Hi all,
Just back from a long day at the hospital, with good news as far as it can be, so a massive relief!
The CT results have come back with no spread outside the pelvis area (ie, they couldn't see any, but always the possibility of small cancer cells that they can't see) so final diagnosis stands at T3b N1 M0.
Initial PSA score of 19.4 (beginning of Oct) has dropped to 2.27 and testosterone score was 1.96, which we were told was well below the usual 9.9-27.8 expected for a man of that age?
As a result we have signed up for the STAMPEDE trial, and have a 50:50 chance of getting either arm ie, ARM A = HT & RT or ARM J =enz + ab on top of HT & RT. My OH will start RT 6 months after starting the HT (so in just under 5 months time). It will target the prostate as well as the lymph glands on both sides of pelvis, even though cancer only showed up on one side.
When we went in to see the oncologist, he said the results were quite good news, so we were waiting for a 'but ....', but we didn't seem to get one just what I have written above, so we were both massively relieved and came away feeling positive, so different from our last visit!
A big thank you to everyone for all your messages of support over the last month, what would we do without this site? It has been a life-line for us during such a confusing time, so BIG BIG THANKS, finally we know where we are going!
Miss x