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Awaiting Robotic Surgery!

User
Posted 09 Aug 2014 at 22:24

Originally Posted by: Online Community Member
Whoah, just shows how much variation there is from hospital to hospital. In our area you get one night bag to last as long as you have the catheter and pads are not provided on the NHS unless/until you have been incontinent for at least 3 months Needle bins have to be purchased and are ridiculously expensive Not all men need or get those post-op injections - depends on hospital policy and how healthy you are There are only a few regions where the district nurse comes out post-RP and we certainly never saw the GP :-0

Lyne/Chris,

Indeed, postcode lottery and Hospital Trusts variations in terms of care pathways and policies. UCHL post-discharge care and provisions appear to be pretty good and adequate (incl. bags, assorted oral analgesia, laxatives, sharps plastic bin, etc).

We would also be supplied with 28 days of self-injected medication to minimise potential risk of DVT (deep vein thrombosis). Apparently, anyone who has any type of cancer surgery should be given these. The lead clinical nurse specialist  seemed to doubt its usefulness and stopped short of not recommending it. She, obviously, cannot as it is an NHS directive. Personally (this is purely and simply my choice), I probably shall not bother (or just do the first 5 days or so) because of my low risk of DVT: I enjoy excellent cardio-vascular health and will continue to wear my surgical stocking. There are other simple measures (such as early regular frequent mobilisation no matter how brief) one can take to combat DVT which I appreciate can be fatally rare!

Chris, were your port wounds sealed with surgical glue and dissolvable stitches with plastic dressing on so that you can shower?

Am, of course, hoping not to have an infection or serious catheter blockage! 😟

 

Regards,

J

User
Posted 09 Aug 2014 at 23:21

Jacey,

 

Like you I'm reasonably fit. I was encouraged to wear my surgical stockings for a month after being released from hospital and to use the self injections too and did so, more to please my wife if I'm being honest, but nevertheless the surgeon who performed my operation was quite clear that he thought both were necessary. Also, when I mentioned to him that I was about to embark on a long motorcycle ride to Austria a few weeks later he also asked me to wear the surgical stockings whilst on the bike.

 

So probably worth doing. As an old friend used to say 'you won't lose by it'.

 

Steve

 

Edit

My port wounds were sealed with some kind of surgical glue but no other dressing and I was told that I could shower with no ill effects to them. The only issue I had was with the drain tube hole in my left side that took a little longer to heal over than the surgical ports and I know of another who's drain tube hole was problematic too. Just something to be aware of although I'm sure yours will be fine.

Edited by member 09 Aug 2014 at 23:27  | Reason: Not specified

User
Posted 10 Aug 2014 at 00:45
Jacey, it isn't an NHS directive for everyone having cancer surgery. John didn't get the injections because he didn't need them, not all hospitals issue them routinely. Our hospital only prescribes anti-coagulant meds to patients deemed to be at real risk of DVT. Nor was John given stockings to wear at home - maybe the difference was because he was quite a bit younger, maybe there is less risk of DVT after open surgery or it might simply have been because his bloods were good.

Edited by member 10 Aug 2014 at 00:47  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 10 Aug 2014 at 12:38

Thanks again, Steve, for your input.

I'll raise the issue of anticoagulant therapy with my surgeon prior to the surgery. It might be a case of overtreatment/overkill in my case!

I have not yet ruled out those darn injections!!

I shall certainly pay particular attention to any wound dressing. Thanks!

 

Regards,

J

User
Posted 10 Aug 2014 at 12:49

Hi Jacey,

            I am 64 and had D/Robotic surgery Nov2010 after bi/op results 4/3 gle scale 7 cancer which had extended outside the Prostate. The op went well op on monday and out on wednesday PM. I felt ok had no problems with cath you will need a night bag for cath dont forget to turn the tap open on night bag, You must remember this major surgery you will only see small dressings on your tummy and may be thinking you can carry on as normal. Take things easy by the way I was told the Cancer had spread to lymph nodes left/right was removed. I had cath removed 10 days after op used pads for about a week fully dry after 6/7 weeks. Can pee like a horse Ha Ha, ED nurse was very good tried pump worked for a while. Tried viagra tabs no good, I have been using Caverject injections which work for us for the past 3 1/2 years. You must remember to talk to each other and live life, they will want you to go on HT for a while. Hope all goes well.

rodders

User
Posted 10 Aug 2014 at 12:52

Lyne,

I was quoting what we were told regarding anticoagulant therapy for all patients following cancer surgery. It's, obviously, standard practice at UCLH based on their own research evidence.

