Hi and thank you so much to everyone who has replied to my first post. There are lots for us to think about from your posts and hope we can be better positioned for my OH hospital visit next week.
The PSA level at diagnosis was 241 in August 2014 and 3 biopsy samples taken. An MRI bone scan done Sept 2014.
Al has had the 2nd PSA test last week for his treatment review with the oncology nurse next week.
Results were all three biopsy samples are affected. A gleason score of 10. The T stage was T4, the N stage is N2 the M stage is M0.
We were told that the cancer is advanced, and has spread outside the prostate to the lymph nodes but fortunately has not currently affected the bones.
The oncologist has not offered any other treatment than the hormone therapy (Prostap injections) and Al has now had three injections over the past 6 months. He was given the option to take part in a trial of radiotherapy but told us that it would not benefit him. We mentioned this to his oncology nurse who thinks he should not take up the offer at this stage. It seems that the Oncologist does not need to see Al again as he has no further treatment plans for him.
It was four months before Al was diagnosed and I have since agonised over whether we should get a second opinion as the meeting with the Oncologist lasted just 10 minutes and he was surprised that we had not been told Al had Advanced PC. It is so very worrying and Al is still in denial thinking that at 73 his expectations are quite low. Until six months ago he was a very active man but his morale is now very low.
This week Al has had a bleed from his bladder and was given antibiotics from our GP who suggests it may be from the prostate or he has a urinary infection. Not really very reassuring but will put it on our list for next week's hospital visit.
I note that most of you do not have much involvement with your GP surgery and see that it makes sense to contact the hospital with any queries and health issues. I will discuss this with the hospital next week. The nurses in Urology are very helpful when we visit and have been very kind.
Thankyou again for all your help.