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TURP coming up!

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User
Posted 12 May 2015 at 09:04
Hi all, I was diagnosed PC in February this year and have been on HT for the last three months with the requirement of needing a TURP procedure in the very forthcoming future, no date but on the surgeons list to be done asap, has anyone else had this small op and if so does it impact or affect your life at all ie how long recovery to be able to get back to work or any problems while recovering?
It is better to be informed by people that have gone through it rather than read of a general information sheet that gives a list of everything and anything that might occur (helpful but not based on having gone through it).
Once this procedure is done I will be looking forward to RT starting in 2 months, hopefully it will all be for the better!.
User
Posted 13 May 2015 at 20:29

My TURP was very low stress. The only slight downside was the hosepipe catheter that was needed (it has to have three channels so that a continuous flush can be carried out for the day or so following the operation), but it came out on the second day after the operation. I may have been very lucky, but my sphincter was as tight as a drum afterwards and the flow rate was as good as it was when I was a teenager. I was a bit sore for a few weeks afterwards and did not have to be put off by the occasional clot of stuff being passed, but I had a glorious few weeks of sheer enjoyment. As with all good things though, it had to end with the PCa diagnosis. Mine was a conventional TURP done with a hot wire. The alternative is using a green laser, apparently less of an impact because the healing time is reduced.

Tony
TURP then LRP in 2009/2010. Lots of leakage but PSA < 0.1 AMS-800 Artificial Sphincter activated 2015.
User
Posted 13 May 2015 at 20:40
Puffingbilly

My husband had this procedure about 2 years ago, he had his done under a spinal block anaesthetic, was in and out of surgery in about an hour. The catheter he had fitted was used to flush about 4 litres of saline and antibiotic soluton through. He was kept in overnight only because his surgery was done at 5pm and it took another 3 hours for the flush through to complete. He had the catheter removed next morning and was home later that day once they were happy he was urinating OK. He had high dose antibitoic tablets for a week peed a few little blood clots and some pink wee for a few days. After that he was proud to announce he was just like Tony said peeing like a teenager again.
After that he had no flow or frequency issues until the PCa really overtook events 6 months later.
xx
Mo
User
Posted 13 May 2015 at 22:34
The TURP was done very shortly after Pca ws diagnosed. It really did give a lot of relief and resolved some major issues. Unfortunately Mick's PCa was always known to be extremely aggressive and was not responsive to anything. At least the TURP relieved him of frequent night time peeing, poor to non existant flow, retention and urgency. It really was a significant factor in making his life so much better.
xx
Mo
User
Posted 14 May 2015 at 06:53
I had a TURP IN June 2013, woke up after the op as though nothing had happened. In hospital for 4 days with catheter which was blocked sometimes with clots but they soon solved that by flushing it through. Wouldn't let me home unless I could go to to toilet ok once the catheter was removed. At home peed a few clots for a day or so but otherwise ok. Fortunately no soreness, just took it easy for a few days. I'd had a catheter fitted for 6 months and this really solved my flow problem as the catheter was the only way to release to wee for me by turning on its tap!

Arthur
User
Posted 14 May 2015 at 08:46

Green light laser treatment details:

http://www.birminghamprostateclinic.co.uk/treatments/greenlight_laser.php

The glorious effect of my TURP was short-lived because, four months later, the rest of my prostate had to be removed to get shot of the prostate cancer. Upside is that worked and my PSA has been <0.1 ever since.

Edited by member 14 May 2015 at 08:47  | Reason: Not specified

Tony
TURP then LRP in 2009/2010. Lots of leakage but PSA < 0.1 AMS-800 Artificial Sphincter activated 2015.
User
Posted 22 May 2015 at 19:54

So glad to read your low PSA Chris/Woody. That must be an immense relief as must the two appointments.

It's odd the way these things work out isn't it.

Having had my husbands follow up appointments at the Royal London cancelled three times and then having to make a complaint about it I hear on the news tonight that Barts Healthcare (who is the trust for the RLH) is dreadful. I think we realise that!!

Keep that positive attitude and don't dwell too much on the hotwiring or pushy catheter, just keep focussing in the benefits.

Best Wishes
Sandra

We can't control the winds - but we can adjust our sails
User
Posted 17 Jun 2015 at 20:57
there you go Chris, sounds like a text book procedure. Hope you find things a whole lot better going forwards
xx
Mo
User
Posted 17 Jun 2015 at 21:03
Very pleased to hear it went smoothly Chris, it's something I'm sure my hubby will be have soon so reading this is very reassuring.

