inconstenace pads

Hi

I have no experience of incontinence pads etc despite having dealt with waterworks problems for many years since diagnosis. To get you started have a look at the link below.

http://www.nhs.uk/chq/pages/can-i-get-incontinence-products-on-the-nhs.aspx?CategoryID=68&SubCategoryID=154

Also, if you google “NHS incontinence service” this may be helpful. I am sure you will get a good response from others who have had waterworks problems.

Alan

If I was in your position I would refer to your hospital urology department or your specialist nurse or maybe your consultant - in other words by-pass your GP. I think it is worth trying at least. If you don't ask there is no chance but if you ask you have 50/50.

I hope you have some success - it does seem unfair if it is postcode lottery.

Before the pads arrived I did have to buy some - I found Morrisons own brand quite reasonable and effective.

Good luck!

Best wishes.

It is post code lottery I am afraid. I can't get them on the NHS because I am not incontinent enough! But I am still working full time so the cost isn't an issue for me. I had a month or so about 5 months post surgery free of the things but then had radiotherapy which for what ever reason gave me a slight incontinence problem, just the odd drip when I cough and sometime when I am tired. I have been wearing a single very light pad every day for the past 18 months or so. I too used the Abriman level 2 or 3 after surgery then when It came back after RT I started using a very light weight brand called Attends for men (number 1) these are only 3 mm thick and work very well. I buy them in bulk from Incontinence Choice.

I started getting mine about 2/months post op. I was referred by my GP to the incontinence clinic! When I needed my 2nd lot, I rang the given number and was sent 18 packs 14, no questions asked.

Paul

I must be in the lucky camp, 2 months or so post op, I took delivery of pads, I get a delivery every 3 months..its very welcome

I saw my local district nurse recently to change my order as I just needed a smaller pad, that was no problem, cant understand why theres a postcode lottery, were all adults and been paying tax for many years I expect, surely were entitled to this, you dont have to look to far to find examples of NHS waste, i.e. free treatment for some who've contributed zero to the UK for starters !

consider complaining to your local MP, as they now want our votes, they may actually listen, they need reminding some of us have been faithfull taxpayers for 30- 40-50+ years etc.

you can email most of them directly, just include your name and address so they know your a constituant.....good luck

Edited by member 26 Mar 2015 at 15:33  | Reason: Not specified

My husband was not allowed any and our Dr agreed that it wasn't fair. We ordered them from a website in bulk. One year on he only wears one if we are going out for a long time and not sure where toilets are. He had his one year check yesterday and psa was what it should be.

Ask to be referred to The Continence Clinic, then if your area has such a clinic, that is the source of pads after their continence leaflet checks, one rights down how wet / damp they are. (Bedfordshire/Hertfordshire and Essex are good) So yes it is a postcode problem but persevere.

Chris.

Last week I finally received my pads on NHS over 6 months after my operation.

I had a appointment to see the incontinence nurse or should I say incompetent nurse  who took an hour  to explain why you become incontinent after the operation . All information I already knew and could have done in 5 minutes if I was indirect.

She arranged a home visit and after 5 telephone calls explaining how to get 500 yards from my home to our house, I eventually called the PALS complaint service. 

I have now received an official apology saying I should have received them with in days of the operation.

So can I congratulate BUCKS HEALTH CARE THRUST on a 7 star foul up.

BUT ANY ONE LIVING IN BUCKS YOU SHOULD NOW GET YOUR PADS WHEN YOU NEED THEM>

Need to persist it should not matter where you live every one should be treated fairly.

Not sure what arrangements your local area has, but when I was out of hospital and needed shed loads of pads, conveens, I was able to order online via Charter in Peterborough. I had to give them my details and I just ordered what I needed as and when. This was on prescription.

hth

dave