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Ever Decreasing Circles part three

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User
Posted 20 Mar 2018 at 18:42
Positive news Paul. Hopefully the pain in your left leg will subside over the next few weeks.
Best wishes, Ian,

Ido4

User
Posted 20 Mar 2018 at 18:49

Sounds good to me Paul


Your be ready for a beer soon


 

Don't deny the diagnosis; try to defy the verdict
User
Posted 20 Mar 2018 at 20:43

Good news indeed x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 21 Mar 2018 at 06:56
Good news Paul.

You are doing well

Regards

Dave
"Incurable cancer does not mean it is untreatable and does not mean it is terminal either"
User
Posted 21 Mar 2018 at 13:26

So woke up this morning after 12 hours sleep (admittedly in two hour shifts but that is normal for me) and no noticeable adverse side effects from the Zometa this time. Thus time 4 weeks ago I was stranded in bed feeling very ill but I was told this would lessen or disappear and it appears to have disappeared. Will take it careful for a few days but it’s encouraging. Just need to build up strength again. Good start to the day.

Thanks for all the best wishes.

User
Posted 22 Mar 2018 at 11:20
Good news Paul and resilient as ever. Take it easy.

Thanks Chris
User
Posted 22 Mar 2018 at 11:55

Well relieved Chris to have coped with the infusion, even left leg settling down. Maybe get a better few weeks now, about time.

User
Posted 22 Mar 2018 at 14:01

So pleased to read all the positives, Paul.


 


And no bad reaction to the infusion this time is brilliant news.

B2PCa
User
Posted 22 Mar 2018 at 22:26

Hope things continue to improve

User
Posted 23 Mar 2018 at 00:13

I hope that you do feel better - I see you have been doing a bit of conferencing this week? We are overdue a catch up and there is a particular piece of work I could do with your advice on - can I come and visit when John is up and about again?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 23 Mar 2018 at 09:25

Lyn,

It would be great to see you whatever, so let me know I am at home quite often, let me know if you need more details, phone, address etc

User
Posted 01 Apr 2018 at 18:14

I blog on a regular basis but thought this blog might be of interest for some struggling with dying and death. Anyway be good to hear any thoughts.

https://yorkhull.wordpress.com/2018/04/01/you-start-dying-slowly/



Click here

Edited by member 01 Apr 2018 at 18:15  | Reason: Not specified

User
Posted 01 Apr 2018 at 22:35
I read your blog Paul.
I relate to so much of it. Since my diagnosis and recurrence I try to live my life as full as I can.
Reading, trying new things, travelling to new places, spending more time with my family and friends.
And trying to accept that I will die at some point. Probably a lot earlier than if it didn’t don’t ha e PC.
A friend and ex colleague of mine died in January aged 63, she had several heart attacks on 2/1/18. A stent was fitted to a blocked artery and a few days later she was sent home, elated that she had survived and ready to travel more, work less.
Unfortunately when she got home she sat in a chair and immediately had several more heart attacks from which she never recovered. At her funeral on 29/1 her son spoke of her saying to her husband “it’s time to stop working and enjoying life more”
People don’t realise the time to live is now, not when I reach this or that. You may never reach that point.
Much of the poem and what you say resonates with me.
Thank you for sharing your blog Paul.
Ian.

Ido4

User
Posted 01 Apr 2018 at 23:48

I always enjoy your writing, mostly because you seem to find reflection so easy while I have always had to work at it. Odd really since I teach other people to develop their reflective practice skills - a bit of 'do as I say, not as I do' I guess. Regardless, you continue to adapt to life rather than slowly die, it will soon be cricket season, and you are motorised :-) x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 02 Apr 2018 at 19:07

Thanks Ian for your comments much appreciated.

And Lyn thanks I do think being reflective is a key tonsurvival, for me at last. When I can’t make sense of things life becomes more difficult but given time to reflect I can find a way through. I am getting stronger touch wood each day so beginning to look forward to warmer weather and some outings.

User
Posted 17 Apr 2018 at 14:49

So four weeks on further visit to onco. PSA Up again 14.23 which although slow rise is now well beyond the baseline figure. They are worried enzalutimide no longer working. So continuing for another 4 weeks whilst scans both CT and Bone are done to check if there is progression there. Already discussing radium 223 and chemo. Beginning to feel like another circle is disappearing.

I feel ok, pain level good my other tests were in general fine and ALP was 111. I am a bit anemic which concerned them as last time I was like thus was just before I started enzalutimide which is almost a year ago.

So cautious about the future, next options drawing closer but still hoping for a good run through the summer, one more time!

User
Posted 17 Apr 2018 at 17:37
Hi Paul
Glad to hear the pain is under control

Hope you can milk a few more months out of enzo we have spring and summer appearing very soon and nobody wants Chemo then
Good luck with the next test and scans

Si
Don't deny the diagnosis; try to defy the verdict
User
Posted 17 Apr 2018 at 18:03
Glad to hear the pain is under better control now Paul. A pity the PSA is still rising albeit slowly.
I hope you have a good summer before any new treatments.
Best wishes, Ian.

Ido4

User
Posted 17 Apr 2018 at 20:07
Paul

Sorry to hear the news is not better, got to admit I know nothing of all the drugs you guys talk about. Hope the scans show no more progression.

Take care.

Thanks Chris
User
Posted 17 Apr 2018 at 20:19

One more good summer, and one more memory trip with the kids, then one more Christmas - I hope the one mores just keep coming, my friend x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
 
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