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Post Diagnosis - The Next Chapter

User
Posted 12 Sep 2015 at 15:52

Thanks Very Much Chris. I'll keep in touch.

User
Posted 12 Sep 2015 at 19:42

Good evening Cobbles

All the very best this week I'm absolutely sure all will be well. It's all quite normal to be feeling apprehensive, its just under a year ago that I was in a very similar position to you having to make the choice between the operation or the alternatives. I had no problem with my decision and have never looked back. Sit back, relax and leave the professionals to look after you, take your time getting up and about afterwards, enjoy a bit of pampering I'm sure you deserve it.

User
Posted 12 Sep 2015 at 21:18
Hi Cobbles

Having been where you are now I know exactly how you will be feeling.

I wish you all the very best on Tuesday.

Be strong - you can do it!

I will look out to see how you are getting on.

Kind regards.

User
Posted 12 Sep 2015 at 23:02

Hi Rivertweed and Trevor

Thank you both very much. Your support and encouraging words are much appreciated.

I will be strong and I will leave the professionals to look after me.

Thanks Again,

Cobbles

User
Posted 13 Sep 2015 at 10:36

Cobbles,

I had my DV op at the end of April earlier this year.

I consider my self lucky that it was an option available to me.

No incontinence issues at all from the catheter removal.

Managed to spare the nerves on one side, Ed is an issue but to be expected, making progress after some regression!

Sincerely wishing you all the very best and look forward to hearing that all went well etc

Pablo

User
Posted 13 Sep 2015 at 11:02

Nearly six months since my op and I can say that there is a good quality of life after. I have no real problems with incontinence except the occasional, rare little leak. I am more or less back to how I was pre op. I am due my second PSA next week, the first being unrecordable.

All the best for Tuesday.

THE CHILD HAS GROWN, THE DREAM HAS GONE
User
Posted 13 Sep 2015 at 11:20

Hi Pablo and Paul

Your reassuring posts give me extra and welcome confidence so "Thank You".

I won't get over confident though !

Good luck with the next PSA test Paul.

Thank You both again. I'll be back with the post op news.

Cobbles

User
Posted 13 Sep 2015 at 14:33
Cobbles

All the very best for Tuesday, you will be in my thoughts.

Xx

Mo

User
Posted 13 Sep 2015 at 15:22

Hello again Mo, Thank You very much.

You were one of the first to respond to me when I started my posts and I've always been grateful for the support and advice you have given me.

Thanks again and I'll keep in touch.

Cobbles xx

User
Posted 14 Sep 2015 at 20:38

Well by this time tomorrow it should all be over and you will be on the road to recovery. I hope its not a long one and most importantly it all goes well for you. I wish the you all the very best.


User
Posted 14 Sep 2015 at 21:15

Thank you Dick, Much Appreciated.
Time for me to turn in and prepare for tomorrow.
I'll be back !

User
Posted 21 Sep 2015 at 17:37

As promised, I'm back following my meeting with DaVinci. The op took place a week ago tomorrow and I arrived back home last Friday afternoon, so here I am 3 days later quite honestly feeling that I've not been through what I obviously have been through.  Not without a few hiccups of course but I'll come to them in a minute but in the hope that my experience might be useful to someone else choosing the path I chose, I'll bring you up to date with my journey.

All went as planned last Tuesday - the op day - and having arrived at the hospital early, as you do, I wasn't kept hanging around to my allotted time, the wonderful medics started preparing me straight away, the only blip being that having the op in a different area to mine, they couldn't find the documents that had been faxed over by my hospital. This was soon resolved thank goodness and everything went ahead as planned.

After the op, on waking up and finding myself on my way back to the ward, I couldn't believe how well, although a little groggy, I felt.Then of course I became aware of the "dreaded catheter" ! That said I always knew it would be there and put up with it I must.

