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User
Posted 23 Nov 2014 at 09:28

Hi everyone, haven't been on for a while, doing OK and trying to forget PCa sometimes, but it seems to pop up everywhere in my life.

First my Dad, who died of it 25 years ago, then me, still clear 4 years after surgery, then my brother, still  clear just a year after surgery.

Sadly, now my brother-in-law Simon has been diagnosed, Gleason 7, PSA 12 after biopsy.

At the time of my surgery there were hospitals in the UK that you shouldn't go to (like mine in Carlisle) and others that were brilliant, like Addenbrookes where I ended up.

Simon has been referred to Leeds. Can anyone assure me that this is a great place to go for Da Vinci surgery?

I wish everyone on the forum well. I'm still heavily into pushing PCa awareness, in the hope that enough men will get the message early enough to make a difference to their future.

Daniel

 

User
Posted 23 Nov 2014 at 18:55

Hi Daniel,
I am assuming St James rather than LGI site? Superb facilities, ground-breaking research, state of the art technology, all of which make it a centre of excellence. Depends who he is under of course - we paid to have the person that we wanted based on my experience with dad and in-laws. There are a couple of weird things like not removing lymph nodes if you opt for robotic and the view that some men are too young for brachy, but these policy decisions are presumably based on their own research.

The big downer at Jimmy's is the nurse specialist - in all these years, neither John, Dad or Stan have ever EVER had a phone message returned or an appointment made with her or any other kind of support.

PM me if you think we can do anything to help or if you want the name of John's urologist of whom we can never speak highly enough.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 14 Dec 2014 at 20:37

Hi Dan,

Good to hear you are well

Barry

 

Dont know anything about Leeds

Edited by member 14 Dec 2014 at 20:38  | Reason: Not specified

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User
Posted 23 Nov 2014 at 18:03

Im under Mount Vernon - cant fault the advice and support re BRACHYTHERAPY - FANTASTIC. Initial INVESTIGATION was through the Luton and Dunstable Hospital - FANTASTIC. RADICAL PROSTATECTOMY ADVICE FROM Stevenage Hospital. -FANTASTIC. FEEL CONFIDENT WHICH EVER ROUTE I DECIDE !

psa 5.72
T2 NO MO
Gleason 3+3 4 out of 12 cores

User
Posted 23 Nov 2014 at 18:55

Hi Daniel,
I am assuming St James rather than LGI site? Superb facilities, ground-breaking research, state of the art technology, all of which make it a centre of excellence. Depends who he is under of course - we paid to have the person that we wanted based on my experience with dad and in-laws. There are a couple of weird things like not removing lymph nodes if you opt for robotic and the view that some men are too young for brachy, but these policy decisions are presumably based on their own research.

The big downer at Jimmy's is the nurse specialist - in all these years, neither John, Dad or Stan have ever EVER had a phone message returned or an appointment made with her or any other kind of support.

PM me if you think we can do anything to help or if you want the name of John's urologist of whom we can never speak highly enough.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 30 Nov 2014 at 19:05

Thanks for that Lyn, and very reassuring. The surgeons name is {removed by Moderator}, don't know if you have heard of him?

 

Edited by moderator 14 Dec 2014 at 21:43  | Reason: Not specified

User
Posted 03 Dec 2014 at 19:23

Dan, you know it is against the rules to name consultants or other medics on this forum but yes this is our beloved Mr P - we would have moved heaven & earth to get him and he gave my dad 13 years of remission with what was in those days experimental nerve sparing. Your brother is in safe hands as far as I am concerned! As it happens, John has the dreaded 3 month check up next week with Mr P so I will tell him to be kind to your brother :-)

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 14 Dec 2014 at 20:37

Hi Dan,

Good to hear you are well

Barry

 

Dont know anything about Leeds

Edited by member 14 Dec 2014 at 20:38  | Reason: Not specified

User
Posted 26 Feb 2015 at 07:33

Hi! Is it true, that the best treatment of prostate cancer in Israel?

 
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