Chris J's Journey

User

Posted 20 Feb 2020 at 19:29

Chris

Good news about the spine Mets.

Re the lymph nodes, it sounds like being zapped as an option had or might have been considered but you say you 'asked "if any options other than systemic''. I would definitely ask again for definite confirmation that this has been considered.

I know you normally have all things/questions covered, but just my thoughts.

All the very best to you

Cheers

Bill

User

Posted 20 Feb 2020 at 19:34

Bit of a mixed bag there, we are all here for you. Take care.

Thanks Chris

User

Posted 20 Feb 2020 at 19:56

Good to hear you left the appt happier than when you went in Chris

Bri

User

Posted 21 Feb 2020 at 20:04

Well done Chris. I know some of us would have caved in, but your living your life without symptoms so good on you.

Dave

User

Posted 22 Apr 2020 at 18:47

Just an update for those who know / remember me !!

Onco consultation May cancelled. Telephone only. Bloods done in advance locally.

Psa 440 , all other bloods ok except for constant decline in white cells and lymphocytes since surgery June 2015.

Liver surviving it seems ??

Take care all

Chris J

User

Posted 22 Apr 2020 at 19:24

Take care of yourself too Chris

Arthur

User

Posted 22 Apr 2020 at 19:54

Absolutely take care Chris

Thinking of you and family

Ray

User

Posted 22 Apr 2020 at 20:13

Take care and stay safe. Thinking of you and your family.

Thanks Chris

User

Posted 22 Apr 2020 at 21:38

Thanks for update Chris. With white cells and lymphocytes declining stay safe.

Ido4

User

Posted 23 Apr 2020 at 06:11

Soldier on and stay safe Chris

Cheers

Bill

User

Posted 23 Apr 2020 at 12:38

Hi Chris, I have followed your ‘story’ since I joined the PCa club and the slightly more exclusive G9 club a couple of years ago. You’ve always been a source of inspiration to me. Understanding your mental issues has helped me get through with my own issues which at times seem worse than the damned PCa.
You may not feel like it but to us you are a true survivor come what may.

I wish you all the best and have my fingers crossed for you as always.

Good luck mate you are a warrior.

Phil

User

Posted 23 Apr 2020 at 22:23

Hi Chris

Thanks for the update. Positive vibes coming your way. You are a legend - sharing your journey, coming up with great advice and always telling things as they are.

So appreciate by so many

Thanks as ever

Clare

User

Posted 23 Apr 2020 at 22:23

Hi Chris

Thanks for the update. Positive vibes coming your way. You are a legend - sharing your journey, coming up with great advice and always telling things as they are.

So appreciated by so many

Thanks as ever

Clare

User

Posted 23 Apr 2020 at 23:49

Holding a steady course - stay well, my friend

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 20 May 2020 at 20:21

Onco phone appt last Friday 15th. He said psa at 440 was now very high but was more concerned with any change of velocity. He was particularly interested In general health and any symptoms of which there are none. The phrase HT wasn’t mentioned at all , most likely because of my long long e-mail a while ago explaining why I didn’t want it because of very multi-faceted reasons including ultimately mental instability and fragility of this whole affair. He said ‘ stick to the plan ‘ and both Bone and CT scans again for August. The only thing different was that he said I could contact and have the scans any time sooner which was a strange remark I should have questioned. Normally they are 6 monthly and that’s it. Maybe he feels I’m going to get ill really soon which is a real possibility. My heads not in the sand but I’m fine with how it is tbh. As always said , I feel maybe pain will decide my next move whether it’s too late or not.

Good luck to all x

User

Posted 20 May 2020 at 20:34

Decent news given the state of play, Chris. Long may you stay well. Did you change your mind about the HT? I recall you saying a few months ago that you were scheduled to start it in February?

Best wishes,

Chris

User

Posted 20 May 2020 at 21:00

No Chris I’ve just not got my head round to starting it. I’ve refused it since Xmas. I know I’m strange compared to others but it’s just what it is ....

User

Posted 21 May 2020 at 06:47

Originally Posted by: Online Community Member

I know I’m strange compared to others but it’s just what it is ....

Your disease progression/presentation is strange Chris not you.

Hope you stay safe and well for many years.

Cheers

Bill

User

Posted 21 May 2020 at 08:13

You need to do what's right for you, Chris. As long as you're comfortable with the choice you're making, that's all that matters!

Best wishes,

Chris

User

Posted 21 May 2020 at 09:05

Well xmas was almost half a year ago, so you have had five months more of life without HT, and without any symptoms; that sounds like a good thing to me.

Dave

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