Introduction and offload

Hi Mrs Morph,

Welcome to the sight although like all of us you would rather not be here. There are many on here that are of a similar age to yourselves. PCA is labelled an older persons disease but the incidences of much younger men being diagnosed is all to often heard on here. I think the youngest that I have read at the moment is 47.

My OH was 64 at diagnosis but in all reality he had probably had PCA for many years prior . Everyone on here remembers those early and very scary days just after diagnosis and waiting for all the results. The fear , anger, and despair we have all been there, things do get easier and you will find a wealth of information and friendships on here . It sometimes helps just to be able to write your feelings down.

Have you applied for the PCUK Tool kit, you can download it or it can be posted to you. It is very helpful in explaining things.

BFN

Julie X

Dear Mrsmoph,

No bore at all. Not at all. I read your account with growing dismay. For me that dismay was sympathy for your account read to close to my own history that it might have been mine had my PSA been just a few months later. As it is, it is a T3 with the treatment being very similar. Wow! was out world turned upside down. It has been a shock in addition to the shock for my own position to see how my wife's world has bee turn upside down. She copes by labouring in the kitchen to make me the healthiest PCa sufferer ever. I need friends on the forum to put me back together when I come to pieces. So offload away. I find it marvelously therapeutic and I am delighted to do what I can that you might be comforted. I find it so helpful that people understand and that they care. You have that extra responsibility to be there, supporting your husband while confronting your own fears and anxieties. PCa is so full of anxiety points. Each challenge us yet again. Each can have us set up a new point from which the rest of our life begins. You know already what you are facing. You know the many therapies there are to knock back and hold up the disease. Each has its challenges of balancing good against bad. I hope that one of us who respond say that little something that gives birth to some useful or helpful thought that is new to you or needed brought back to mind.

Whatever else PCa does, it creates in us a common bond, and love from the sympathy that bond excites.

I do hope your sounding off has revitalised your courage and your store of fortitude.

Hi Mrs Morph

There are a few of us wives on here now who have young children, which puts an additional perspective on the disease.

Things like, who to tell (incase it accidentally gets back to the children), and making excuses to cover the regular appointments, Daddy's tiredness etc all put additional strains at what is already a very traumatic and frightening time.

In some ways though - the joy of the children keeps us going and gives us the fighting spirit that you will see so much of on the site.

Take a look at different peoples profiles, my OH is similar to yours in that he is a T3b with some lymph node involvement and was referred for RT.

Look after yourself.

Alison

Edited by member 06 Nov 2014 at 11:35  | Reason: Not specified

Welcome aboard Mrs M but sorry you had to join us.

I just want to mention that for the younger guys in particular ( I was 51 at diagnosis ) it is worth asking for a testosterone level blood test ( via GP if easier ). Some of us found that the injection did not bring the figure as low as it might be ( ( below 0.69 nmol/l ) and this thus failed to suppress the P.Ca. cells as much as they could be.

Appreciate you are embarking on the R/T which will help but it's worth keeping an eye on the testosterone level & discussing with your medics if above the level mentioned.

Edited by member 06 Nov 2014 at 18:53  | Reason: Not specified