Hilary
At Christie's 2 weeks ago, I was advised to have Sidenafil in conjunction with a pump. I have now been given 100 mg dosage as opposed to the 50 mg I had before. I have not been able to get the pump on its own to get an erection like before the op. I would guess its only around 70%.
I hope to try them together for the first time tonight!
I have never been referred to an ED clinic, and if nothing has changed when I next go at the end of February, I guess they will want me to try the injections which at the moment makes me squirm, but I have a golfing friend who uses these without a problem.
I think referral to an ED clinic should be automatic after 3 months if needed. It's not a massive issue for me, but can understand how important it is to others. I will be asking for an ED clinic referral if there is no change, but I guess Christie's will tell me that will have to be done through my GP.
Hope the PSA result is good.
Paul
Stay Calm And Carry On. |
User
Hi there.
psa was 0.03 which is good . However we have another issue now.Incontinence.Sean still has 2 pads a day (and that is only since sunday, so some progress, but consultant is concerned. Says 94% of his patients at 6 months are dry.He is suggesting an op.He called it a strap??
Apparently minor op, day case.No idea what it is.
He didnt ask about ed clinic.
Will see consultant in feb for a decision.
I have now officially thrown in the towel.
We look like going to the Dominican Republic with a case full of pads and nothing else.
User
Hi Hilary,
I had my op on June 12th 2014 ( see my profile for details )
Once discharged from hospital I've had very little or no support.......partly my fault as I don't like to pester people...
I still suffer with incontinence ...although it 's very slowly improving these last few weeks, but still a long way to go.... rang GP for financial help with pads....not interested
I think the 'strap you are referring to is possibly known as a Bulbar Sling?...
ED is also still a problem......once again no one interested, so I privately purchased a pump .... I have to say this is very effective for me
I'm due to see consultant early Dec for a review and further PSA test result ( first PSA test since 6 weeks post op )
I will be requesting to attend a ED clinic if one does exist in my area......also I need to attend an incontinence clinic to see if I can get any help with pads etc..
Best Wishes
Luther
Edited by member 13 Nov 2014 at 17:03
| Reason: Not specified
User
I thought that was what it was but a simple op? Day case?
Maybe he will improve but with our luck he won't.
All the best.
User
I was referred for incontinence by my GP, and got over 200 pads foc.
I am improving all the time. I usually need only 1 pad per day, and I am hoping to be dry in 5 months. I will be able to apply for more pads when I need them.
Stay Calm And Carry On. |
User
Originally Posted by: Online Community MemberI was referred for incontinence by my GP, and got over 200 pads foc.
I am improving all the time. I usually need only 1 pad per day, and I am hoping to be dry in 5 months. I will be able to apply for more pads when I need them.
I can't understand why there is so much variation from area to area in support, back up and help ......
We've all paid our NI contributions ( presumably ), so why do we not all get the same support and back up?
User
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