Nonetheless, I am still intrigued by it. DVT has always been a potential complication of hospitalisation with or without surgery. Why the big fuss now?

Anyway, this debate has little relevance to subject matter of this forum IMO! 

Regards,

J

User
Posted 10 Aug 2014 at 13:05
Hi again Jacey

I was prescribed 28 days of Clexane injections after discharge from Bristol Southmead Hospital....

Didn't find a problem self injecting .....not nearly as bad as it sounds....

As far as I'm aware this is standard policy at Bristol for RP procedures ... it may differ at other hospitals?

I had soluble sutures and no drain was needed....

No visit at home from a nurse was arranged or needed ......TWOC and follow up review with histology report was arranged at my local district hospital which saved me a 140 mile return journey..

Best Wishes

Luther

User
Posted 10 Aug 2014 at 13:56
Originally Posted by: Online Community Member
Lyne,

I was quoting what we were told regarding anticoagulant therapy for all patients following cancer surgery. It's, obviously, standard practice at UCLH based on their own research evidence.

Nonetheless, I am still intrigued by it. DVT has always been a potential complication of hospitalisation with or without surgery. Why the big fuss now?

Anyway, this debate has little relevance to subject matter of this forum IMO!

Regards,

J

It may not seem particularly important to you but this is an open forum and we all have a responsibility to ensure the information we post is as correct as possible and doesn't create undue panic. You stated that all men get these things and that the injections are mandatory, neither of which are right. Any new members who don't know better could read this and have unnecessary worry & stress about the fact that they didn't have the injections or haven't had a visit from the nurse. What is true for you may not always apply to every case or every hospital or every CCG and trying to second guess what others will do with the information you post is a skill in itself. You are very new here so it may be hard to imagine but there have been times when members have demanded certain treatment routes or services simply because someone on here posted that it 'always happens' and then been terribly upset and frightened when their own medical team have refused or pooh-pooed the idea.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 10 Aug 2014 at 13:57
JC

Port exactly same as Steve, my drain slight issue looked a bit red but was okay. Good shout from Rodders about tap, but also remember too close the tap when connecting and disconnecting the night bag. Lots of variations out there but my night time bags had a strange drain on them and were one time use, it had to be twisted or snapped off, that is where the gloves came in useful. Showering not an issue, when I came out of the shower I swapped to another set of Velcro straps and let the wet ones dry. Injections as said by others not an issue just vary where they are done in line with your teams instructions. Nurse OH did mine each night and also did my bag connections etc.

Thanks Chris

User
Posted 10 Aug 2014 at 14:09

Hi Rodders,

Thank you for your input and good wishes.

Although I am well prepared and informed about my pending op, I very much value members sharing their  own personal experiences. I feel a lot can be learnt despite our own individual circumstances. There is always the possibility of something unexpected going wrong!

I read with interest your experience about tackling ED. Very useful to know! 👍

Regards,

J

User
Posted 10 Aug 2014 at 14:16

Thank you, Luther, for sharing your positive experience concerning AC injections.

Hoping there will be no issue with my wounds and catheter care!

