Ok Mr Lemons ,
You can pack this in right now .
Possible mets means exactly that , you don’t know that and obviously your oncologist doesn’t either .
We could all possibly get run over by a bus tomorrow, possibly means nothing . I could possibly be a millionaire this time next year 😉.
I get that we have lost a few long time members recently and that has hit hard but hey if I had crumbled every time we had got a possible well I wouldn’t be able to give you a what the feck is possible shove up the back side .
So if you was newly diagnosed they would offer Chemo WTF , I don’t get that , that can’t be right so if you where diagnosed yesterday with the same diagnosis then that would be ok ?
Come on Chris you have come this far don’t let this get you low , you have your gorgeous lady and your little boy to fight for . You have all of the tools still in the bag .
I am absolutely rooting for you .
BFN
Julie XXX
NEVER LAUGH AT A LIVE DRAGON |
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I think that the 'early chemo' thing has run a bit wild and a lot of oncos are using it quite differently to the way it emerged from the trials 4 or 5 years ago. It would be more precise to refer to it as hormone naive chemo.
Your onco knows you well and knows that you have consistently placed QOL above all else. To be honest, in that context it seems to me that in a choice between treatment now with a marred Christmas v no treatment at all v treatment but only after a nice Christmas, it is a no brainer.
At least they have found it at last!
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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Am attempting to find a positive response to you, but with my limited knowledge of this illness I am finding it very difficult. Your faith in your Oncologist is well known and is to be applauded, but it is your strength of character that has served you so well so far on your difficult journey. I feel sure that with the help of your family you will continue to fight this nasty illness all the way and that whatever decision(s) you make in the future it will be what’s best for you. It’s so easy for me to say it, but please Stay Strong, Chris.
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I think you are wise to leave treatment till after the festivities Chris.
But in the New Year it’s time for HT plus hormone naive chemotherapy I think.
If that’s what you decide of course, I have massive respect for the way you have approached things.
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Whatever your decision about treatment is, I wish you the very best, Chris.
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Wow. Difficult one. I am instinctively sympathetic to your Quality of Life approach but you are a relatively young man so length of life has to be a consideration as well.
I'm not going to offer advice except that I'm going through a series of scans right now as my PSA has started to climb post EBRT in May 2016. I could well be seeing the oncologist early next month. With Christmas coming I am very much minded to delay any treatment until the New Year but I will have the treatment. I sense that might be your approach as well.
Good luck Chris whatever you decide.
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Thanks to each of you that have replied. I believe my wife and I have become a little behind the developments these last few years as have just been living a totally normal life. Sometimes we still find it kind of surreal that I have cancer at all :-((
We are not sure what Hormone naive Chemo means , nor are we sure what the gold standard is these days for moving forwards with advanced cancer etc , eg early Abi etc. Any advice welcome as ever and gratefully received.
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Chris, sorry I can't offer advice I wish I could because your advice to me over the past couple of years has helped me considerably.
I can however wish you all the best whichever way you decide to go.
I hope what ever you chose goes well for you and that your highly valued QoL is not compromised to much.
Good Luck
Cheers
Bill
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Hi Chris, hormone naive just means the cancer cells will shrink (some will die too) and react well to hormone therapy. The opposite would be castrate resistant which means the cells do not respond to hormone therapy.
The latest research shows giving chemotherapy before castrate resistance develops prolongs life.
Hope that makes sense.
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Hi Chris, sorry that you may have some progression now.
wait until after Xmas, hell yes, after that I would throw whatever at it. Some men have a hard time on docetaxl, many don’t, I ran 2 marathons during it so don’t be scared of qol issues.
If doing something now does not preclude you having it again later what’s to lose, if you can’t get on with it then stop it but if it works happy days
take care mate, rooting for you whatever your choice.
Kev
Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019 |
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Thinking of you, Chris.
Ulsterman
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Best wishes to you Chris.
Always appreciate your amazing support
Clare x
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Chris,
You are constantly on my mind!
Sending you a virtual "man hug"!!
Pablo
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Have a great xmas then regroup and decide which direction you are going to go.
Take care
Bri