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Chris J's Journey

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User
Posted 01 Mar 2017 at 16:15
Great news - well done!!
User
Posted 01 Mar 2017 at 16:50
Great news Chris, it sometimes pays to persevere. Now it's time to see where the little bug***s are hiding.

Roy

User
Posted 01 Mar 2017 at 17:46

Chris

Nice one - fingers crossed the winning run continues.

Ray

User
Posted 01 Mar 2017 at 19:01

Great news Chris.

I'm so pleased you got it sorted

We can't control the winds - but we can adjust our sails
User
Posted 01 Mar 2017 at 22:19
Brilliant news Chris that's one in the eye for when the computer says No .

You are a trailblazer fighting the system and getting what hopefully one day will be routine for all. Well done .

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 02 Mar 2017 at 01:23
Well done, Chris.

Hope everything goes well for you.

Steve

User
Posted 02 Mar 2017 at 08:08

Excellent outcome

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 19 Mar 2017 at 13:31

PSMA scan set for 18th April at UCLH. I'm having to go alone as El needs to look after our disabled son at home. Even worse it's her 50th birthday which is rotten timing. However I will be traveling the day before and be meeting my nephew and niece for dinner which will be nice.
I'm in such a dither and both happy yet upset with all this. The thing is , those of you that really know me realize I was ready to top myself literally when all this started. The fears , the worries , ED , incontinence , you name it. I am now exactly 21 months post op and if my cancer had been removed fully I'd be in a really really good place right now. I'm looking good at 12 stone , feeling good and strong , mentally well , happy marriage etc etc. I am totally continent and am also at the stage where daily Cialis taken at night allows me to have fully successful sex anytime anywhere. My orgasm is great , yes I miss ejaculating a bit and I've lost some size. Essentially I've been very lucky.
My problem ???? It's all going to start again now one way or another after this scan and I'm getting extremely down sometimes about the thought of losing erectile function again whether it be via HT or RT or whatever. We both said this morning we would be chuffed to nuts if I had been undetectable PSA. We would be in a great place. Anyway that's my Sunday moan / wobble off my chest. The show ain't over yet but I may be stubborn about treatment plans etc.
All take care and best wishes on your own journeys
Chris

Edited by member 19 Mar 2017 at 13:45  | Reason: Not specified

User
Posted 19 Mar 2017 at 13:55

Chris,

I played hockey for 40 years, I started in 1964 and finished in 2004 when my knees just wouldn't take the twisting and turning anymore. I wasn't much good at hockey, a typical 5th XI player, but I loved it. I hated having to stop playing but I quickly got over it and moved on to other things (I play croquet now).

When I was diagnosed in July 2013 with advanced PCa and was put onto HT then, as we all know, that completely buggered up the sex drive and any ability to raise a smile. It is going to sound cold and unemotional but I've taken exactly the same attitude to that as I took to having to stop playing hockey, that's over, stop regretting it and move on to other things. It works for me.

If things change for you I hope you are also able to adapt and accept. Remember, love is far more important than sex.

David

User
Posted 19 Mar 2017 at 18:45

I love a good hockey player.

CJ, one step at a time - don't even start to fret about decisions you may or may not make (or someone else might push you towards) until AFTER you have the scan results and know what you are dealing with. You are trying to second guess the outcome and it does you no good at all.

If ..... IF ... the scan shows a defined tumour or tumours, they will tell you what can be done about them. If it is a lone met it may be easy to target with a short sharp zapping. If it is a widespread scattering of hot spots, they will have a conversation with you about whether and when to reintroduce HT (and you will be the master of that decision). If the scan doesn't show anything, you will be where you are now - playing poker with your PSA and waiting for something more definite to come along. Who knows what options might be available that wouldn't knock you back so much since you have come so far.

Baby steps, my friend, baby steps.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 19 Mar 2017 at 18:53

I've read your profile Chris and the way you have constantly picked yourself up from the depths of despair and fought back is awesome. Lyn's right. No point trying to second-guess the outcome of the scan. Whichever way it goes I'd put good money on your ability to handle it.

Will be thinking of you.

E

User
Posted 19 Mar 2017 at 19:53

One thing we have all learnt is that second guessing wastes our energies and sends us down unnecessary paths. Whatever the scan will or won't reveal will happen and then next steps will be considered.

Just get on with living for now a good month before the scan. I know it's hard but you are strong and have dealt with a lot.

User
Posted 19 Mar 2017 at 23:03
Oh Chris I totally understand your thinking and that is the problem isn't isn't it ! How do we stop our brains thinking and going into over drive! Nothing I can say will stop you being in that permantly worrying state but what I will say is while we are are worrying we forget to enjoy life and you my friend have so much to live for and so much life yet to come.

I know you are a dog lover and so this anology will ring true they have the most wonderful way of living in the moment , they don't worry about the past or the future they only have today in there minds.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 20 Mar 2017 at 10:28

Originally Posted by: Online Community Member

I love a good hockey player.

Damn, damn, damn, damn, damn! That's me chances blown then.

Are you prepared to make an exception for a crap hockey player? http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

User
Posted 29 Mar 2017 at 16:13

Psa up to 2.7 from 1.6 eight weeks ago. Doubling time estimated at 12 weeks / 3 months roughly.
Been off HT for exactly 7 months and psa has risen from 0.13 to 2.7 in this time. Scan in 3 weeks so I should have a perfect figure for PSMA PET. Whatever is going on will be seen hopefully. Just an update.

Edited by member 29 Mar 2017 at 16:13  | Reason: Not specified

User
Posted 29 Mar 2017 at 16:45

I hope your next scan is OK and your PSA comes down.
There are still more ways to fight this f**** issue so you can also make orange juice besides lemonade.
The best to you.
Sending my most positive waves from Spain.

Lola

User
Posted 29 Mar 2017 at 22:11
Sugar Chris Not unexpected but not what you wanted to hear , hold steady my friend / Hold steady .

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 29 Mar 2017 at 22:33
CJ

Not good that there is a rise, but if I understand it correctly a higher PSA makes​ the result of the PSMA test more reliable. Hope all goes well.

Thanks Chris

User
Posted 30 Mar 2017 at 01:15

Inching along - not too fast yet. Fingers crossed for the scan in 3 weeks x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 30 Mar 2017 at 08:25

Hi Chris

Good luck on your scan mate and hopefully you'll get a definite answer.

Sandy

 
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