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Chris J's Journey

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User
Posted 11 Dec 2020 at 11:18
Good luck however you decide to proceed
User
Posted 19 Jan 2021 at 14:02

Onco zoom Friday 15th Jan
Made it quite clear to decide palliative or treatment. Cancer in much of spine. Further RT reserved for later as having it now may flare the cancer enough to crack vertebrae.
So here I am joining the wretched HT club ( hurrah at last I hear you all say )
Starting 4 weeks Bicalutamide 50mg next Monday and first Decapeptyl injection in the middle. I specifically asked for this HT after reading and hearing from friends of less severe side-effects. Simply dreading it all but hope a decision will rest my tortured brain a bit. Will be having first PSA test done for a year also. Up in the thousands.
Here goes , hold my hand
X

Edited by member 19 Jan 2021 at 18:07  | Reason: Not specified

User
Posted 19 Jan 2021 at 14:43

Here’s hoping the side effects are minimal for you Chris, wishing you the best of luck going forward, you are a very brave man in your approach to this. I’m sure I speak for all on here when I say we’re with you all the way and are holding tight onto your hand xxx

User
Posted 19 Jan 2021 at 14:50

Sending you strength and a hand Chris. Very best wishes.

User
Posted 19 Jan 2021 at 15:25
Hand held .
Best wishes
Debby
User
Posted 19 Jan 2021 at 15:39

Originally Posted by: Online Community Member
Will be having first PSA test done in a year also. 


That's a good sign; before Christmas you weren't able to think that far ahead, now you just casually mention what you will be doing in a years time. Good luck and let's hope you'll be having many more annual PSA tests.

Edited by member 19 Jan 2021 at 15:40  | Reason: Not specified

Dave

User
Posted 19 Jan 2021 at 16:21

Originally Posted by: Online Community Member
Starting 4 weeks Bicalutamide 50mg next Monday and first Decapeptyl injection in the middle. I specifically asked for this HT after reading and hearing from friends of less severe side-effects.


Stay strong Chris. Also on Deca and I have to be honest and say I did wonder if the HT was working, as I didn't recognise any of the often quoted side effects. Scan/tests show it is, so just my imagination playing tricks. No weight gain, no fatigue, still happy wakeboarding (or would be if not for the bloody Covid over the last 12 months curtailing that severely), yes my libido has dropped off but convinced that's more mental than physical (just don't seem to think about it), and still wake up some mornings "stood to attention" as it were. Also find a bit of day-dreaming sometimes has the same effect and if we were that concerned about it, I'm sure a little blue pill or similar would work fine.

Good luck to everyone coping with the insidious big C

User
Posted 19 Jan 2021 at 17:53
Hopefully you won’t have an6 side affects that matter and qol will stay strong.
Holding your hand mate

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 19 Jan 2021 at 19:17

CJ 


I really do hope it works out for you. I admire the way you have dealt with this tish disease. Keep going mate.


Thanks Chris


 


 

User
Posted 19 Jan 2021 at 19:26
Chris
Even now when you eventually and reluctantly had to make that decision you've done it your way by insisting on the specific treatment you want, so hats off to you for that.
Wishing you a good reaction to the treatment and good luck with the side effects.

Cheers
Bill
User
Posted 19 Jan 2021 at 19:39

Good luck Chris 


 

User
Posted 19 Jan 2021 at 19:49
Very best hopes for your treatment, Chris.

Chris
User
Posted 19 Jan 2021 at 21:25
Hooray! Here is my hand 🤝
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 20 Jan 2021 at 07:47
Well done Chris sometimes the right decisions are the hardest.

User
Posted 20 Jan 2021 at 10:29

Decisions made can sometimes be a relief. A hand 🤚  is here.


Leila  

User
Posted 20 Jan 2021 at 11:04
You’ve made the decision mate. Hopefully the side effects won’t be as bad as you envisage. Stay strong Chris

Bri
User
Posted 20 Jan 2021 at 12:43

Chris, another hand to hold on to here.

User
Posted 20 Jan 2021 at 13:52

Chris, good news you’ve started some treatment.   I’m on Decapeptyl, apart from when it started I’ve had very few side effects compared with when I was on Prostap.


Hold on tight!


Arthur

User
Posted 20 Jan 2021 at 15:39

We’re with you CJ.  Good luck going forward x


Ange & Keith 

User
Posted 20 Jan 2021 at 17:10

I’m with you all the way Chris. The treatment will bring things under a level of control.


I hope the side effects are minimal.


As for holding your hand I quote from Auld Lang Syne.


And there's a hand, my trusty fiere
And gie's a hand o' thine


All the best,


 

Ido4

 
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