Ever Decreasing Circles part three

Thanks for the update Paul. It's good to hear that clinically you feel better on the enzalutamide. Also good that the scans show no change and that pain is lower.

Here's hoping with more time and an increase in the steroid dose your PSA reduces.

It is indeed a very uncertain journey we are all on, these last few weeks have been difficult for so many.

Enjoy your Christmas lunch!

Best wishes, Ian.

Hi Yorkhull
Thanks for the update. As you say after the losses over the last few weeks it's good to hear something positive. My husband isn't as far down the line as you, only diagnosed in March this year so following what is happening to you with interest. He did early Chemo which seemed to have worked well at the time but a couple of months later his PSA has doubled in 5 weeks so we wonder what the next treatment is going to be. Next Onco visit is March unless she picks up on latest PSA.
I really hope you have a good Christmas and are able to enjoy it.

A 6 week respite and the joy of a Christmas dinner without limits - small things to be thankful for. Really pleased that the pain has reduced recently xxx

Paul, 4 years that’s good. I have been on prostap from the start and still on it. I think it does a job but with limitations once you are hormone resistant. So I had casodex for a year, then dexamethosone and now enzalutimide. So I think because of the way it works and I can only think of a simple phrase as I cannot describe the medical argument, enzalutimide deals with the residual cancer hopefully preventing the metatestes growing further. I doubt whether, given the rises will give me 4 years but hopefully a while longer. Have a good Christmas

I am just watching Masterchief the Proffesional and the Narrator sounds just like you , a kind of sexy Mr Kipling 😉

The chocolate mousse must be served warm with a slice of coconut twist and a budgie Bon Bon , finished of with a quinell of asparagus ice cream .

So just a slice of Raduim will be a doddle .

Once again XMas is here enjoy with your family my dear friend and enjoy a quinell or two on me .

Oh chuck in a few salted caramel fudge twists . 😜

BFN

Julie X

Take care

Devonmaid xxx

Ok time for an update. For those reading for the first time a brief, hopefully positive summary. It is now 6 years since I was diagnosed. Firstly PSA 7.5; Gleason 9 (5+4) and CT Scan showed no soft tissue spread. In February 2012 a promising curable prognosis was changed when my bone scan revealed bone metastestes. Incurable prognosis and an intitial prognosis of two years. This always seemed a tad pessimistic and six years on feel I may still have a year or two left. You can see the range of treatments I have had on my profile.

So oncology appointment today. Been on enzalutimide for about 9 months now and clinically it feels good. However PSA has risen each check up though a slow rate. This time up to 10.83 so approaching the baseline of 11.98. Onco keen though not to ignore the clinical progress and for the first time said he would try and keep me on enzalutimide beyond the baseline of clinically progress is maintained. Good to hear. Have upped dexamethosone since last visit to support keeping PSA down. Now proposing in 4 weeks to add zometa/zoledronic acid into the mix. This could support my bones and I know lots of people have this. No experience of it so we shall see how it goes.

Overall some encouragement I think and the journey continues. I do get quite tired and my walking is poor but tiredness does not lead to as much ‘fuzzy headiness’ I am experienced before and with my scooter I am hoping to stay well enough to enjoy ‘scooting’,around this summer.

So I hope an optimistic report for those starting their journey especially but also friends on here.