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Ever Decreasing Circles part three

User
Posted 20 Dec 2016 at 15:24

This is getting me so Cross now. All these entries and it shows page 11 yet puts these on page 10. Sort this out please.



MADE IT, MADE IT. MY PROPER ENTRY IS ON PAGE 10 SO HOPE YOU CAN GO BACK AND READ IT.

Edited by member 20 Dec 2016 at 15:26  | Reason: Not specified

User
Posted 20 Dec 2016 at 15:56

I hope keep turning the page didn't tire you out Paul, you need your strength for celebrating Christmas !!

Well done on all the results.

I sincerely hope that you and yours have a joyous and joyful Christmas and I wish you the continuation of your recent improvement in health in 2017.

Best Wishes

Sandra

We can't control the winds - but we can adjust our sails
User
Posted 20 Dec 2016 at 16:43

Great news Paul...you and Julie have cheered us all up.


Have a great Christmas.


Eleanor


x

User
Posted 20 Dec 2016 at 19:26

Great news that seems particularly better at this time of year. I agree with Barry that you should give it the two fingers and continue this trend into 2017 and beyond.

Newbies should read your story to give them hope in those dark early days

Enjoy your Christmas break with your family Paul

Bri

User
Posted 20 Dec 2016 at 20:44
Hi Paul,
What a lovely positive post. Am sure it will give hope to many! Wishing you a great Xmas and a very happy new year!
Lesley x
User
Posted 20 Dec 2016 at 20:54

I had a colonoscopy recently - by far the worst experience of my life (and I have had numerous babies without pain relief so consider myself pretty tough). The taste of that awful stuff will stay with me forever :-(

But you have survived the awfulness and lived your life, squeezed in yet another trip to Hong Kong and enjoyed loads of cricket (is enjoyed the right word?) - have a wonderful Christmas my dear friend xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 20 Dec 2016 at 22:27

Brilliant news in time for Christmas :-) x

User
Posted 21 Dec 2016 at 08:06
Lyn

Cricket is the sport of Kings. At the moment, the English team are playing like a third eleven club side but oh, the drama!
X
Bazza
User
Posted 21 Dec 2016 at 08:35

I think for Paul, some of the agony has been related to the white rose of Yorks ... or his local team :-/

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 21 Dec 2016 at 19:59

I love my cricket whether it is my local club, where I am president, Yorkshire where I am a season ticket holder or the national side. I used to love playing and now love watching, whether on TV or live. I prefer quieter games to watch live. I decreasingly like big crowds and hot weather so the comfort of the sofa is better for televised international cricket. I can lose myself in cricket when other things in my life, mainly health related threaten to dominate. If you can focus on the positive in your life, somehow the difficulties seem more in perspective and not dominating. So cricket is one of my key enablers even when the wheels come off but that is sport anyway and there is always next time.

Edited by member 21 Dec 2016 at 20:00  | Reason: Not specified

User
Posted 21 Dec 2016 at 21:34
Dah Dah and here you are on page 12 , what can I say my dear friend other than congratulations on getting to page 12. Of course the bigger CONGRTULATIONS is the PSA FAntastic news so happy for that result. I did see your leg problem on FB , also loved your photos and have just managed to catch up with your blog.
Ok so a bit of a downturn with the leg but on the flip side I think you are on the way up.
BFN
Julie X
NEVER LAUGH AT A LIVE DRAGON
User
Posted 10 Feb 2017 at 16:44

So having been through the mill with ancillary complaints and just about emerging I thought I'd update. No PCa update as another month to onco appt but symptomatically speaking it's still good. I had a colonoscopy as an early Xmas present 9gruesome preparation though the procedure itself ok) and the results have been good so no additional problems. So I have IBS as a result of the campylobacter infection which should clear over time. With occasional help from Imodium I am managing so far to avoid embarrassment when I can't get to the loo and it has begun in the last two weeks to be more manageable. This in turn has helped my diabetes which was becoming a problem. I had appointment before Christmas and my hba1C was rising and at 83. So change of meds and first injecting med now taken though not yet insulin. Of course unless the stomach settled risk that the meds would not be in the system long enough to have impact.

Anyway roll on two months and in the last fortnight had a noticeable improvement in my general bon homie evidenced by a steady improvement in my daily blood test for diabetes. Appointment today revealed in just 8 weeks hba1C down from 83 to 74. So clear improvement reflecting how I feel. Good news as insulin is around the corner.

