My story is very positive compared to many. I've had surgery, RT and am a year into HT. I'm due to get the results of my PSA test tomorrow and it should be below 0.05.
The HT has been really hard work. I've had ridiculous, comedic hot flushes, weepiness, fatigue and very unpleasant bone pain. I so want to pack it in. My specialist is OK with the idea as was the oncologist. They advised 6 to 24 months. The gains of staying on are debatable, but I'm really anxious about stopping treatment. Anxious about just waiting. I know my prognosis is good but...
This anxiety might stem from the fact that my first PSA test in 2011 was about 24 following a haematura. I wasn't told and was discharged by a consultant urologist without a retest, scan or biopsy. I was retested 2 years later as part of another issue . It had gone up to 36. Two years wasted and some heavy duty treatment I might not have needed.
I can't be alone in this feeling of wanting to move on, wanting to stop thinking about this stupid, nasty disease but actually being reassured by being made to feel rubbish by zoladex!
I keep thinking another month. As I said I know I'm lucky compared to some but I've had enough. Any comments on what I can expect to happen when I go freelance would be appreciated.
Is it hot in here or is it just me...