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Will waiting cause further problems?

User
Posted 09 Apr 2015 at 21:22
Following my last conversation about my diagnosis and treatment plan I have been frustrated by the slow and un informative nhs system that seemed to be going full steam ahead and now is moving at a snails pace...

The problems started when I was informed by my specialist urology nurse that they have been waiting for me to have a flow test and scan on my bladder, it was news to me and since I have had at least four visits to the clinics since being diagnosed nobody has said that this was necessary. When I was given my results in February and informed that I had PC I was told by the understudy of the urologist that he would do a TURP procedure if I wanted it.. Since then I have told the urology nurse that yes I wanted this done before I started my RT. The RT oncology specialist consultant had told me that she would start RT three months after my Hormone therapy began, ie 5th February so RT to start 5may.

On 25 March I had flow test and bladder scan, specialist nuse confirmed I would need TURP and would get me on the list of one of the surgeons. I duly waited just over a week and no appointment so phoned the secretary of surgeons and told was not on a list but would put me on the consultant urologists clinic as he would have to see me first before deciding if he will do the op.. Finally yesterday I called the secretary again who said I was on his clinic list for the 21april.

My problem with this is I am sure it will be another couple of weeks at least before any procedure is carried out, if I am lucky, and I have been told that I will need at least 2 months before being able to start RT, so with this delay it will make the potential start date for my RT sometime mid July.

Question... Will this delay create any problems for me, will the PC be any harder to get rid of or am I worrying needlessly?

I know that the success rate with PC is very good but I do not want to be told at a later date that if it had been treated earlier I would have had a better chance of beating it and the thoughts are there in my mind that the sooner something is done the better.

Big lot of story for small problem I know, but no one can help unless they know the facts.

Thanks in advance

Woody

User
Posted 09 Apr 2015 at 23:18

Woody Im sure more knowledgeable people will comment but I believe research suggests 6 months on HT prior to RT is the preferred timescale. So I don't think the delay will compromise your treatment

Bri

User
Posted 10 Apr 2015 at 00:09

Hi Woody,
there has been loads of research on this recently in the UK and overseas and all the indicators are that the longer you are on HT before the RT starts, the better. Many oncologists now have 6 months HT before RT as standard practice but some even go as far as 9 months.

I think it is more important to get your waterworks as fit as possible before you have the RT as this will help reduce any side effects down the line.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 10 Apr 2015 at 16:08
Hi Woody

I started HT in the January, had a TURP in June followed by RT starting in the October whilst continuing HT, the timings all seemed to work for me.

Arthur

Edited by member 10 Apr 2015 at 16:08  | Reason: Not specified

User
Posted 10 Apr 2015 at 18:37

I have heard the same as Lyn and a longer delay between HT and RT is better.

 

My OH started on HT in the Jan and RT in the August.

 

No need to worry about this aspect for now.(enough else to contend with!)

 

Alison

 

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User
Posted 09 Apr 2015 at 23:18

Woody Im sure more knowledgeable people will comment but I believe research suggests 6 months on HT prior to RT is the preferred timescale. So I don't think the delay will compromise your treatment

Bri

User
Posted 10 Apr 2015 at 00:09

Hi Woody,
there has been loads of research on this recently in the UK and overseas and all the indicators are that the longer you are on HT before the RT starts, the better. Many oncologists now have 6 months HT before RT as standard practice but some even go as far as 9 months.

I think it is more important to get your waterworks as fit as possible before you have the RT as this will help reduce any side effects down the line.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 10 Apr 2015 at 16:08
Hi Woody

I started HT in the January, had a TURP in June followed by RT starting in the October whilst continuing HT, the timings all seemed to work for me.

Arthur

Edited by member 10 Apr 2015 at 16:08  | Reason: Not specified

User
Posted 10 Apr 2015 at 18:37

I have heard the same as Lyn and a longer delay between HT and RT is better.

 

My OH started on HT in the Jan and RT in the August.

 

No need to worry about this aspect for now.(enough else to contend with!)

 

Alison

 

User
Posted 11 Apr 2015 at 07:52
Thanks to everyone for all the positive comments I have less to worry me now, at least the daft thoughts can be put to bed and I can continue with good ones.

What would folk do if there was no web sites to get information from and community chat pages to get support?

Cheers all Woody

Edited by member 11 Apr 2015 at 07:52  | Reason: Not specified

 
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