to:


stop taking the 5mg cialis


use the pump without the rings to try for about 3 erections every other day


take the Sildenafil once weekly.


This all seems different to advice from Lyn.


 


Comments appreciated.

Stay Calm And Carry On.
User
Posted 14 Aug 2014 at 00:45
Wow! What was the rationale? Is there anything in your medical history that contraindicates Cialis? Or is it just that they have realised you are taking both Cialis and Viagra? I did warn you right at the start that this is not usually allowed in the NHS and needs close monitoring by the specialist or ED clinic.

Given the choice, I think John would have stuck with the Cialis and given up the Viagra but perhaps you could experiment with each on their own and see what helps most.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 14 Aug 2014 at 11:05

Just had a go with the pump with no rings as advised. Can't get any response at all.


 


Tried again standing up.  Nothing like the massive length I had before, (you can believe that if you want!), but some extension. Try again on Saturday!

Edited by member 14 Aug 2014 at 12:36  | Reason: Not specified

Stay Calm And Carry On.
User
Posted 14 Aug 2014 at 12:55
SF2, I might be wrong but if you have a Rapport I don't think it will work properly without the rings because the end of the tube is different. Perhaps the person at the hospital wasn't aware of the difference between Rapport and the other brands??? With all of them, the trick is to pump without wobbling the tube and breaking the seal against your skin - John found sitting on the very edge of the bed with feet firmly planted on the floor gave the steadiest position.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 14 Aug 2014 at 13:08
Thanks, Lyn.

I have sent an email to the manufacturer, asking about the Rapport Premier's suitability.

Paul
Stay Calm And Carry On.
User
Posted 22 Aug 2014 at 13:29
Tried my first Sidenafil last night on our wedding anniversary. No reaction whatsoever. Have to keep trying with the pump that does bring on some enlargement but nothing like a full erection.
Stay Calm And Carry On.
User
Posted 22 Aug 2014 at 14:34

Hi 6F2

I intend to ask my GP if he can put me back on Cialis 5mg daily instead of the 8 x  20mg that was prescribed for me recently.....


 I think in my case at 10 weeks post op it's too early to expect the 20 mg Cialis to be fully effective... ( I have 50% nerves spared )


I'm using my vacuum pump ( ErecAid Esteem ) with good results, so am happy to continue with that until things hopefully start to liven up without aid  in due course....

User
Posted 22 Aug 2014 at 17:20

Not sure of this will help, hinder or reassure you SF2, and others, but I found the impact of the meds varied at different times and with different effects.  There are other factors that may help or hinder your recovery.

You have a pm.  


dave

Edited by member 22 Aug 2014 at 17:36  | Reason: Not specified

 
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