To be honest, over the next couple of days, the catheter and the shoulder pain from the gas plus constipation were the 3 things that caused the earlier mentioned "hiccups". Thanks to the help of pain killers and laxatives and teeth gritting, all three became manageable.The shoulder pains had reduced by the end of Thursday, with occasional reminders BUT constipation remained the biggest villain.I had been told I could go home on the Thursday if I'd wanted but I decided against it hoping that by Friday, the problem would have been dealt with. It well and truly was ! From about 6 a.m., things began to happen and continued at regular intervals throughout the morning, so much so that I was terrified of getting into the car for the one and a half hour journey home until I was absolutely sure I could make it and eventually left the hospital at around 1pm. At the same time, I remembered well Dick B's wonderful description of his journey home ,which resulted in finding a convenient farmyard to empty his catheter bag. Knowing there was no such safe haven on my journey we attached a night bag for the journey as a safety measure and it worked a treat.

Since being home all is going ok and once again the only hiccup has been the catheter, which tends to overflow at times when there's a visit to the loo to deal with bowels. Fortunately not every time but being a bit concerned I contacted my hospital urology nurse who told me that is a number 1 complaint with many patients and is quite normal, although annoying. It's being removed a week today -Yes !

So there we have it and here I am. Once again I'd like to thank you all for your kind messages of support and invaluable advice, particularly the advice from those of you who have also met up with DaVinci - your experiences have helped me enormously in dealing with the op and aftermath. I've no regrets choosing DaVinci and I feel very lucky and fortunate as I know many don't have that choice and opportunity. I've also learnt that a  little snooze and rest each day, something I've never done before, are a great help.

Thank You All Again, Keep Well, I'll keep you posted.

Cobbles

  

User
Posted 21 Sep 2015 at 17:46
Well done Cobbles!

You are on the road to recovery - wishing you all the best.

Keep strong!

User
Posted 21 Sep 2015 at 17:59

Thank you rivertweed and for all your earlier support too.
I will keep strong.

User
Posted 21 Sep 2015 at 17:59
Hi Cobbles

Glad to hear that you're back home and upbeat and positive.

Best wishes for a speedy recovery

Arthur

User
Posted 21 Sep 2015 at 18:28

We all knew you would do it tough-guy . Easy isn't it ........ ?? Well very well done and glad to hear you seem to be doing really really well , and you have 22 years on me ! I remember clearly big catheter moments whilst having a No2 in hospital. Leaks and blood etc everywhere . Quite frightening yeh . All the best and a few of us have very fresh memories , so ask away .
Chris

User
Posted 21 Sep 2015 at 18:32

Thank You Arthur, Much Appreciated.

User
Posted 21 Sep 2015 at 18:35

Chris, again Thank You to you too. Your support, given your own difficult ups and downs, has always been there and you know I appreciate it.

Easy ? Let's just say, once is enough !

Take Care

 

 

 

 

 

User
Posted 21 Sep 2015 at 18:39

Well done Cobbles and welcome home.

Wishing you a speedy recovery from the intrusions of Mr DaVinci

We can't control the winds - but we can adjust our sails
User
Posted 21 Sep 2015 at 18:55
Pleased to read this Cobbles. My friend had this op last Thursday, lasted 4.5 hours and sent home the next day, pretty horrific in my opinion as it took around two hours to get home.

Hoping he does as well as you seem to be though.

All the best

Allison

User
Posted 21 Sep 2015 at 19:18

Thank You Superwoman Sandra xx

User
Posted 21 Sep 2015 at 19:32

Allison, I can't believe your friend was sent home so soon ! I agree it's pretty horrific, not sure I could have done that. Anyway the op is over and he's at home and hopefully with the necessary tlc, which I'm sure he'll get, he'll be fine. One day at a time, keep drinking water, plenty of rest, no straining in the loo - keep taking the tablets ( Dulculax are helping me ), a short walk when he's feeling up to that, each day, and if worried about anything get on to the medics. As you know there's plenty of help and support here too, just ask any of the guys who've experienced it. If you want to private message me about anything please do and if I can help I will.

I wish him and yourself well and Thank You for your good wishes. Keep us all in touch with his progress.

Cobbles

 

User
Posted 21 Sep 2015 at 20:44
Cobbles

bravo!! you are through the first hurdle and now on the road to recovery.

