I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

«<3536373839>»

Ever Decreasing Circles part three

Email this conversation Print this conversation
User
Posted 11 Jul 2018 at 23:38
Thanks Julie, it’s good to hear from you and here’s hoping I can keep going for a while. Don’t get many comments now on here I guess it’s just the changing nature of the forum.
User
Posted 12 Jul 2018 at 07:03

HI Paul

Certainly a mixed bag of results for you but good news that the PSA has come down a little.

Let's hope that the appointment for the renal unit comes through soon and that you get some helpful results from that.

It was lovely to meet you at the Mill the other week as I have followed your posts since I joined the Forum and admire the way that despite everything that is thrown at you you crack on dealing with it all and sharing your experience.

All the very best and keep us up to speed with your progress.

Kevan 

 

User
Posted 12 Jul 2018 at 08:33
Keeping my fingers crossed for you Paul
We can't control the winds - but we can adjust our sails
User
Posted 12 Jul 2018 at 11:13

Hi Paul, I follow your story closely. As Kevin has said good news on the PSA front but a few other issues to sort.

I hope you have been able to enjoy some of the nice weather and have been tearing around on your transport!

All the best, Ian.

Ido4

User
Posted 15 Jul 2018 at 18:55
Any news on how soon you can be seen at the renal unit, Paul?

On the bright side, I take it you haven’t had any cricket rained off while I was away?

Love as always xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 15 Jul 2018 at 19:01
Sorry I’ve not replied Paul. At a loss as what to say ( for once ) lol. I’m glad your psa stays stable and your QOL is manageable. As you say the forum moves on and some of us disappear. I’ve been on here 3 1/2 yrs now yet it seems like yesterday. Thank god for Lyn and Johsan and others that are always there for people. I back off a bit as although I look daily it is a source of impending doom for me. I wish you well x
User
Posted 15 Jul 2018 at 21:05

... & thank you also to Ian, Kevin & countless others who share this awful illness but who give us strength and a positiveness to see it through with fortitude. Thank you all ... 

 

User
Posted 16 Jul 2018 at 14:42
Thanks guys. No call to the renal unit yet but I don’t think it was seen as urgent more a precaution. I’ll let you know, also due an ultrasound to check if retaining urine again, could mean a return to self-catherisation, that would be fun. For now I just keep going.
User
Posted 17 Jul 2018 at 18:18

Just seen your post Paul

Keep up the good work , always on the lookout for you

 

Barry

User
Posted 07 Aug 2018 at 18:14
So it’s appointment time again with another long day at the hospital. But some good news and maybe some actions which will improve things. Good news is cancer remains in good control, PSA was 12.76 and so treatment continues. Nothing to worry about with the kidneys. I need to see urologist to check nighttime problems. We then discussed how I have felt which has not been good, high level of fatigue and also some anxiety and she thinks part of this could be linked to low haemaglobin, down again to 84. They thought a blood transfusion would help. Decided to go for it, happening tomorrow. All in all ok just six hours of blood transfusion tomorrow. i could be a new man by then but it will be a long day. After a difficult few weeks feel like there are plans in place.
User
Posted 07 Aug 2018 at 19:10

Thank you for the update Yorkhull I always follow your updates. I wish you all the best for tomorrow and will be thinking of you.

User
Posted 07 Aug 2018 at 19:41
Good news Paul. My dad just had a blood too-up and it’s cured the fatigue totally. Best wishes
User
Posted 07 Aug 2018 at 19:42
The trouble is, there is no way of knowing how much of the recent fatigue is down to this sustained hot & muggy weather; I think lots of us without any health problems feel worn out so it must be worse when you are already weakened. I so hope that the transfusion gives you the boost you need x
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 07 Aug 2018 at 20:11
Good luck with the transfusion Paul

Hope you are feeling better this time tomorrow

Bri

User
Posted 07 Aug 2018 at 20:20

Hi Paul,

Thank you for the update ,

Good point from Lynn 

I know i feel like S'''e with all this heat

 

Barry

User
Posted 07 Aug 2018 at 20:38

Good news on cancer control and kidneys are ok. Hope you get the desired boost with the blood transfusion Paul.

All the best,

Ian

Ido4

User
Posted 07 Aug 2018 at 21:22
Good to see the update Paul, thank you.

Blood transfusion will give you a huge boost, especially if the temperature drops a bit as well.

Good luck tomorrow.

We can't control the winds - but we can adjust our sails
User
Posted 07 Aug 2018 at 23:01

Paul

Hope all goes well tomorrow.

Thanks Chris

User
Posted 11 Aug 2018 at 10:09
Ok i’ve Had the blood transfusion and it has certainly given me a boost. I am been reflecting on the phenonmenum of cancer-related fatigue and have written a blog. Hope it might explain the issues which can surround this notion of fatigue. Be interested in your thoughts.

https://yorkhull.wordpress.com/2018/08/10/cancer-related-fatigue/

User
Posted 11 Aug 2018 at 13:50

You have described the fatigue really well in your blog Paul. I relate to a lot of it even although I haven’t been through all you have been. I find that my speech and my thinking processes are affected when I get over fatigued. Also my toilet issues become more pronounced. I have decided to retire early from my job as a curriculum leader of science and physics teacher. I have eventually accepted the advice from health professionals, my family, and my close friends that what I was doing was unsustainable. The diet/eating anxiety you describe I haven’t experienced but it sounds very difficult. I hope the boost and the increase in  mental clarity you describe lasts for a while. 

I liked the pictures in your blog too. Nice times with people you love.

Wishing you all bes wishes,

Ian

Ido4

 
Forum Jump  
«<3536373839>»
Email this conversation Print this conversation

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.




MenuTop ▲
©2025 Prostate Cancer UK