Cheers
Allison
User
Posted 17 Jun 2015 at 22:53
Great news Chris, and to be able to go home so soon after the op. Must be reassuring

Best wishes, Arthur
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User
Posted 13 May 2015 at 20:29

My TURP was very low stress. The only slight downside was the hosepipe catheter that was needed (it has to have three channels so that a continuous flush can be carried out for the day or so following the operation), but it came out on the second day after the operation. I may have been very lucky, but my sphincter was as tight as a drum afterwards and the flow rate was as good as it was when I was a teenager. I was a bit sore for a few weeks afterwards and did not have to be put off by the occasional clot of stuff being passed, but I had a glorious few weeks of sheer enjoyment. As with all good things though, it had to end with the PCa diagnosis. Mine was a conventional TURP done with a hot wire. The alternative is using a green laser, apparently less of an impact because the healing time is reduced.

Tony
TURP then LRP in 2009/2010. Lots of leakage but PSA < 0.1 AMS-800 Artificial Sphincter activated 2015.
User
Posted 13 May 2015 at 20:40
Puffingbilly

My husband had this procedure about 2 years ago, he had his done under a spinal block anaesthetic, was in and out of surgery in about an hour. The catheter he had fitted was used to flush about 4 litres of saline and antibiotic soluton through. He was kept in overnight only because his surgery was done at 5pm and it took another 3 hours for the flush through to complete. He had the catheter removed next morning and was home later that day once they were happy he was urinating OK. He had high dose antibitoic tablets for a week peed a few little blood clots and some pink wee for a few days. After that he was proud to announce he was just like Tony said peeing like a teenager again.
After that he had no flow or frequency issues until the PCa really overtook events 6 months later.
xx
Mo
User
Posted 13 May 2015 at 21:29
Thanks Tony, my TURP will be with the Hotwire and I am reliably informed that it will be 3/4 days in hospital and come home when catheter is out and peeing on my own. I realise that I will be very sore for a while but do not understand why it may be short lived as I was thinking that once tthe TURP has been done there would be no further problems and after 2 months radio therapy can be done and PCa hopefully eradicated..... ?

Also thanks Mo, what happened to make the TURP go downhill just because PCa had been diagnosed after 6 months?

How do you get information on the green lasering procedure? Do you think this might be better than the Hotwire procedure that seems to be standard offerings?

I now seem to be in a bit of a dilemma because I had not even heard of this laser procedure and was blissfully thinking that all was going to be ticketyboo!!

Am I wrong to think like this?
User
Posted 13 May 2015 at 22:34
The TURP was done very shortly after Pca ws diagnosed. It really did give a lot of relief and resolved some major issues. Unfortunately Mick's PCa was always known to be extremely aggressive and was not responsive to anything. At least the TURP relieved him of frequent night time peeing, poor to non existant flow, retention and urgency. It really was a significant factor in making his life so much better.
xx
Mo
User
Posted 14 May 2015 at 06:53
I had a TURP IN June 2013, woke up after the op as though nothing had happened. In hospital for 4 days with catheter which was blocked sometimes with clots but they soon solved that by flushing it through. Wouldn't let me home unless I could go to to toilet ok once the catheter was removed. At home peed a few clots for a day or so but otherwise ok. Fortunately no soreness, just took it easy for a few days. I'd had a catheter fitted for 6 months and this really solved my flow problem as the catheter was the only way to release to wee for me by turning on its tap!

Arthur
User
Posted 14 May 2015 at 08:46

Green light laser treatment details:

http://www.birminghamprostateclinic.co.uk/treatments/greenlight_laser.php

The glorious effect of my TURP was short-lived because, four months later, the rest of my prostate had to be removed to get shot of the prostate cancer. Upside is that worked and my PSA has been <0.1 ever since.

Edited by member 14 May 2015 at 08:47  | Reason: Not specified

Tony
TURP then LRP in 2009/2010. Lots of leakage but PSA < 0.1 AMS-800 Artificial Sphincter activated 2015.
User
Posted 14 May 2015 at 09:09

Thanks to you all for helping with your experiences, I feel a lot more reassure by everything that you have related and although my PC is classed as aggressive it is confined to the prostate. Let's hope that remains the same and that there are no complications with the procedures.
I will check out the green laser site to see how it works and consider it if available to me.

I think this site is a fantastic way to get first hand experience, information, different opinions and more than anything to get reassurance at a time when it is needed. Thanks to everyone that has replied and also to the team that provide and monitor it.

