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First good news for months

User
Posted 16 Feb 2015 at 23:21

Hello all

I am 47 and was diagnosed with Prostate cancer in October 2014. My PSA was 7.4 and a biopsy gave me a Gleeson score of 3+3

An MRI scan was inconclusive and I was offered a range of treaments. My OH researched tirelessly on the internet, and we gathered as much information as we could about the options available to me. I was fortunate enough to be offered a robotic assisted radical prostatectomy which was done in January 2015. I say fortunate, because my local health authority don't have the DaVinci Robot at any of their hospitals but it was decided by the Multi Disciplinary Team that I would be one of the lucky ones offered the chance to travel to a neighboughring health authority which did have the technology.

Today is 4 weeks since the op and I have been given the first bit of good news since I walked into my GP's surgery in August. My PSA is less than 0.01% which initially suggest that the treatment has been succesful. I will have a full post op briefing in 3 weeks when I will be told about the pathologists report on the removed prostate and any potential issues. But so far so very good.

Having spent the last few months closing myself off from the world, I now feel I can, and should share my experiences with others.

We made an amazing thing when we made the NHS.

Welshman

Edited by member 17 Feb 2015 at 07:17  | Reason: Not specified

User
Posted 16 Feb 2015 at 23:21

Hello all

I am 47 and was diagnosed with Prostate cancer in October 2014. My PSA was 7.4 and a biopsy gave me a Gleeson score of 3+3

An MRI scan was inconclusive and I was offered a range of treaments. My OH researched tirelessly on the internet, and we gathered as much information as we could about the options available to me. I was fortunate enough to be offered a robotic assisted radical prostatectomy which was done in January 2015. I say fortunate, because my local health authority don't have the DaVinci Robot at any of their hospitals but it was decided by the Multi Disciplinary Team that I would be one of the lucky ones offered the chance to travel to a neighboughring health authority which did have the technology.

Today is 4 weeks since the op and I have been given the first bit of good news since I walked into my GP's surgery in August. My PSA is less than 0.01% which initially suggest that the treatment has been succesful. I will have a full post op briefing in 3 weeks when I will be told about the pathologists report on the removed prostate and any potential issues. But so far so very good.

Having spent the last few months closing myself off from the world, I now feel I can, and should share my experiences with others.

We made an amazing thing when we made the NHS.

Welshman

Edited by member 17 Feb 2015 at 07:17  | Reason: Not specified

User
Posted 17 Feb 2015 at 07:51
Welshman

Well done to you and your medical team as always it is good to hear good news.

Thanks Chris

Edited by member 17 Feb 2015 at 07:52  | Reason: Not specified

User
Posted 17 Feb 2015 at 09:51

An excellent start to your recovery. It's too early to know about ED issues. How's the continence? I still need 1 pad per day 10 months post op, but it's a big improvement on where I was at your stage.

Paul

Stay Calm And Carry On.
User
Posted 17 Feb 2015 at 10:04

Excellent news for you both Welshman.

dave

User
Posted 17 Feb 2015 at 10:36
Good news indeed. Nice to acknowledge the good work done through the NHS. Good to know that people don't necessarily need to be privately insured to get access to the best treatment. Georgina
User
Posted 17 Feb 2015 at 11:23

Very good news so far Welshman,

You will know more when your consultant goes though the histology results with you at a later date.

Knowing what you are dealing with ie. histology results etc. was one of the reasons I chose surgery rather than RT.

I live in England ( SW ) but like you I was referred out of area to a hospital and consultant that  specialises in robotic assisted surgery.

I didn't have to request this, but was done on my behalf by the consultant at my local hospital.

The consultant I was referred to  ( like many others ) also performs  robotic surgery on a private basis, so I had the same level of expertise as someone who is under private care..... 

It would be tragic if we ever lost the NHS for whatever reason.

Wishing you all the best for a speedy recovery in the near future.

Luther

User
Posted 17 Feb 2015 at 17:45
Congratulations on your excellent PSA results.

I share your views with regard to the NHS.

Best wishes to you and your family.

User
Posted 15 Mar 2015 at 13:02

just to respond to a point made by titanic, An alternative system to the NHS would need to be geared in such a way that would help those unemployed, pensioners and those with disabilities and special problems. Incidentally, UK pensions were once among the best in Europe but are now well down when considered relative to pensions salaries/wages of those in occupation across Europe. Whilst annuities presently give a poor return, as do savings in general, it is a temptation for some pensioners to liquidize their pension pots as the Government is now going to allow. Some may do well by doing so, others may lose out badly or just 'blow' the money and become more dependent on the state. This is a matter of concern.

More specifically, as regards health, whatever system is used, the fact that people are living longer with more and diverse health issues, the rising cost of drugs and more expensive equipment coupled with more expertise needed, will mean one way or another, a lot more funding will be needed.

Edited by member 15 Mar 2015 at 13:23  | Reason: Not specified

Barry
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User
Posted 17 Feb 2015 at 07:51
Welshman

Well done to you and your medical team as always it is good to hear good news.

Thanks Chris

Edited by member 17 Feb 2015 at 07:52  | Reason: Not specified

User
Posted 17 Feb 2015 at 09:51

An excellent start to your recovery. It's too early to know about ED issues. How's the continence? I still need 1 pad per day 10 months post op, but it's a big improvement on where I was at your stage.

Paul

Stay Calm And Carry On.
User
Posted 17 Feb 2015 at 10:04

Excellent news for you both Welshman.

dave

User
Posted 17 Feb 2015 at 10:36
Good news indeed. Nice to acknowledge the good work done through the NHS. Good to know that people don't necessarily need to be privately insured to get access to the best treatment. Georgina
User
Posted 17 Feb 2015 at 11:23

Very good news so far Welshman,

You will know more when your consultant goes though the histology results with you at a later date.

