Hi Geoff, I was dx gleeson 9 last November , I have been on biclutamide since plus zoladex 3 monthly implant, 5 sessions of chemo so far, 1 to go and then 6 weeks of radiotherapy. I can honestly say with all that lot I have had no major symptoms of anything, I have run 2 marathons in the last two weeks and generally have had a bit of feeling sick, dodgy nails, less taste after chemo, a bit more tired but that is about it physically. I would also say that most of that is due to chemo rather than biclutamide.
You will find out more tomorrow but I just wanted to say that not everyone has side effects so please don't worry about anything like that at this stage. In the early stages I worried myself into believing that any ache or pain was all cancer related and forgot that I never felt 100% all the time before anyway.
All I have had is the dark thoughts about my situation, they have not run away with me but are balanced logical thoughts, they are totally natural and don't be afraid to share any thoughts you have rational or irrational on this site as it is a great comfort to share.
All the best for tomorrow
Kev
Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019 |
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Hi,
Just wanted to wish you well.
A difficult time but you may feel better when you have all the information about your condition. Not knowing can be more worrying.
Best wishes,
Steve
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thank to all of you nice people for your surport I am now on my way for my results will let you know how I get on thanks again from the bottom of my hearthttp://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-embarassed.gif
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Hello Geoffrey and a belated welcome.
Just to say good luck for today's results.
Come back here to ask anything you want. Somebody is bound to have experience and will be able to answer you
Best Wishes
Sandra
We can't control the winds - but we can adjust our sails |
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hi Geoff here back from hospital got results of bone scan and mri scan spoke to consultant he said it was a fast growing cancer
but the good news is he could only see from the bone scan a dark shadow on my spine?? and now I have got to have a mri scan again in more detail to see. have asked if I could have the stampede tail but he said I can only have it if the cancer have not gone to far? so back for more results p.s. could have been worse I think ?? hope to speek to you all soon keep your heads up that's all we can do and remember its a great day today and worry about tomorrow when it gets here
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Good for you Geoffrey for your positive reaction.
You'll know if you've read any of the profiles (click on the person's name and their profile comes up) that many members are in your situation and lead full and active lives, despite their treatment and side effects.
Good luck (again!!) with the next MRI scan
Yes, it could have been a lot worse - you're still here to tell your tale - and you will be for a long while yet !!!!
We can't control the winds - but we can adjust our sails |
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Hi Geoff
Gleason 9s always have to be treated with great respect so pleased that your consultant is taking good care of you. You neve em ow that shadow could turn out to be an old injury, I've got everything crossed for you.
Lots of love
Allison
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thanks again for all your love and hope . iam not a man that says much and this is the first time I have ever joined a group like this but its nice to know you are not alone thanks
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Hi Geoff, sorry you share G9 with me.
You will have loads of thoughts and questions that come into your head, my advice is write them down and ask your consultant every one no matter how off the wall it is and write down what he says so you can digest again later. Then any that you are unsure of ask on this forum as between us we have heard most things so collectively we should be able to reassure (or not) that the way ahead seems normal. You may also get further questions to ask the consultant next time.
I like you was never a member of any forum before but this has been an excellent release and platform to hear others situations and learn about what may or may it be to come.
Take care, Kev
Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019 |
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thanks kev for you suport
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hi every one have been very quite for some time so just to update things have moved on been on bicalutamide for the last four weeks but should have only been on them for two weeks?? thats down to my gp have been to the consultant and have been put forward for the stampede trail but have a problem as my blood pressuer is to high?? so hope fully it will come down so I can enter the trial. to day have had my first HLRH ANALOGUE INJECTION, so now I have to wait to see if I can go into the trail hopefully yes hope you are all doing well thanks and speek soon geoff
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for got to say that the shadows they found on my spin was cancer ?? that's my luck
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Ah Geoff, sorry for your last comment. Life ain't fair is it?
Glad you are still posting though.
I cannot comment (as usual) regarding the treatment as I don't know anything about it but I'm sure others will be able to.
Best wishes
Sandra
We can't control the winds - but we can adjust our sails |
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Geoff
My OH's Bp was too high for the trial, but after Bp tablets it came down and he was able to take part.
I hope that the same goes for you as it is well worth getting onto stampede.
Best wishes
Alison
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thanks and I hope you are right and thanks Sandra xx
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thanks Alison for your reply nice to get some pos feedback