So pleased to hear everything went so well.

keep in touch to let us know how your recovery is going.

xx

Mo

User
Posted 21 Sep 2015 at 23:06

Cobbles,

All sounding good. Re the catheter leakage during bowel movements. I was advised to put my feet on a small stool thus raising my knees up. It didn't totally alleviate it but it did seem to make it easier and caused less bowel straining.

Hope all continues to go well. 

 

Paul

THE CHILD HAS GROWN, THE DREAM HAS GONE
User
Posted 22 Sep 2015 at 09:32

Thank You Dear Mo.

Yep first hurdle over. Recovery so far so good.

I will keep you updated xx

User
Posted 22 Sep 2015 at 09:34

Thanks Paul and Thank You for the tip too.

User
Posted 22 Sep 2015 at 09:43

Thanks Paul and Thank You for the tip too.

User
Posted 22 Sep 2015 at 11:00

Cobbles,

How good to hear about the next step in your journey, thanks for sharing! It's a cakewalk really!

Re taking a kip, just listen to your body, I'm nearly 5 months post DV op and still having a kip in the afternoons!

Pablo

User
Posted 22 Sep 2015 at 11:41

Hi again Pablo,

Thanks so much. Yeh looks like I could get into this afternoon doze thing too - something I used to laugh at my Mum and Dad doing when I was a kid ! What comes around - goes around.

Take Care Pablo

User
Posted 23 Sep 2015 at 07:23

Mr Da Vinci has a lot to answer for when you are feeling a bit sore and fed up in the first few days but once the original plumbing is restored you will move on in leaps and bounds. Gentle excercise, loads of naps and snoozes, the right sort of food and hopefully you will be feeling more like your old self soon. So pleased it all went well for you. I for one, took huge comfort from other people's posts on here about their experiences and tips for dealing with the minor problems that come up on the road to recovery. My fingers are crossed for you!

User
Posted 23 Sep 2015 at 09:04

Thanks as always Dick . Mr DaVinci does indeed have a lot to answer for but we couldn't have done without him so I guess he's forgiven. As you pointed out a while ago, I was the next one to follow you and your experience and support have been invaluable in seeing me through. I keep a close on your recovery along with those whose ops were further down the line. I certainly know where to come for help if needed.
Update on my recovery : All going well.

User
Posted 28 Sep 2015 at 12:48

Having laid low for a few days to concentrate on recovery, today was C Day when the catheter was removed !! Bliss !!

Very lucky, as on arriving early for 9am appointment, I was seen straight away by the nurse who did the deed . Not painful. Uncomfortable - yes, but over in no time at all. Having been warned I could be there for a few hours as I'd need to wait to see the Urology Specialist Nurse as well as produce enough of a sample to allow me to go home, again luck was on my side and both happened very quickly. Left the hospital at 10am. Since when, yes the forewarned occasional "overflow" has happened and continues to do so from time to time - particularly when standing up , but thanks to being well padded, with a few occasional changes of pads required, all seems fine otherwise. I can live with that. On the subject of pads, I'm sure everyone has their own favourites but I can recommend Hartmanns Molimed Premium for Men. They were given me ( 1 pack ) by the hospital but can be accessed online. They give more coverage than your Tena's, BUT are more expensive to buy.

I also have leg bags and night bags that are now surplus to requirement so if anyone out there would like these, please send me a private message and I'll be glad to send them on

My next appointment with my Consultant is a week this Thursday - October 8th, when I will also get my results ! So fingers etc. remain crossed. I'll also have an appointment with The Bowel and Bladder Clinic to make sure I'm doing my PFE's correctly and to keep an eye on things in general.

Otherwise the recovery continues well, although now a little apprehensive about going out too far away, not knowing how the continence issue will continue, although of course it's very early days and hopefully that will improve as time goes by. I feel very lucky to be where I am at the moment  and to have had the care and attention I've had from the marvellous NHF staff in this area.

Not forgetting the support I've had from you wonderful people out there - again Thank You All !