Regards,

J

User
Posted 10 Aug 2014 at 15:02

Originally Posted by: Online Community Member
Originally Posted by: Online Community Member
Lyne,
I was quoting what we were told regarding anticoagulant therapy for all patients following cancer surgery. It's, obviously, standard practice at UCLH based on their own research evidence.
Nonetheless, I am still intrigued by it. DVT has always been a potential complication of hospitalisation with or without surgery. Why the big fuss now?
Anyway, this debate has little relevance to subject matter of this forum IMO!
Regards,
J


It may not seem particularly important to you but this is an open forum and we all have a responsibility to ensure the information we post is as correct as possible and doesn't create undue panic. You stated that all men get these things and that the injections are mandatory, neither of which are right. Any new members who don't know better could read this and have unnecessary worry & stress about the fact that they didn't have the injections or haven't had a visit from the nurse. What is true for you may not always apply to every case or every hospital or every CCG and trying to second guess what others will do with the information you post is a skill in itself. You are very new here so it may be hard to imagine but there have been times when members have demanded certain treatment routes or services simply because someone on here posted that it 'always happens' and then been terribly upset and frightened when their own medical team have refused or pooh-pooed the idea.

Lyn,

My apology to anyone if I have caused any confusion, panic or otherwise. It is certainly not my intention to misinform or mislead members on such a serious matter!

I have read the forum T & C and do not believe I breached any of them.

You are right that we all have a responsibility to others as well as to ourselves may I add.

I take that responsibility very seriously indeed and expect others to do the same.

I acknowledged and recognised, as shown by my previous posts, that our circumstances are unique to ourselves and, therefore, may not be applicable to others.

As you pointed out this is an open forum. Unfortunately, as such, posters comments can be interpreted to suit whoever reads them. I cannot take responsibility for that as we are all adults.

If my comments are deemed to be inappropriate, malicious or rude, I would expect the forum moderators to censor me or take whatever action they feel they need to take.

Regards,

J

User
Posted 11 Aug 2014 at 20:18

Hi Jacey,

            You are not alone about being worried that things going wrong and all these comments on DVT. Well as you stated you are 64 and fit, I was 61 when I had my op in good health apart from PC. I had stocking fitted before the OP and had to wear them for 2 days at home with no problems. Regarding the OP you will have a pre OP which is 2 or 3 days before the day, you may be given anti sickness tablets to take before the OP. Hope this helps regards

rodders

User
Posted 11 Aug 2014 at 22:07

Hi Rodders,

Thank you for your continued support and advice.

Yes, I'll be fitted, pre-operatively, with anti blood clotting stockings and given an injection to stop me getting blood clots during the op.

There was no mention, so far, of any other pre-op taking place a few days before. I expect there would be procedural variations, be it clinical or organisational, between hospitals as long as patients gain the best and safest of outcomes!

One thing I do dread above anything else, post-operatively, is the possibility of nausea and vomiting (quite common following GA, general anaesthesia) which I hate! So, anti emetics would be very handy! I wonder whether I can choose to have an epidural instead.... I wouldn't mind staying awake and chatting to the Robot!! 😜

Regards,

Jacey

User
Posted 12 Aug 2014 at 00:05
I suspect your wit and repartee would be challenged by having your head tipped down and your feet up in the air!
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 12 Aug 2014 at 10:27

Originally Posted by: Online Community Member

Hi Rodders,

.... I wouldn't mind staying awake and chatting to the Robot!! 😜

Regards,

Jacey

From what I can remember the robot at Bristol wasn't very talkative......http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif

User
Posted 12 Aug 2014 at 12:53

Originally Posted by: Online Community Member
I suspect your wit and repartee would be challenged by having your head tipped down and your feet up in the air!

 

Lyne,

That's, precisely, the position I hope to be in when am strapped to the operating table in a few weeks time! 😀

Regards,

Jacey

User
Posted 12 Aug 2014 at 13:05

Originally Posted by: Online Community Member

 

From what I can remember the robot at Bristol wasn't very talkative......http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif

 

Expect it'll do more chopping than talking!! 😎

 

User
Posted 12 Aug 2014 at 17:16
JC

Again all down to individuals but the only nausea I had was from tramadol pain killers. If you stop awake for the op you could perhaps assist.

Thanks Chris

User
Posted 12 Aug 2014 at 17:28

 

No, I was very happy to be in the land of nod when it was all happening thank you very much. Anyway, it was so nice to meet the lovely anaesthetist lady at Addenbrookes, she was a gem.

 
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