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Latest PSA ???

User
Posted 07 Oct 2014 at 12:12
Hi

I have just checked the results online of my PSA test taken yesterday and they have quadrupled from 0.05 to 0.2 in three months, giving a doubling time of 1.5 months. I came off Casodex 150 mg 3 months ago after being on it for 6 months, so I don't know how to interpret these results. it is 6 months since I finished RT, so I suppose my question is how long does the Casodex stay in the Body (half life) and is it still having an effect on the PSA level, or is the level of 0.2 the actual reading, with no suppression from the Casodex, and if it is 0.2 without Casodex should I still be concerned after 6 months since the end of RT?

I will see my Oncologist on Thursday, so need to be clear of my options as regards either resuming HT, or waiting 3 more months to see if there is a trend either way. Any advice would be appreciated so I am clear in the decisions. do I hold my nerve and follow my instincts and stay off Casodex for three more months to see what effect it has, or do I resume treatment now???.

thanks

roy

Edited by member 07 Oct 2014 at 14:25  | Reason: Not specified

User
Posted 07 Oct 2014 at 18:52

Roy, I don't think you can calculate a true doubling time when the treatment has changed at the same time. You would really need to see what the next test and even the one after that come back as. In addition, the RT continues to damage the cancer for up to 18 months and John had his lowest reading 12 months after the RT had finished. Even so, 0.2 seems high when you haven't got a prostate so it may be that your particular band of cells is very persistent. You did stop taking the casodex very soon after your RT but I can't remember whether that was your decision or your specialist's?

I wouldn't go to the appointment with a strategy in mind; I would want to hear what the onco thinks first and make decisions from there.

Edited by member 07 Oct 2014 at 18:57  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 07 Oct 2014 at 13:54

Hi Roy
Sorry to read your latest PSA after all you have gone through. I would go for PSA test in 1 month and then decide.

Best of luck

Ray

User
Posted 07 Oct 2014 at 19:23

Takes five weeks for Casodex to completely leave the system.

User
Posted 07 Oct 2014 at 19:54

My oncologist said RT works for up to two years to have full effect Roy.
I do agree with Lyn that I would wait to see what the consultant says. .....

Bri

User
Posted 10 Oct 2014 at 10:33
Thanks Allison

Can't believe it will be 2 years tomorrow I was given the news that I was destined to die of it and not with it. I am determined to prove them wrong.

Roy

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User
Posted 07 Oct 2014 at 13:54

Hi Roy
Sorry to read your latest PSA after all you have gone through. I would go for PSA test in 1 month and then decide.

Best of luck

Ray

User
Posted 07 Oct 2014 at 18:52

Roy, I don't think you can calculate a true doubling time when the treatment has changed at the same time. You would really need to see what the next test and even the one after that come back as. In addition, the RT continues to damage the cancer for up to 18 months and John had his lowest reading 12 months after the RT had finished. Even so, 0.2 seems high when you haven't got a prostate so it may be that your particular band of cells is very persistent. You did stop taking the casodex very soon after your RT but I can't remember whether that was your decision or your specialist's?

I wouldn't go to the appointment with a strategy in mind; I would want to hear what the onco thinks first and make decisions from there.

Edited by member 07 Oct 2014 at 18:57  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 07 Oct 2014 at 19:23

Takes five weeks for Casodex to completely leave the system.

User
Posted 07 Oct 2014 at 19:54

My oncologist said RT works for up to two years to have full effect Roy.
I do agree with Lyn that I would wait to see what the consultant says. .....

Bri

User
Posted 07 Oct 2014 at 21:59
Hi

Thanks for all the comments, it's nice to know people are there for you when you need them. Thanks Rob it's good to know the hormones are no longer in the mix. Thanks Lyn for the advice, my Onco and i agreed to stop the Casodex as the man boobs were showing and Rock hard and painful but I would go back on it if needed, I agree the figure of 0.2 is a concern for me but seeing I started of at a very high score it's not unexpected and also you are correct that I should not calculate doubling times at this stage due to coming off the hormones. I feel as if I am navigating uncharted waters.

I am as always looking at all my options prior to the consultation so I am as clued up as I can be and don't agree to something I later regret so your comments as always help me more than you know

Thank you

Roy

Edited by member 08 Oct 2014 at 10:03  | Reason: Not specified

User
Posted 09 Oct 2014 at 20:53
Hi

Had my consultation with the Onco today and decided to wait for the test in 3 months time before we react, so will stay off hormones until we see what the trend is. So it's keep my nerve and enjoy Xmas, and hope for a good New Year.

Roy

Edited by member 09 Oct 2014 at 21:48  | Reason: Not specified

User
Posted 10 Oct 2014 at 09:13
Good to hear Roy, enjoy a relaxed and wonderful few months until the next set of results. Can't believe that Christmas will be over and done with by the next one.

Kind regards

Allison

User
Posted 10 Oct 2014 at 10:33
Thanks Allison

Can't believe it will be 2 years tomorrow I was given the news that I was destined to die of it and not with it. I am determined to prove them wrong.

Roy

 
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