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Ever Decreasing Circles part three

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User

Posted 14 Apr 2016 at 21:26

It's a real pain!

User

Posted 14 Apr 2016 at 21:29

Such a lovely post Paul, your photos were great. I'm sure that novel will soon be on your desk.

User

Posted 14 Apr 2016 at 21:46

Paul how fantastic such an upbeat post. Those steroids really do help

Loved all the Malta photos too

User

Posted 14 Apr 2016 at 22:29

Hi Paul,

Yes the page flip problem is still ongoing but I still know where to find you😍 Maybe there should be a stickie or a stuckie on page 8 when page 9 is not found , something like.

For all new comers when trying to access pages that are not found a double back flip to the previous page 🙃 Usually sorts out the problem but a generous helping of steroids is usually needled to accomplish the back flip.

Just a thought but maybe Sadie could hand them out at the door.😊

So enough sarcasm , photos were lovely and warmed my heart so glad that you have had some relaxing and fun time. I know the steroids are strong stuf and have equally strong side affects but there is no denying the boost that they can give.

BFN

Julie X

Ps stay of the roof 😎

NEVER LAUGH AT A LIVE DRAGON

User

Posted 14 Apr 2016 at 23:31

Thanks everyone for your supportive words and I like Julie's idea of using steroids to solve all problems. If only....

User

Posted 15 Apr 2016 at 07:58

Wow just read this. Sounds like you are in a better place then you have been for a long time.

Long may it continue

Bri

User

Posted 15 Apr 2016 at 08:05

just read it myself cheered me up no end

regards
nidge

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

User

Posted 15 Apr 2016 at 17:33

Hi Paul

Great to see how much the steroids have helped you. And to also spend a few days away in sunny Malta, with your daughter, an added bonus!

We spent a few days in the lake district, wasn't quite so sunny but a nice break.

Lesley x

User

Posted 15 Apr 2016 at 18:30

Hi Paul
Although you must be worried about progression and its effects your post truly showed hope and a sense of personal relief for you. I want it to last for you forever. Your courage and calm inspires me. Have a good weekend
Chris

User

Posted 15 Apr 2016 at 22:01

Thanks Chris. I appreciate the sentiment. I think accepting the inevitable allows you to get on with life and leave the worry about dying to the medics. I have done well even if the aches and pains have been a bit debilitating. I have got better at managing myself through the day and through the week but the steroids have given me a particular boost over the last few weeks which has enabled me to do so much. I,ll take whatever is next, I'm just glad still to be here!

Have a good weekend.

User

Posted 15 Apr 2016 at 22:26

So pleased for you that you are having this boost. Hope it lasts as long as possible.

Rosy

User

Posted 03 May 2016 at 12:56

So the scores are in and amazingly good they are too. My PSA has dropped, yes dropped, from 53 to 19.57. It's halved and more. Onco not quite sure why this has happened could be a delayed effect from ending casodex in January and/or the impact of the steroid. Anyway whatever it is we are keeping enzalutimide in the cupboard for at least another eight weeks and continuing on the steroids.

I am feeling so good at the moment. Got through a lot of writing projects in last six weeks and had a wonderful send off from the university last Thursday. I am now retired though continuing some national work so I can now get back to the novel, which has laid fallow for too long. With the continuation of the steroids I hope this will be a productive few weeks. I have virtually no pain even in my troublesome right leg, tiredness is manageable and my head is buzzing in a good way. So what better way to start retirement, a good news story as unexpected as it was appreciated. It's a strange disease this sometimes!

User

Posted 03 May 2016 at 13:08

So pleased for you Paul
What a result and outcome. Fingers crossed
Chris

User

Posted 03 May 2016 at 13:13

Brilliant news, you deserve some good fortune. Enjoy your retirement and I look forward to seeing your book being published.

Thanks Chris

User

Posted 03 May 2016 at 13:21

That sounds great Paul.
I didn't know that the steroids could have that sort of effect on PSA. Awesome that you are feeling so well and positive.I have been having the same steroid but in larger doses and for the first 3 days of each chemo cycle. I think its just to give me a bit of a lift before the cycle kicks in properly.
Looks like you are really going to enjoy your retirement, so much to do! I imagine you have kept up the food appreciation too, I understand steroids help in that regard. For whatever reason right through chemo I have loved my food and drink, it has been a bonus :) It is a crazy disease and we just don't know what to expect next, that frustrates me the most.So many inspirational stories on this site tho.
Go well everybody and may you have a glorious UK summer to enjoy.It has been amazingly good in Auckland and still ongoing as I write and damn it I deserve that!!

"And Rocky said, doc it's only a scratch. And I'll be better, I'll be better doc as soon as I am able"

User

Posted 03 May 2016 at 13:36

Thanks Martin. I think the impact of steroids has been unexpected but great. I know it is used in chemo partly to counteract the negative impact of chemo itself so the dosage is much higher but I guess it just gets balanced out with the chemo. For me it has been a relevation. I kept telling myself this will not impact on disease progression and so I was very surprised today. I know it won't last but I will enjoy it and glad I can continue with this improved feeling for a few weeks longer. My taste for food has indeed returned and this I will have to watch but really enjoying my food which is great after a year when I was beginning to lose interest in food. Hope your journey continues ok and enjoy Auckland, I have been there a few times and my son-in-law hails from there!

User

Posted 03 May 2016 at 13:49

A big welcome down under if you do make the journey again!

"And Rocky said, doc it's only a scratch. And I'll be better, I'll be better doc as soon as I am able"

User

Posted 03 May 2016 at 14:31

Paul

Marvellous!! Good news for you all round.

Well done, Arthur

User

Posted 03 May 2016 at 15:35

Paul, glad to hear about the PSA fall. I commenced Enza three months ago and mine has fallen 90% down to 1.6 with the previously affected lymph nodes returning to normal size.

I feel very overweight but otherwise as fit as a butcher's dog (one that does get tired) but I sleep when I'm tired and wake when I'm not. I roll with the wind and flow with the tide. Looks like you're doing the same.

Continue to enjoy life brother.

Bazza

User

Posted 03 May 2016 at 15:41

Paul,

That's great news re your score. Really pleased for you.

John

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