I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

Two years post op

User
Posted 31 Jan 2015 at 12:27
Bit of a milestone this week really as it will be two years since I ditched my prostate.

I was dx in November 12 with a T2bm0n0 Gleason 6 tumour...PSA hovering around 20 and 8 out of 12 cores positive.

I had the usual consultations with urologist and oncologist...researched and asked for a referral to a highly experienced surgeon who had done over a 1000 of these ops. He agreed to do my op. My only regret was the first surgeon dismissed a referral to Addenbrookes for a robotic procedure. I wish I had challenged that..I had the op the first week of February 13. The op was done laprosopically ie keyhole.

I have since wondered if full nerve sparing was the right call as I had to have follow up RT. My post op histology showed a focal breech and was upgraded to 3+4 g7. All 15 lymph nodes removed were clear as were seminal vesicles. PSA was 0.06 and this raised slightly over the next few months so we decided to zap it in August/Sept 2013.

Following my op I made a good recovery and was fully continent within a few months. My flow has been effected but I am living with that as no big deal...We decided against a bladder neck incision due to possible side effects. I got through the RT unscathed and continued working throughout.

I still have erectile function difficulties but Viagra does help. I couldn't get on with Cialis.

My pre RT PSA was 0.087. 6 months after RT it was 0.048. A year after RT my PSA was 0.037...in a few weeks or so I will know my 18 months post RT PSA. They told me it continues to work for two years so hopefully the PSA will continue to drop.

Hope this is helpful to any newbies

Good luck to all going through their treatments but particularly my friends who were dx'd at the same time as me. We are still sharing a journey...see you in 8 years Davy

Bri

User
Posted 31 Jan 2015 at 16:11

Hi Bri
Well done on your 2 years.
Good luck for the upcoming test
From a fellow cotton
Andy

User
Posted 31 Jan 2015 at 16:22

Cheers Andy ;-)

User
Posted 31 Jan 2015 at 18:30

Improvement. Long may it continue,

 

Steve

User
Posted 31 Jan 2015 at 19:18

Bri,

Well done with the figures still dropping.  I hope for the same with mine though I'm a bit behind you.

I think it's good to celebrate milestones so have a beer to celebrate.  I'm just about to open a can of lager to celebrate finally managing to submit my tax return on time, not as important as your milestone but for me, it's a weight off my mind.

Enjoy the rest of your weekend.

All the Best,

Steve

User
Posted 31 Jan 2015 at 19:28
Nice one Bri

I am hoping Sue (Whiterose) is looking at your posts, her husband is in a similar situation , going to miss you next weekend xx

Mandy Mo

User
Posted 31 Jan 2015 at 20:44

Cheers all...just hope it keeps dropping

Bri

User
Posted 31 Jan 2015 at 21:40
Sounds like you have got through the very tough times now, let's hope it's all blue skies and the finest lager for your future Bri, Kev

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 01 Feb 2015 at 10:25

Bri

 

Well done Bri it is encouraging and reassuring to hear good news.

Thanks Chris

User
Posted 01 Feb 2015 at 17:24

2 Years down the line Bri, excellent news for you and hope for us approaching that anniversary.

ATB

dave

User
Posted 02 Feb 2015 at 19:34

Bri not only are you doing great but you are great, keep kicking it's but and good luck for the next psa test . I will be thinking of you .

G.P.T.B.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif

BFN

Julie X

 

NEVER LAUGH AT A LIVE DRAGON
 
Forum Jump  
©2022 Prostate Cancer UK