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Chris J's Journey

User
Posted 16 Feb 2019 at 17:44
Lol , just the Canaries with Royal Caribbean.
User
Posted 16 Feb 2019 at 21:45

Chris,

Choline and PSMA have not revealed anything for you previously but result in some toxicity so you could consider whether something else might be preferable. The C11- Acetate (not C 11 Choline) scan seems to have had done well in comparative tests. It works on fatty acids rather than sugar or gallium. Unfortunately, I can't see reference to it in the UK and it seems more used in the USA but possibly available in other countries too. This is a video on scan comparisons but is rather long.

https://www.youtube.com/watch?v=W45WA-_q-EY

 

Have a great cruise!

Edited by member 16 Feb 2019 at 22:10  | Reason: To hightight link

Barry
User
Posted 16 Feb 2019 at 22:11
Thanks Barry

I don’t know about toxicity, but I do know I’m walking like an 80 yr old these days despite not yet 52. Not sure of the cause but constant constant crippling pain is a killer morally and physically. I couldn’t run if a cow ran at me , which is an actual worry where we live tbh. Really struggling to keep positive although I realise I’m in a far better state than some poor people.

User
Posted 17 Feb 2019 at 23:17
evening Chris,

after all that you have been through, you are still going strong. thank the GL.

if you fancy meeting up for a beer in that Soton you live in, shout mate?

dave

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User
Posted 29 May 2019 at 10:23
This website is still so appalling it’s taken me 10 minutes to search for my own thread haha. And I can’t update my profile despite 6 attempts.

And i involved myself in a 2 hr phone call researching people with T4 disease, and was given a £30 gift voucher , only to find that someone had already spent it in Leeds ( LYN :-)) ) and I’ve not been offered another one. Bless PCUK

Scores on doors. Rescans taken just before cruise are now showing completely clear / normal. I’ve not had my psa checked in a year as it’s just going up. He says my cancer is still simply too small to see. He offered RT again and then I’d get a PET scan thrown in. I frowned , he smiled. I’d already made my mind up I wasn’t going to accept HT if offered as I’m feeling utterly chipper.

So I’ve still got this G9T4 N1 monster inside me and it will catch up with me but I’ve been given another six months freedom before repeat CT and bone scans which suits me down to the ground. I was Utterly expecting the worst today only to walk away grinning like a Cheshire Cat. Celebrating tonight with a glass of wine or seven

Wishes to everyone fighting this , man and woman

User
Posted 29 May 2019 at 10:36

Oh Chris that is fantastic news! I can imagine how relieved you are!! Here’s to many many more results like that one today. Enjoy your wine 🍷 x

User
Posted 29 May 2019 at 10:38
Excellent news, Chris! Your cruise must be coming up soon, isn't it? Hope you have a relaxing and enjoyable holiday.

Very best wishes,

Chris

User
Posted 29 May 2019 at 11:12
Great news .

Debby

User
Posted 29 May 2019 at 12:05
Good news but perplexing, I guess? Glad you had a good holiday.

Scroll to the top of the thread and click on 'follow this conversation' - then when you want to find it, sign in and go to your profile where you will see 'my conversations'

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 29 May 2019 at 13:54

Your an enigma Chris.

keep it up

Roy

User
Posted 29 May 2019 at 13:59

Chris, I'm happy for you!

Flexi

User
Posted 29 May 2019 at 16:21

So pleased you have another 6 months with no treatment Chris. You are definitely an enigma! All the best.

Ido4

User
Posted 29 May 2019 at 16:39
Good news Chris, long may it continue.

All the best

Cheers

Bill

User
Posted 29 May 2019 at 16:55

CJ

Pleased to hear it is good news, if you could edit your profile you could add a link to your conversation.

Thanks Chris

 

User
Posted 29 May 2019 at 21:08
Well cheers Chris, here's to you!! Several glasses raised!! :-))
User
Posted 29 May 2019 at 21:21
Wow brilliant. Enjoy the vino 👍👍

Bri

User
Posted 29 May 2019 at 21:25
Happy days Chris,

Very pleased for you both.

Enjoy.

dave

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User
Posted 29 May 2019 at 21:26
All seems to be going pretty well for you.

I trust you we're able to enjoy your cruise - you should book your next one soon as you can.

The HT isn't so bad, I've been on it now for 4.5 years but I would prefer not to be on and I'm in awe of your courage.

Keep on going with you instincts I'm convinced it's the best overall.

Paul

User
Posted 29 May 2019 at 23:21
Great stuff - better buy a new ring sounds like you are gonna be wearing it out!!
User
Posted 30 May 2019 at 09:18

What fantastic news!

 
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