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Chris J's Journey

User
Posted 08 May 2017 at 20:33

So happy that you have something to work with, that your team have been so supportive and most importantly that you sound a little more upbeat.

User
Posted 09 May 2017 at 09:13

Top news Chris! I'm so glad you've found some light at the end of this particular tunnel

User
Posted 09 May 2017 at 09:26

I'm so glad to read such a good news from you, Chris.

As you know, I also sympathize with you on anxiety matters. I thing it's time you calm down and look forward other opinions and treatment}?

Best wishes

Lola

User
Posted 09 May 2017 at 09:26
Great stuff Chris! Well done in perservering but
User
Posted 09 May 2017 at 13:27

Great news Chris. Please for you

We can't control the winds - but we can adjust our sails
User
Posted 09 May 2017 at 21:11

Hi Chris,

Well done for getting the result you wanted.  Really good news !

Steve

User
Posted 09 May 2017 at 21:41

Result, well done mate

Bri

User
Posted 09 May 2017 at 22:54

Well done Chris for taking control. I hope I can do the same to ensure the best possible treatment .

Paul

User
Posted 10 May 2017 at 13:19

Hi Chris

Well done

Gordon

 

User
Posted 10 May 2017 at 21:51
I love it when a plan comes together.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 28 May 2017 at 12:18

Hello forum friends. Awful fortnight for El and I with mountains of emotions and a river of tears :-((
We had our second opinion on Friday with a Professor of Medicinal Oncology. We instantly warmed to him and he had thoroughly gone through my medical history before the appointment even so far as my pituitary , thyroid , bipolar complications. Luckily he is taking us under his wings as my regular Onco is moving to Leicester. We feel if anyone is ever going to cure this damn disease then he will be in on it .
His feelings , given my history and stats , are that whilst technically my only last chance of cure is RT , that it is extremely unlikely to provide that cure. Given my mental health , my fear of undertaking it , and the real concerns of bladder , bowel , ED and lymphedema , whether transient or permanent , we have decided between us to not have it. Also in consideration is that no-one would have a clue anything at all was wrong with me. I am basically fully recovered from the operation physically including sexual function , and was recovered mentally mostly until this all started up again.
So I am left with what he calls a palliative path only , but I have everything in the bag including RT if I need it. More pleasing to us was that for the time being he is happy to do nothing !! He stated he wouldn't just treat a moving PSA when the best scan available in the UK , my PSMA-PET scan , showed no cancer anywhere not even the margins.
The way forward is very regular PSA tests and when he feels comfortable another full suite of scans. He anticipated I might have one to two years of freedom which we will both enjoy to the limit ( planning two holidays already ) , followed by maybe all the tools in the bag which I will just have to face when I get there.
When asked if I would see my 60th birthday it was statistically quite unlikely, which is obviously very sad for all of us , especially having a young child.
On June 7th I will be 50 years old and on June 15th I will be exactly 2 years post op and 2 1/2 years into my journey.
Its all been very unpleasant for all of us , but by god some fun ahead I hope.
Stay safe all xx
Chris J

User
Posted 28 May 2017 at 12:27

Hi Chris

I have been following you since my run in with PC and your strengths atacking it head on and i am sure it will continue and wish you all the best with treatment.

You are a great inspiration to every one one here, good luck mate.

John

User
Posted 28 May 2017 at 12:38

So sorry, Chris, about your last fortnight, but I'd rather look at the fact that the best scanner hasn't found cancer. So, may be there is another reason why your PSA is high. A strange one, who knows.

Enjoy the present time and remember science is improving on prostate matters so much.

Now some reliable doctor is caring you. Trust him and wait peaceful your PSA control.

I really wish you all the best.

Lola

User
Posted 28 May 2017 at 12:56

Chris

Obviously sad reading some parts of your post. On the better news you have got one of the top men on you side whom you both feel comfortable with. You're some positive fighter, no doubts helped by EI. Keep that going and I'm sure you will sqeeze all the fun out of life you can.

The very best of luck

Ray

User
Posted 28 May 2017 at 16:59

Well, the overall, long term news isn't good but........How fortunate that if you have to leave a consultant you are used to that you get one you can both warm to and not only that he took the trouble to read your notes BEFORE you saw him instead of leaving you fidgeting in the chair while he went through them at the appointment.

OK, so the current thinking isn't going to be celebrating 60 years young but in the estimated one or two years of freedom (which I'm bloody sure you're going to enjoy to the full!) things might change in the treatment line.

I sincerely hope so.

Best Wishes

We can't control the winds - but we can adjust our sails
User
Posted 28 May 2017 at 17:35

Chris,

Sounds sensible advice to me, to really enjoy the next couple of years and see where things go from there. Lots of fellow sufferers have proved the statistics wrong - big time. 

Flexi

User
Posted 28 May 2017 at 19:55

Drink wine, drink love, drink life. We all have no other option.

User
Posted 29 May 2017 at 22:23
Hi Chris,

The first thing I want to say is Statistics let's get those chucked straight out of the window they don't mean diddly . Cmon statistically if you eat an apple a day it keeps the Dr away .

Statistics only apply to those that conform to the norm if you don't fit the box then statistics don't apply it's a known fact . Statistically Trevor should not be here ! But he is .

So start planning those holidays and add in a few Saga Cruises. Just think of the places you can visit on that bus pass 🤗

You my friend have a whole bag of tools , a giant bag of lemons and lots of life to enjoy ❤️

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 30 May 2017 at 00:10

I am liking your new onco's approach very much CJ - roll with it

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 31 May 2017 at 10:12
CJ

Keep fighting mate your are a inspiration to many of us on here.

Thanks Chris

 
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