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Life without your prostate

User
Posted 13 Apr 2015 at 08:33

Morning lads,

 

I got diagnosed with prostate cancer about 4 weeks ago and am having it removed next week.

I have read all the information but can anyone who has been through it throw some actual light on life without it, e.g.bladder control, sex life that sort or stuff ?

 

Thanks 

 

Beebop

User
Posted 13 Apr 2015 at 10:12
Beebop (love the handle my nephew is a professional jazz musician)

Your first post is from a ladette albeit a bit of an older one!??!!, you will find that ladies often have a lot to say on this forum. Clearly we can't provide personal experience on the cancer but we do contribute to the debates on the topics you have mentioned if we can!

There are a whole group of people currently posting about surgery and beyond so I imagine you will get lots of replies. I have posted just to say hi and welcome and also to keep your thread high up on the board. Sometimes on a monday there is a bit of a fluffy moment when moderators release new threads and they somehow drop down the list without being seen.

I will check again later to see that you are getting responses.

xx

Mo

User
Posted 13 Apr 2015 at 12:35

Thanks Mo

I'm new to this so really appreciate any conversation, support, whatever.

Again Thanks

George

 

User
Posted 13 Apr 2015 at 13:21

George

I had the Da Vinci op in April 2014. I consider myself one of the luckier ones on here, only 4 days of incontinence post catheter removal, some have done better a lot have been a lot worse. Sex life wonderful, orgasms out of this world. Despite being told my nerves were not spared 11 months there are things happening. Ed recovery is often quoted as up to two years, one of our member's OH was three years. I have had on going issues with bladder neck strictures and two further minor ops, but touch wood it may be resolving itself. 12 months PSA  blood test and review next week so far always been 0.03. Histology had positive margins but so far results have been okay. 

Make sure you are doing your pelvic floor exercises before and after your op but not when the catheter is in. When the nurse takes the catheter out make sure the catheter comes out nice and easy no yanking it out.

Avoid constipation and no straining when passing motions post op.

If I could turn the clock back would I have it done again ? Without doubt yes.

What sort of op are you having ?

Good luck for next week.

Thanks Chris

 

 

       

User
Posted 13 Apr 2015 at 13:35

Hi Chris,

 

Thanks for the reply, I am having the Da Vinci op, consultant [name removed] at the Freeman in Newcastle.

Have been doing the exercises since diagnosis (4 weeks) trying for 4 times a day, when I can bloody remember !.

Thats great advice, thanks again good luck to you mate, and I will keep posting

George

Edited by moderator 13 Apr 2015 at 22:02  | Reason: Not specified

User
Posted 13 Apr 2015 at 14:18

Hi George,

Best wishes on your forthcoming op from me too. A small point. There are not many rules on this forum but one of them is that you must not directly name consultants though you can give the name of a hospital or treatment centre. In view of this perhaps best if you use the edit facility to delete the name you mentioned, like this.

Edited by member 13 Apr 2015 at 14:19  | Reason: Not specified

Barry
User
Posted 13 Apr 2015 at 17:15

Thanks for that Barry, like I said brand new, so a few "settling in" issues.

 

Can you please advise on how I can edit that previous message ?

 

Thanks again

George

 

 

 

User
Posted 13 Apr 2015 at 17:39
George me again, said I would pop back!

to edit go to the post you want to change (you can only do your own or a moderator can do it) click or tap on the little icon on the right that looks like a pencil ...wait a few seconds and the text format of your post will appear, go in and make your changes and then click or tap on the save button at the bottom of the frame. you will only see the pencil if you are allowed to edit.

The other icons on the right of posts are a little thumbs up which can be used to thank someone for posting,this is an open icon and anyone can use it, a cross which will delete the post this is only open for you or a moderator to do and will only appear on your own posts, an excalamation mark which comes up on other peoples posts means you are reporting the post to the moderators, if you use this you will get a little text box pop up asking why and getting you to confirm it. Lots of people have hit that one by mistake when their computer screen moves up quicker than the cursor, but as I say you have to do several more things to make it take effect so pretty safe. The sort of thing you would report is if something was clearly wrong in content or you suspected somebody being on the site without good reason or being malicious (trolling)

I have only had to do that once and I suspect it is rarely used as we all try to resolve any little issues we might have amicably and openly.

The quotes icon " can be used if you want to quote from a post .. probably best to wait to see what that looks like before you try it.

There is another one but without exiting this and going to look I can't remember what it is ..

If you position your cursor or hold a stylus tapper over those icons without actually clicking or tapping a small text box will tell you what each of them are. Edit, delete, thank, quote the one I cannot remember and report.

If you get stuck with posting just ask there is always someone ready and willing to advise you. I hope this makes sense I would never have been a teacher!!

