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numb painful hands

User
Posted 29 Jul 2014 at 13:57

Hi everyone, I hope you can help. My Step father was diagnosed with advanced Prostate cancer in March this year, he is 79 years old so was told he was too old for surgery. Apparently he has some lymph node involvement and 'hot spots' on his bones. He doesn't really like to ask questions but from what I can gather he has had a course of oral HT and is now on 3 monthly injections (not sure what drugs). He has his second injection and blood test next month. He is suffering from extremely numb, painful hands which is really affecting his quality of life. he can't drive any more or play golf so is just sitting around the house getting more and more depressed. The exhaustion is also really affecting him, he literally can't do anything without feeling completely wiped out. He has lost so much weight as he says he has a constant bad taste akin to 'dirty dish cloths' and he really doesn't fancy eating anything (totally unlike him!). Is this likely to continue? has anyone else had the numb hands and bad taste?

His GP has said that it is something he has to put up with but he no longer has any quality of life.

I would welcome your comments.

 

User
Posted 29 Jul 2014 at 19:42
My dad is 85 and it sounds as though he is having the same treatment. I have not heard him complaining of numbness, but he was originally told he would need a catheter for life. This fell ou whilst he was on holiday in Mykonos, and it could not be refitted. He was also told he would need an operation on his kidneys to improve the flow to his bladder. However the treatment seems to have shrunk his prostate, which explains the catheter problem, and as he is now emptying his bladder, is getting on well.

He does however put a brave face on things.

I can thoroughly sympathise with the golf. Tell him not to give up hope of returning to the course. If the treatment works for your dad as for mine, he could get back on the course yet!!

Stay Calm And Carry On.
User
Posted 29 Jul 2014 at 20:42

Unless you are very lucky it's unlikely a GP will be up on the various possible side effects of the treatments.

 

It is the consultant who needs to know about this. Peripheral Neuropathy is a possible side effect and needs to be asked about.

A check for diabetes might be worthwhile. ( Alcohol doesn't help this particular  problem http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-frown.gif ).

 

I would either contact specialist nurse if one has been allocated or contact consultant's secretary & leave explanatory message.

It's possible the regime might be altered so sitting & saying nothing won't achieve much http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-frown.gif.

User
Posted 30 Jul 2014 at 11:39

Thanks very much for you helpful comments. I have told him to speak to his consultant when he goes for his next injection. He is borderline diabetic which was controlled by diet and had his left leg removed a couple of years ago due to gangrene and circulation problems. He never normally lets anything beat him and was back on the golf course with his prosthetic limb within months so this has really got him down. Hopefully if his blood results show the treatment is working it will make him more positive.

User
Posted 30 Jul 2014 at 17:03
Hi,

It is highly unlikely that your step Dad will see a consultant when he goes for his next injection ( probably Zolodex or Prostap ) as it is normally given by a nurse practitioner at his local surgery. However when he does see his consultant next have someone go with him to ask questions and take notes. You may also be allowed to record the conversation if you ask beforehand. Can't help on the hand situation I'm afraid but the best of luck,

Life is for living

Barry ( alias Barrington )

User
Posted 30 Jul 2014 at 21:05
First of all, I shouldn't think that he was refused the operation because of his age; surgery was off the agenda because he already had bone mets. Once PCa has spread to bones, it would be cruel and fairly pointless putting him through what is pretty complex surgery with unpleasant side effects.

Re the tingling hands, there are a couple of things that occur to me. As Rob says, peripheral neuropathy linked to the diabetes needs to be ruled out but I would also wonder whether he has any mets in his upper spine or neck which could be pinching the nerves and causing these symptoms. Do you know exactly where his bone mets are? The other possibility is that the tingling and pain has nothing to do with his diagnosis or treatment .... my dad has been complaining of almost the same thing and has just been diagnosed with arthritis!

As far as him losing weight goes, when we imagine cancer patients (in the days before we are faced with an actual cancer diagnosis in our family maybe) I think we do imagine them to be painfully thin and losing weight rapidly. However, your dad is nowhere near that stage and in actual fact, it is more likely that the hormones would make his weight increase not decrease. Certainly, a thickening tummy is a common side effect. I wonder if you have answered your own question though; you mention that he is feeling low - depression can definitely affect someone's appetite.

I think that there are things going on here that might be related to his cancer but could just as easily be totally unrelated; his medical team are really the only people that can determine what is wrong or what might help. In your position, I would be on the phone sharpish to his specialist nurse (does he have one?) or the oncology department for advice. Did the doctors tell you that his diabetes was borderline or was that what your step-dad told you? I would also be hounding the diabetic nurse as the circulation problems must have been pretty serious if they led to amputation - are his fingers a healthy colour and temperature?

Edited by member 30 Jul 2014 at 21:15  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 31 Jul 2014 at 16:48

Thanks everyone I am really grateful for the advise. He was told by his consultant that they don't offer surgery to men over the age of 75 when he was originally diagnosed in March. This was prior to the bone scan etc.  He is on prostrap 3 which I have just found out does list tingling hands and altered taste as uncommon side effects. I will check the colour of his hands that's a good point regarding his circulation. he tells me he is having regular blood tests and the diabetic nurses are very happy with him though I have noticed the Prostrap can affect your blood sugar levels. he has gradually been loosing weight over the last year or so firstly on the advise of the diabetic nurse and now because he has no appetite. It could be depression like you say which is understandable. I am not sure where his bone metastasis are as he hasn't asked because he really doesn't want to know. I did wonder if that could also contribute to his tingling hands.  I will see if I can attend his next consultant appointment and get some answers. It is difficult as I feel he is still in denial as his diagnosis is still new and as he wasn't having symptoms is a big shock to him.

Thanks again for your help

 
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