Hi folks
Today I have survived 7 years since that awful diagnosis in 2008. The "two to three years" standard prognosis for a man with advanced metastatic PCa spread to bone has long since been beaten but the journey has not always been easy, as my profile will testify!
OK, my PSA is on the high side @ 1410 but I feel no different to when it was less than 1. I have just had a CT, MRI and Bone scan, all of which show NO disease progression. The bone scan is actually better than last year and my oncologist puts this down to the Chemo. Best of all is that the CT scan still shows NO soft tissue involvement i.e. My disease is 100% confined to bone, where hopefully we can control it.
I really need Enzalutamide now but have been denied access by the local health trust on the grounds that I have had Abiraterone (a few months, didn't work for me). Hopefully this situation will change. I have been involved in a long campaign to create a Cancer Drugs Fund for N. Ireland and ease the restrictions on individual funding requests. I have had private meetings with the health minister and the chief medical officer and am pleased to say that yesterday they announced a 12 week consultation into the creation of such a system, funded by the re-introduction of subscription charges.
Watch this space ......