 

User
Posted 28 Sep 2015 at 13:02

Thanks for the update Cobbles!

Wishing you all the best for the 8th October and hope your recovery is smooth and full!

User
Posted 28 Sep 2015 at 13:13

Glad all seems to be progressing well Cobbles.

I'll wish you good luck now for the 8th October as I'll be on holiday and may not be able to access internet.

We can't control the winds - but we can adjust our sails
User
Posted 28 Sep 2015 at 14:45

Cobbles
Fantastic news for you and us . Yes the catheter coming out is a great relief if a bit queasy . I think people tend to be either virtually dry straight away or leak quite a bit to start with which soon improves . Make sure you do the PFE's . I simply do them whenever the newspaper is in front of me -- either reading or doing the cryptic . So I never forget.
Good luck on the 8th -- that's come round quickly . Best wishes
Chris

User
Posted 28 Sep 2015 at 15:25

Thank You Pablo. Sorry to read that you've been having side effect problems recently. Sincerely hope that that is resolved very soon.

Thank You Sandra. Don't worry about internet connections - just have a great holiday.

Thank You too Chris. I'm a bit tender for PFE's at the moment but will start them up as soon as I can. As to staying dry, if it gets no worse than it is at the moment and then improves, I'm on a winner.

 

User
Posted 28 Sep 2015 at 15:53
It all sounds very positive, long may it continue

Best wishes, Arthur

User
Posted 28 Sep 2015 at 18:39
Glad to hear the catheter is out at last. I remember that day for me back in 2012. I didn't wear the right kind of pants - loose boxers didn't hold the pad in enough. I poured like a tap and the wet pad kept falling down my leg - all very embarrassing in front of all the others in the waiting room! However, I have a good laugh about this now.

Wishing you all the best on 8 October.

User
Posted 28 Sep 2015 at 23:17

It is wonderful when that catheter is removed although a little scary. I was peeing like a trumpton fire engine out of control at first but things have settled down now and some days I don't pad up at all. Hope all goes well with your results. I am just awaiting the results of my second post op PSA. It's a little worrying but I can live with that.

THE CHILD HAS GROWN, THE DREAM HAS GONE
User
Posted 29 Sep 2015 at 09:29

Arthur, rivertweed and Paul,
Thank you all very much.
Yeh what a relief to be rid of the catheter ! An interesting day yesterday, to use Dick B's expression, there were lots of "Ooops" and changing of pads throughout the day, I did manage a walk into town for a coffee and sat outside in the beautiful sunshine though and remained reasonably dry until I got home .A bit of pain every so often when peeing but I gather that's normal and fortunately hasn't happened much. Although sleep was interrupted a few times during the night, I woke each time feeling I needed to pee - which was welcome, rather than it happening without warning ! Therefore I got to the loo before the pee got to the pad, so I remained dry in that respect all night. We'll see what today brings.

Thanks again all.

User
Posted 29 Sep 2015 at 09:31

PS Sorry Paul I meant to say Good Luck with the PSA results. Fingers crossed !

User
Posted 29 Sep 2015 at 14:58
Hi Cobbles

Catheter gone pads to the rescue!

The leaks amd accidental spurts can go on for some time. Knowing where there are loos if you are on a journey or just a short trip out can be a godsend. The majority of the pads hold a huge amount of fluid without leakage, even one of Paul's trumpton fire engine ones should be contained!

Any transition from prone to upright, coughing, sneezing ,laughing or passing wind can set the spurts off.

PFEs don't help some folk, to do any good at all they have to be done properly and regularly.

Good luck at your review I am also going to be on the road so will only read how you get on a few days later.

Xxx

Mo

User
Posted 29 Sep 2015 at 20:05

Hi Mo
Thank you for your post with the valuable info. You do wonder just how much the pads can take, I'm probably changing them too often as "a just in case" but today's numbers are far less than yesterdays .Pleased to say I'm quite ok with it all mentally - it's what has to be done and a great improvement on the catheter.
Hope you have a good road trip Mo, the result's will be waiting for you.xxx

 
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