Knowing what you are dealing with ie. histology results etc. was one of the reasons I chose surgery rather than RT.

I live in England ( SW ) but like you I was referred out of area to a hospital and consultant that  specialises in robotic assisted surgery.

I didn't have to request this, but was done on my behalf by the consultant at my local hospital.

The consultant I was referred to  ( like many others ) also performs  robotic surgery on a private basis, so I had the same level of expertise as someone who is under private care..... 

It would be tragic if we ever lost the NHS for whatever reason.

Wishing you all the best for a speedy recovery in the near future.

Luther

User
Posted 17 Feb 2015 at 12:46

Yes. Very pleased with my recovery so far. I go through a few pads a day ATM mainly because i've started laughing a lot more recently, but it seems to be improving daily.

 

 

User
Posted 17 Feb 2015 at 17:09

They say laughter is the best medicine. Don't stop!

Paul

Stay Calm And Carry On.
User
Posted 17 Feb 2015 at 17:45
Congratulations on your excellent PSA results.

I share your views with regard to the NHS.

Best wishes to you and your family.

User
Posted 14 Mar 2015 at 10:22

Hi Welshman,

Very good news so far.

I agree with your comments about the good service provided by the NHS.

Regards

Cycle-Runner 

User
Posted 14 Mar 2015 at 11:12

Laughter is the best medicine Welshman, keep laughing it should be on prescription. Glad that all is going well.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 14 Mar 2015 at 22:27

Hi Welshman.

Pleased that you got the treatment you wanted and seem to be doing well although you needed to go to another area for it.

As regards you and others extolling the NHS, the concept is attractive and there are many highly skilled doctors, nurses and other dedicated staff that serve in it. However, I think you are looking at it through rose tinted glasses and if you will forgive me for saying so, not fully aware of it's many short comings or how poorly it compares with major European countries of which I have some experience.

Firstly, not all Commissioning bodies will pay for a specific treatment in another area if they cannot provide that themselves, though of course they will offer an alternative. A member of this forum reported being affected in this way. Also, when it comes to some forms of treatment it can be a post code lottery.

The most significant thing however, 'the proof of the pudding' one might say, is that cancer survival rates in the UK are amongst the worst in Europe.

Few hospitals have the latest equipment and many have old/clapped out stuff. (A recent stay in the main North Devon hospital confirmed this was a case in point).

There are many foreign doctors and nurses, not all with a good grasp of English. The NHS can't afford to train sufficient indigenous personnel, yet still pay agency fees for nurses to cover the short fall at times.

Some hospitals are so bad that they have either been closed or are under special supervision. Some use machinations to show they are meeting targets yet they have patients waiting in ambulances queuing up outside. Hospital administrators and others close ranks and buy off or otherwise try to stop whistle-blowers. (I am under a gagging order myself for an non directly related reason).

When I reported back on my treatment experience in Germany to my 2nd opinion in the UK, he told me he had worked in German Hospitals and was sometimes ashamed how UK hospitals compared.
Better and later equipment, beds waiting for patients rather than patients waiting for beds, much better staff to patient ratio, less crowding and more room. This better ratio goes back to GP's and also applies in France and Italy. The German system works well even an obvious tramp got the same treatment as me so there is a safety net.

The question is, whether by reorganisation or extra resources the NHS could be improved to a much better standard, though this has not worked though tried for some time. The alternative is to have a much more widespread and capable private system such as other countries enjoy instead of the NHS.  If you value your health one should be prepared to pay a little more than presently paid through taxes (which should be reduced) to get quicker and in some cases better treatment.

I could make more points but this is not intended to be a diatribe but a realistic look at the NHS. Naturally, those who have had reasonably early and good treatment are happy with the NHS but many aren't (just read reports) and it has to be considered overall. Far from being amazing, there are areas where the NHS is lacking in many respects and patients deserve better.

 

Edited by member 14 Mar 2015 at 23:28  | Reason: Not specified

Barry
User
Posted 15 Mar 2015 at 08:35

My wife recently had treatment at a private hospital, it was like going to a 5 star hotel in comparison to a NHS hostel , I believe the NHS does offer good service in general, but is constantly under attack and abuse,  agree with many of the coments made by man with pc

the last few years Ive been through the health system, in my experience it is slow, chaotic, disjointed, impossible to make any complaints against, maybe it would be a whole lot different if you paid them cash when youve finished your treatment,

I believe having private medical cover gives you a great advantage, but getting older and using the system more would only increase the premiums I feel, this is ok as long as your working and can afford to pay, if not you become just another second rate NHS patient, get the same treatment as someone who has never paid any taxes or contributed anything to this country,

sorry not a political statement, just my experience

 

 

User
Posted 15 Mar 2015 at 13:02

just to respond to a point made by titanic, An alternative system to the NHS would need to be geared in such a way that would help those unemployed, pensioners and those with disabilities and special problems. Incidentally, UK pensions were once among the best in Europe but are now well down when considered relative to pensions salaries/wages of those in occupation across Europe. Whilst annuities presently give a poor return, as do savings in general, it is a temptation for some pensioners to liquidize their pension pots as the Government is now going to allow. Some may do well by doing so, others may lose out badly or just 'blow' the money and become more dependent on the state. This is a matter of concern.

More specifically, as regards health, whatever system is used, the fact that people are living longer with more and diverse health issues, the rising cost of drugs and more expensive equipment coupled with more expertise needed, will mean one way or another, a lot more funding will be needed.

Edited by member 15 Mar 2015 at 13:23  | Reason: Not specified

Barry
 
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