Help....

Hi all, I joined the forum in December when hubby was diagnosed and this is my first post. When we saw the Oncologist in January she gave him a prescription for Casodex 150mg which were to be taken for 4 weeks, he was also told he would have his 1st hormone injection 2 weeks later and then every 4 weeks for3 months (to be confirmed with the GP) and then he would have 37 days of Radiotherapy. The oncologist said she would advise the GP further with regards to his treatment plan. Our GP only gave him 3 injections in total, the last one being in March 2014. His Radiotherapy then started on 19th May until 11th July 2014. May I also add that at the same time my husband was undergoing tests as he was having memory problems due to othe health conditions and I went with him to every appointment and wrote everything down just to ensure no one forgot anything.

On his 34th day of Radiotherapy we were given his treatment summary which said he was still on HT and this should be continued until his first follow up appointment. When I queried this and told them his last injection was in March they contacted the Oncologist who was happy to see us that day. She said that she had sent a letter to the GP confirming what treatment she wanted him to have, I asked her for a copy of this which she got her secretary to email me. I asked if it would have any impact on his treatment and she said he "should" still be covered. Not very reassuring for us.

I then contacted our Practice Manager and asked why this had not been done and was told it was up to me to make sure he attended for any appointments. After trying to tell her I did attend all appointments with him and that we were told by the GP in March that was his last injection she began to get irritated by me and dismissed it as not her fault.

Angry at her reaction I contacted the GMC and got a reply last week saying they would NOT be investigating our case as there had obviously been some miscommunication between the Consultant, GP & my husband!! We even  told the Oncologist about my husbands memory problems and that was why I was the one asking all the questions. She even mentioned in her letter to the GP about this so can anyone tell me how this can be passed off as miscommunication. I am at my wits end and the stress has made my weight drop to 6stone. What I really want/need to know is has he had enough Hormone Treatment for the Radiotherapy to have been effective?

He has his 1st follow up appointment on 2nd Sept but I am going out of my mind with worry. Sorry for such a long post but I don't know where else to turn.

Isobel