Chris

User
Posted 15 May 2015 at 18:26
I have spoken withmy radiologist about green light laser treatment and she said that RT can start after 2 months if I have that done and also she said that my consultant urologist does this procedure privately. As a result I have called him and left messages but so far no returned call (I thought private was quick! Can't even call me back, must have too much money!!) I just want a quote for treatment if I go down this route.

So I am no further on at present but if the price is not too high I am leaning towards the cyber knife treatment, if it is something I am unable to afford it looks like the Hotwire for me. Does anyone have any idea how much the private green light laser treatment might be?

Thanks in anticipation Chris/Woody.
User
Posted 19 May 2015 at 20:29
Well I have had a right game trying to find out how much and if a green light laser treatment can be performed on me with the out come being that a package price for it is in the ball park of £7500!!!! The consultation is extra , another £200 with no realistic chance of it being done for at least 6-8 weeks.

Looks like I am stuck with a TURP as my consultant said, through his secretary, that he did not recommend it in my circumstance ??? Whatever that meant!

The only good points from all this is that he will get me on his list sooner rather than later and I have just saved myself a lot of money that I never had in the first place. I was fortunate to have had a relation willing to lend it to me though.

I think that the laser treatment might only be suitable for folk that have an enlarged prostate and not going through cancer treatment.

Thanks to Tony anyway for suggesting that route but at least I have asked the questions and found out the price for anyone else thinking of it. I am disappointed because I really thought it would be a quicker for me to get the end product with a lot less discomfort, blood loss,time off work and no catheter but hey ho it was not meant to be.

Regards to all Chris/woody
User
Posted 22 May 2015 at 19:15
Having gone through all that this week I have just got the results of my latest blood test from 11th May and I am delighted to say the PSA score has dropped to 0.5 down from the initial test of 63 in December last year. My OH and myself are so relieved to get some good news after being on HT since Feb and things going slowly regarding my TURP.

Then blow me down with a feather I get two letters in the post today, one with pr-op appointment on 10th June and the other with a date for the TURP on 15th June.
So progress at last, I can only think that as I was pushing for private treatment with the same surgeon that he realised I wanted something done soon, if not sooner.

Can I really say that I am looking forward to having my inner sanctum probed and cut away with hotwire, catheter pushed down the end of me tadger and peeing blood for a week or so, not to mention the discomfort?

What I can say is that if this gets me flowing again and ready for the RT then it is a small price to pay for the long term gain. I feel very positive at present.

Cheers all, one happy woody
User
Posted 22 May 2015 at 19:54

So glad to read your low PSA Chris/Woody. That must be an immense relief as must the two appointments.

It's odd the way these things work out isn't it.

Having had my husbands follow up appointments at the Royal London cancelled three times and then having to make a complaint about it I hear on the news tonight that Barts Healthcare (who is the trust for the RLH) is dreadful. I think we realise that!!

Keep that positive attitude and don't dwell too much on the hotwiring or pushy catheter, just keep focussing in the benefits.

Best Wishes
Sandra

We can't control the winds - but we can adjust our sails
User
Posted 17 Jun 2015 at 20:31

Well Monday came and was at the hospital for 7.30 am, got checked in and told that I would be first on the list. By 9.30 the whole procedure had been completed using the Hotwire, I watched it all on a screen as my prostate was rebored as I had a spinal anasthetic. No problems whatsoever, no pain or discomfort.
Returned to the ward by 10-00 am with a hefty catheter inserted and spent the day taking it easy, by 2.00pm next day I had catheter removed and was told I could go home once I had peed twice and my bladder was less than 200 Mls full. Left hospital at 5.00pm.

Very good experience overall considering I was dreading it.. And was told it would be 3-5 days in hospital so being home within 2 days was great.

Have rested generally and cannot drive for 2 weeks, weeing a bit of light blood which will happen for a couple of weeks so is expected.

Have RT planning for 20 July and start RT on 3 Aug.. Progress at last.

User
Posted 17 Jun 2015 at 20:57
there you go Chris, sounds like a text book procedure. Hope you find things a whole lot better going forwards
xx
Mo
User
Posted 17 Jun 2015 at 21:02

Thanks Mo, sounds like my procedure was similar to your OH's with no problems.

Thanks for your thoughts

Chris/woody

User
Posted 17 Jun 2015 at 21:02
.

Edited by member 17 Jun 2015 at 21:07  | Reason: Not specified

User
Posted 17 Jun 2015 at 21:03
Very pleased to hear it went smoothly Chris, it's something I'm sure my hubby will be have soon so reading this is very reassuring.

Cheers
Allison
User
Posted 17 Jun 2015 at 22:53
Great news Chris, and to be able to go home so soon after the op. Must be reassuring

Best wishes, Arthur
 
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