Post RRP - Discomfort in Perineum / Prostate site - - Page 4Side effects

User

Posted 28 Sep 2022 at 18:21

Nick , due to having some problems with a stricture I have done numerous TWOCs and never failed. I make sure I am well hydrated before I get to the hospital, listen to the nurses and you should be fine.

My stricture was possibly caused by the catheter getting tugged out after getting stuck, it should just slide out, without any resistance or pain. If it gets stuck I would ask for a urologist to attend.

After three samples of around 200mls I was scanned to make sure I was voiding the bladder. Make sure you have some pads , the hospital will usually give you a few. I always took a waterproof cover for the car seat and a towel just in case of leaks, I never needed them.

Hope all goes well.

Thanks Chris

User

Posted 28 Sep 2022 at 18:44

Thanks Chris. All good advice, as usual. I’ll post an update tomorrow

cheers

Nick

User

Posted 29 Sep 2022 at 17:01

TWOC this morning, took about 2 hours from arriving to leaving. All good. Been in pads all today, pretty much leaking most of the time. Just made the mistake of sitting down too long without changing pad and urine soaked through my trousers.

Does everyone else do their pelvic floor exercises and just do a little wee every time they contract the muscles? To me it makes sense that I do these whilst standing at the loo, rather than just peeing into the pads.

What does everyone else do?

Thanks

Nick

User

Posted 29 Sep 2022 at 18:11

Hi Nick

So I am doing the pelvic floor in different positions. Standing, sitting and laying on the floor. I am using the squeezy app to guide me. I found when doing the quick exercise I do sometimes leek a little when I relax. So this is day 3 for me since catheter removal. I think I may have seen a little improvement today. But I can be see it's going to take time. Fortunately I am dry at night and using 2 medium pads per day. I have found that if I am starting to leek a lot it's because I need to pee, I don't have that feeling that I had pre op that my bladder is full and I need to go. I also notice my flow is not as good as it was pre-op but I think there has been a bit of improvement today.

It is frustrating but I am sure things will get better for you.

User

Posted 29 Sep 2022 at 18:11

The removal of the catheter this morning significantly reduced the perineal discomfort. Not gone entirely, but a lot better than it was.

User

Posted 29 Sep 2022 at 19:22

Thsnks to everyone for sharing their experiences regarding perineum pain and discomfort after radical prostatectomy surgery.

I am 4 weeks out from my robotic surgery and was concerned that the pain in the perineum area was not improving. I find the only relief I can get is to lay flat on my back for a few minutes to let the pain pass. But it returns when I stand, sit, or walk. My doctor said this was normal, but didn't say how long it would last.

I am not taking any pain medication, but based on your postings I may consider this!!

Thank you all, and I'll update my progress. I am scheduled for a follow up visit with the surgeon in three months.

User

Posted 29 Sep 2022 at 20:33

Hi Jim,

So good to have someone just ahead of me, blazing a trail!

2 pads a day sounds good, I’ve used about 6 already but I might be changing them too soon. I was hoping I’d be one of the few who bucked the trend and was dry from day one. As if!

I think maybe more trips to the loo to empty the bladder before I fill the pad.

Cheers

Nick

User

Posted 29 Sep 2022 at 20:37

Jack, I think most people would say take painkillers if they help you to live a more normal life.

also I am learning that patience is important.

cheers

Nick

User

Posted 05 Oct 2022 at 14:02

I just had my removal operation on Saturday 1st Oct, very informative thread giving me an indication of what I face over the next few weeks/months.

My issue at the moment is leakage, i still have a catheter fitted but feel like i have a lot of urine leaking from my penis. I have tried repositioning the tube and bag. I it normal to have a lot of leakage?

User

Posted 05 Oct 2022 at 16:31

David, passing lots of urine down the outside of the catheter, known as bypassing, can be a sign of a blocked catheter. Are you still passing plenty of urine into the bag and does the bypassing reduce when laying down or at night.

You could get the catheter flushed out, but you were probably told do not let district nurses etc change your catheter.

It can just be the catheter is a position where it is easier for the urine to come out of the penis instead of through the catheter. Best not to mess around with the catheter, you could call the ward that discharged you for advice

Thanks Chris

User

Posted 05 Oct 2022 at 17:01

Originally Posted by: Online Community Member

You could get the catheter flushed out, but you were probably told do not let district nurses etc change your catheter.

Thanks Chris

The bypassing/bag filling seems better when lying down or sitting back with feet raised. I just expected the catheter to take all or most of the urine from my bladder. I will phone the hospital in the morning to check if no improvement.

Thanks

User

Posted 05 Oct 2022 at 18:44

David, there are variations in catheters but generally the catheter after surgery has the drain hole above the balloon in a urethral situation. So if the balloon is sitting slightly high in the bladder more urine will accumulate at the outlet of the bladder. Laying down or laying back means the urine can get to the drain holes easier and not so much urine will accumulate.

The hospital may give you some advice. I have a permanent suprapubic catheter and an infection can cause me to leak more out of the penis than into the bag. I had several procedures after RARP and sometimes had to wear a pad in addition to having a urethral catheter.

Thanks Chris

User

Posted 05 Oct 2022 at 18:53

I have been wearing a pad since discharge, initially the pad was just a little wet, but today it has been soaked, that's why I thought that there might be a problem.

User

Posted 05 Oct 2022 at 19:57

David, I think it would be fair to say it is not what usually happens, I don't like using "normal" . Is there a problem, not necessarily but good that you are going to ring the hospital for advice. I am assuming the catheter is not trapped, kinked or bent and that you have the bag below the level of your bladder. Sometimes a bag change can help the flow,I don't know why, but many people on a Facebook catheter site say it solves the issue.

Thanks Chris

User

Posted 05 Oct 2022 at 21:03

I have a spare bag so will try changing it. Had a couple of times where the tube bent,but have been extra careful to route it to make sure that it doesn't get blocked and have it strapped to my thigh.

User

Posted 25 Oct 2022 at 09:14

Hi Guys,

Interesting thread re pain in the Perineum area.

I had my RARP nearly 4 years ago and recently finished a course of RT. I've found since RT started I have real discomfort when out cycling and find I have to get out the saddle to relieve the aching. I've changed the racing saddle to a gel type which didn't help so I've now fitted the gel saddle off my hybrid to my road bike and bought new padded cycling shorts which all help to some degree.

Anyone else experienced this and any other tips to ease the discomfort

Cheers

Rob

Edited by member 25 Oct 2022 at 09:22 | Reason: Not specified

User

Posted 25 Oct 2022 at 19:10

Rob

You can get a prostate friendly sandle. They have a cut out in the middle so that you are supported on your sit bones.

Amazon among others have a selection

Cheers

Bill

User

Posted 26 Oct 2022 at 15:00

Thanks Bill for your tip - my current saddle does have a cut out in it which is supposed to aid ventilation to the nether regions. My gel racing saddle didn't have this feature though which is probably why it was uncomfortable.

Rob

User

Posted 12 Nov 2022 at 16:22

I am 2 1/2 years post RARP and am still getting pain from my perenium area when sitting for some time, eg. watching TV. It is more an annoyance than a severe pain, but I would like to know if anyone else had had a similar problem and what they have done to relieve it. I stopped doing pelvic floor exercises about a year ago as my continence was under control.

User

Posted 12 Nov 2022 at 19:59

Dennis, have you had any noticeable change to your urine flow, smelly urine or visible bits in the urine. I had issues with kidney stones and surgical clip migration. Have you had your urine tested.

Thanks Chris

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