Vitamin D very low so have to deal with that but my ancillary issues are beginning to behave again so be great it the PCa continues to sleep.

Now a quick question. I am considering an application for PIP. My walking is now very poor centred around my bone mets in my right leg which means after about 30 yards it starts hurting and only stops if I stop. So at Xmas I trialled a mobilty scooter whilst at Center Parcs. It did give me more independence and I got around so much more. If I get an assessment and it fails does that preclude a further application later on. Any advice welcome.

So trying to keep well before the PCa takes off again. Five years now so becoming a veteran at this.

User
Posted 10 Feb 2017 at 17:23

Oh you have had a rough time of it Paul.

Why shouldn't you apply for the PIP. Independence means so much to most people but to somebody like you, who has been used to jetting off around the world it must be very frustrating.

Go for it

We can't control the winds - but we can adjust our sails
User
Posted 10 Feb 2017 at 20:00

Paul good to hear improvements in some areas. Hopefully the PSA will follow suit next month.

Been some time since I had any dealing with benefits but my understanding is that PIP is a benefit that is paid based on how the condition impacts on you not because of the condition itself. So based on that I would think if you are currently ineligible (which I doubt) you may become eligible later if the impact of the condition gets worse. So I wouldn't think you would be precluded for another assessment while you are eligible age wise

Bri

User
Posted 10 Feb 2017 at 22:26

Good to hear that the diabetes is settling a bit. I was diagnosed with IBS this year and bizarrely, as soon as I got a diagnosis it got better! When the doctor told me that it was IBS I said "but that isn't a real thing is it - it's for nervy people" which he wasn't very pleased about and led to a lecture about the delicately balanced inner workings of our digestive system.

As for the PIP application, you are right at the top of the age range for eligibility so if you apply and fail, you would soon be too old to get it anyway (ergo what have you got to lose?)

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 10 Feb 2017 at 22:31

Didn't realise you were 64 Paul. So age-wise you probably will only have this one shot

Bri

User
Posted 10 Feb 2017 at 22:38

PS have any of your Hong Kong trips been more than 4 weeks? That might preclude you from PIP :-(

If it is just about getting a scooter to zip around on, you can probably have Stan's - it was bought and then never used and I think it is still sitting in the garage. Might have to get a new battery? If you think it might help I will check with m-i-l

Also, I met a friend of Joe's on some training but have forgotten his name :-(

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 11 Feb 2017 at 20:58
Paul
pleased to hear you are coming through the worst of things. Insulin isn't that bad and it does give really good control. The steroids would have pushed your HBa1c up a bit.
As for PIP and benefits please get help from either your own local hospice team or Macmillan. As far as I understood anyone with a T4 terminal diagnosis under state retirement age of 65 is eligible for PIP . Most Oncology consultants will help in the fast tracking process by signing off a special application.. You can only get it approved pre 65 though even though once you have it you only have to requalify every 3 years (I think ?) Mick managed to get it literally days before his 65th birthday thanks to the St Barnabas hospice benefits advisory service.
Knowing you and your mobility issues I would say you would qualify for the top level payment which would give you a full motability allowance, a blue badge etc. Once Mick's was approved they back dated it about 4 months.
It is not means tested. Lots of Men on this forum get the full benefit even though they have outlived the 6 - 12 month prognosis that is supposed to be the qualifying criteria.

I always viewed it that Mick would not get to draw his state pension for very long and this would go some way to making amends for that. There again I really didn't expect him to only get it for 8 months.

Im sure one of those that get it will comment soon
xxx
Mo
User
Posted 11 Feb 2017 at 22:21
Lovely to hear from you Paul,
It does all sound positive and long may that continue glad to hear the diabetes is behaving but sorry about your early Xmas present that wasn't very festive . 😆
Brussel sprouts would have been just as effective 😂
I can just see you zipping around in Stans scooter if that doesn't work out I have got a very descent ride on that's just as good. 🤗

BFN
Julie X
NEVER LAUGH AT A LIVE DRAGON
User
Posted 11 Feb 2017 at 22:24

I think they have tightened it up again for the terminal illness version Mo - specialist must confirm that there is a life expectancy of less than 6 months. Happily for all of us, I dont think Yorkhull is there :-)

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
 
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