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Chemo on the cards

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User

Posted 05 Jan 2015 at 15:49

You need specialists to help John. I can't believe this isn't provided as a matter of course. I hope you are chasing your local ambulance service. I would also pester your GP if help isn't forthcoming.

Good luck in obtaining the help you so clearly need.

Paul

Stay Calm And Carry On.

User

Posted 05 Jan 2015 at 16:14

Absolutely agree with the last few posts. John shouldn't have to struggle to get to the appointment. The hospital will in all liklihood have taxis.

Really hope he gets the treatment he needs soon.

Thinking of both of you

Bri x

User

Posted 05 Jan 2015 at 22:01

Thanks Guys

Latest update is that John seems a little better and is moving about more. Still struggling to get in and out of bed and chairs and still has pain. The hospice nurse got the GP to send some higher dose tramadol so we are going to try that. Bad night last night made worse by my accidentally thumping John right on the met. I'm sleeping in the spare room tonight plus I won't get worken every hour when John visits the loo (how mean of me!).

Our own hospice nurse is back from holidays tomorrow so I'm hoping she will visit, the stand in today thought John should be seen sooner than two weeks due to the danger of the sciatic nerve being compressed, it's definiely causing the tingling and leg weakness.

Will update once more is known but he remains in good spirits.

Love to all

Allison

User

Posted 06 Jan 2015 at 01:22

Relief and worry all mixed up in one - I hope that appointment comes soon x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 06 Jan 2015 at 11:11

Allison. if you have no joy with the hospice nurse today and getting a more urget referal then I would follow Julie's hint, call 111 tell them you suspect a SCC (not that it is but the symptoms could lead you to suspect that) I know John hates the fuss but sometimes extreme action might just get you some respite.

Sleeping in the spare room is not mean at all it is very sensible you need to be strong right now and lack of sleep is not going to help you or John. Just make sure he has a means of waking you if he does have a big problem an old fashioned bell worked for Mick and I.

Thinking of you lovely friend

User

Posted 20 Jan 2015 at 12:41

Hi Guys

Well we finally got to see the oncologist yesterday and he had ordered five sessions of RT to the tumour in the right illiac bone. PSA remains low at 6 and he says that since it is stable he wants to keep John on Stillbestrill and not start chemo yet. He said that he feels this is a local issue in the hip and the low PSA means that it's not on the move. I am pinching myself at how lucky we are.

I think we are satisfied with that to be honest, we are away on a short break in the Forest of Dean this week, so no long walks but lots of rest and recuperation instead while we wait for our appointment in Oxford.

Much love to you lot

Allison xxxx

User

Posted 20 Jan 2015 at 13:15

Hi Allison,

What good, very positive news!

Enjoy your break, relax and SMILE!

Best you both both,

George

B2PCa

User

Posted 20 Jan 2015 at 13:48

Great Allison. That is an enviable PSA score so hopefully the rogue met problem will be zapped and the HT can continue to work. I am now hoping I can drop down to such levels! Enjoy your break.

User

Posted 20 Jan 2015 at 14:13

That's brilliant news, so pleased for you both. Have a lovely break.

Love, Fiona.

User

Posted 20 Jan 2015 at 15:18

great news Allison, I am sure the RT will alleviate the hip pain.

love to John

Mandy Mo

User

Posted 20 Jan 2015 at 17:31

More good news - I am pleased that you are able to defer the chemo yet again and hopefully the RT will just give John his bounce back. Have a lovely trip x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 20 Jan 2015 at 17:54

Great news for you both.

Good news all round today

Bri

User

Posted 20 Jan 2015 at 20:31

Good news Allison, did they say when to expect the RT? Have a great trip relax and enjoy yourselves.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 20 Jan 2015 at 22:22

Already enjoying our holiday,. I can't quite get my head round this but we did a three mile walk today, in the snow, with the baby in her posh all terrain buggy and two dogs, one of which I had to carry for a while as he had a massive fit during the walk (he's a Jack Russell and he has lots of fits!) - last week John could barely get out of his chair. Either the Tramadol is some kind of miracle juice or some other miracle has happened here. His hip still hurts but not the agony of NYE and the following days.

I'm not sure when the RT will be Julie, but it will be five straight days up in Oxford as Swindon does not have an RT unit (it will in about two years time).

Anyway, from the Forest of Dean, thank you all, the wine has been opened (sadly John cannot join me because of the drugs) but cheers all. I'd best make a start or I'll be taking this bottle home with us!

Lots of love

Allison xxx

Edited by member 20 Jan 2015 at 22:23 | Reason: Not specified

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