Good luck

xx

Mo

Edited by member 13 Apr 2015 at 17:47  | Reason: Not specified

User
Posted 13 Apr 2015 at 18:40

Hi 

looking at your stats you are similar to me though percentages a bit lower.

i was diagnosed in sept 2013. first 4 weeks devastating, especially like you as i consider myself quite fit. go to gym and swim 2/3 times a week and did a physical job. no symptoms and no family history!! luckily caught early.

everyone is different here so recovery can vary.

started pfes quite early which i recommend.

after getting my head round it all and realising that things werent as bad as they could have been, i got really positive. went to gym 4 times a week after my surgeon said treat like a boxing match. the fitter you are the easier to recover. as i love going to the gym i didnt need any pushing. his advice did work!!

had op late oct same year. op went well. went to christies and picked experienced surgeon.first 2 weeks used about 2/3 large pads per day. then big improvement and went on one small pad each day for 3 weeks. then about 2 weeks later realised didnt need any pads at all. what a great feeling!! i am 99% dry and do not need pads at all. there is occasionally a small dribble but it is very small.

ed is still a problem though.

in myself i feel fine. i go to the gym on a regular basis. i still do physical work but nothing too heavy.

my psa is undetectable.

i hope the op goes well. the first few weeks be patient and rest. dont do too much. 

i dreaded the catheter more than the op but i lived with it for 10 days. i was a real wuss about it coming out but it took one second and wasnt painful.

 

keep in touch and dont be afraid to ask any questions. this forum was a great benefit to me. have you found alocal support group? i did and talking to others is a big help

User
Posted 13 Apr 2015 at 18:43

i forgot to say i had a da vinci op. hardly any scars and very little pain. just getting up out of bed was a bit sore but alot better than i expected.

User
Posted 13 Apr 2015 at 21:54

Hi George

Click on my name and you can read my profile

Bri

Edited by member 13 Apr 2015 at 22:37  | Reason: Not specified

User
Posted 14 Apr 2015 at 06:03

Hi George, my OH had his prostate removed six weeks ago. He is absolutely fine. Click on my name at bottom of photo to read his profile also. Cheers Georgina

User
Posted 14 Apr 2015 at 12:28

Thanks Mo,

 

It was sorted before I got the chance, everyone is very helpful !

 

George

User
Posted 14 Apr 2015 at 12:31

Thanks Georgina,

 

Good luck to Erwell. I will have to get my OH up to speed on all the technical terms !

 

George

User
Posted 14 Apr 2015 at 12:39

Hi Bri,

 

Some tale that (my type of humour) , I am going to have read up a LOT more. Thanks mate I will let you know how Monday goes

George 

User
Posted 14 Apr 2015 at 12:43

Hi John,

 

Thanks for that. being very positive about it (as is OH) it is what it is, take it on the chin and respond to the challenge.

 

will keep you posted about Monday.

 

George

User
Posted 14 Apr 2015 at 16:43

Hi George,

All good above and views given above, including that despite the fact that all men start out with basically the same bits being removed their recovery is as individual as they are.

Having made your treatment decision, have you prepared your overnight bag for the hospital?

Being fit will help you. However your waistline is likely to expand significantly in the short term post op. This is due to the fact that they pump the belly full of gas to allow the robot do it's thing. So have a pair of elasticated pants so that you are able to dress and be comfortable.

In reply to your questions regarding sex life and bladder control, some men get urinary control back anywhere from immediately to after a few weeks or months to not much control at all. Similarly with EF, some recover quickly, others more slowly. You will recover at your own rate. The best thing is to be patient, don't give up hope, and allow yourself up to 2 years at least for recovery

dave

Edited by member 15 Apr 2015 at 08:00  | Reason: Not specified

User
Posted 15 Apr 2015 at 12:34

Thanks Dave,

 

That is great advice, will take heed, taking on board all advice.

 

Just read your bio about your post op ED efforts being solo ! brilliant ! take it your not a good catholic boy ! lol

Will keep in touch from Monday.

Good luck 

George

 

 

User
Posted 15 Apr 2015 at 12:47

Hi Rivertweed ?

 

More great advice and good news about your PSA, brilliant.

What is penile rehabilitation ?

With regard to peeing, is it a case of little or no control before you get to the toilet and having to use PF muscles to contain ?

what exactly happens ?

Will let you know post Monday 

Thanks again

George

 

 

User
Posted 15 Apr 2015 at 15:16

Nearly 53 weeks post di Vinci op and I'm so close to being dry, I can almost touch it! The little stick is beginning to respond to Sidenafil, but nothing happens without physical stimulus. I'm hoping for significant improvement in the next 12 months. I exercise it regularly with a pump.

I'm enjoying life more than ever, played my best ever round of golf last week, and have much to look forward to. I feel blessed and so fortunate my PCa was discovered early.

Paul

Stay Calm And Carry On.
User
Posted 15 Apr 2015 at 17:47

Hi Paul,

 

Great to hear, so much to be positive about.

Will get over the da vinci op, follow "the doctors orders" and the OH, tackle the incontinence then think about young John Thomas.

He's had a decent run, but everybody loves an old timer coming back. Fingers crossed. Will look at all advice.

Thanks & Good luck

George

 

 

 

 
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