Chris J's Journey

Chris J's Journey

User

Posted 20 Apr 2017 at 16:56

Sorry to hear this Chris, hope it can be rearranged quickly so you can have peace of mind

Arthur

User

Posted 20 Apr 2017 at 17:17

Never give up, we have both been close to that a few times, you have overcome so much during your journey, keep going mate.

Thanks Chris

User

Posted 20 Apr 2017 at 20:00

Devastated for you Chris as I know how determined you were to get it. Fingers crossed they'll sort it soon.

Ulsterman

User

Posted 20 Apr 2017 at 21:36

Please don't give up.... you have worked so hard for this, it's worth the fight, or trial .... Chris I'm so sorry you have been failed.....please keep going.

User

Posted 21 Apr 2017 at 19:47

Can't even put into words the running around this week, but I shouldn't complain at our grand NHS.
After the heartache I got another call yesterday saying they could scan me today due to a cancellation. So off I went to London again and stayed the night , and today successfully underwent the PSMA PET scan. I consider myself very lucky even though I fought for it. Quite out of pocket , but considering I was willing to pay for the whole scan two months ago !!!
Anyway , maybe results Wednesday at Onco appt. Im actually not too stressed tbh. Worn out.
Thanks all for replies

User

Posted 21 Apr 2017 at 20:14

So happy you finally got the PET. done.
Looking forward you having good results.

Best wishes

Lola

User

Posted 22 Apr 2017 at 11:42

Great news Chris, hope all goes well with the results.

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User

Posted 22 Apr 2017 at 15:53

So pleased for you Chris. You have fought hard for it so well done you.

User

Posted 23 Apr 2017 at 12:55

Well done Chris, your tenacity has paid off! Wishing you all the very best with your results!

User

Posted 23 Apr 2017 at 17:15

I hope Wednesday's results give you a clear plan for the future.

Thanks Chris

User

Posted 23 Apr 2017 at 22:31

I really hope you get the results your hoping for Chris. You derseve some good news after all that you had to go through to eventually get the scan !!
Take care
Viv

The only time you should look back is to see how far you have come

User

Posted 25 Apr 2017 at 19:15

Info only
In true NHS style my appt was cancelled for tomorrow. Secretary wouldn't explain why. Does it ever get any easier ?? Rearranged for next Wednesday.
Obviously your mind wanders. My gut feel -- they got the scan pictures today but not the detailed report as it's too early. Also it will be the first PSMA scan my Onco has seen. Or they saw something really bad and want to throw it through an MDT meeting before they see me .........
Wine o'clock I reckon !

User

Posted 25 Apr 2017 at 19:38

Or the weather forecast is so terrible he has popped off to Marbella for a few days?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 25 Apr 2017 at 19:40

After all the sh1t you've been through, buy yourself a bottle of Duke red from Morrisons, £8, and tell me what your verdict is. If I could do this wine intravenously I would

Bazza

User

Posted 25 Apr 2017 at 19:48

Bloody annoying Chris.

Give Bazza's wine a try. Might as well be doing something useful while you wait eh :)

We can't control the winds - but we can adjust our sails

User

Posted 25 Apr 2017 at 19:57

Haha
I will give Bazzas wine a try, but not on my normal overnight intravenous set-up lol. I think I may want to taste this one .....

User

Posted 25 Apr 2017 at 21:04

Hi Chris, I somehow missed you had the scan at last - your determination paid off so well done on that. If the report showed something really bad would they hang around for another week. Fingers crossed you can soon get it sorted.

Ray

User

Posted 26 Apr 2017 at 21:18

Keep going ! Keep going

The lady in blue has had terrible flu

But she is behind you

100% per cent that's true

The scans are important , as well you know

But the sights in London are a wonderful glow

Take time to wonder ! To take it all in

There's nothing like London , to soak it all in

The rhymes are a bit naff but just wanted to say how proud I am of you .

Keep going !

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 03 May 2017 at 17:48

Hello
So very disappointing. PSMA PET has shown zero cancer anywhere. Which would be great except for a rapidly rising PSA. Onco very much expected spread and make a plan forward. He has asked me to start HT tonight ( Bical 150 and Tamox 20 ) and has given me four weeks to decide on RT which he says he advises. He's simply not sure any more than we are.
I know a bunch of you will say " do the RT it's fine " , but he's still not offering cure and using the words kitchen and sink. I've rejected RT twice because of mental issues and tbh the chances of me attending hospital 35 times for a treatment I desperately don't want and which may not help are very slim in reality. And it could ruin all the recovery I've achieved. And yes I know dead men don't get erections
I've walked out and am away for a week so won't start HT till I'm home. I won't be able to make a decision like the last 2 times.
Just want to be left alone :-((

User

Posted 03 May 2017 at 18:15

Appreciate you wanting to be alone Chris but you know full well that we are here when you're ready.

I am so sorry that the PSMA wasn't more definitive for you.

Chin up young man. Wishing you strength and peace.

Best Wishes from

Sandra

We can't control the winds - but we can adjust our sails

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