Chris J's Journey

User

Posted 10 Sep 2020 at 20:17

Hope the treatment works out. Keep going mate, you have alot of friends on here supporting you.

Thanks Chris

User

Posted 10 Sep 2020 at 20:28

Good luck Chris. Hope this treatment helps.

Dave

User

Posted 10 Sep 2020 at 23:12

Thinking of you and your family Chris. Hope the RT treatment you are having is helping.
Good luck xx

User

Posted 11 Sep 2020 at 01:19

What ever is right for you Chris. Only one gulp, I’d be choking with fear.

Leila xx

User

Posted 11 Sep 2020 at 07:27

Hi Chris

I know QoL is important to you and you have made dicisions based on that all along. I can't offer informed advice as I haven't been where you are now and I think if you haven't been there it is difficult to understand completely.

So not advice, just saying what I said before and what I think. Why not try the hormones, always knowing you can stop at any time. It's what I would want any of my friends or family to do, but that's what I think I would want for them looking from the outside and would respect and support their choice either way. Having said that I am of similar mind set to you regarding QoL and you are the one "in the chair" and as always will go with your gut feeling and strong will.

What ever you decide all the very best of luck to you.

Cheers

Bill

User

Posted 11 Sep 2020 at 08:19

Well I got through it all ok but have to say I was on the verge of walking out when it got to 5pm. Been on my own all day and patience was getting thin. I think they dealing with a backlog and also 2 machines broke.

But this is where I kind of get to with quality over quantity In my own little world. A beautiful long hot sunny summer day , and I spent it all in hospital very stressed and worried and anxious. Sat with many many people in various forms levels of ill-health. Beds kept coming from wards with men needing urgent bone treatment to ease the pain , the young man and his wife , him proudly announcing he’d already had HT and Chemo that day then proceeding to vomit in public every 15 minutes into a cardboard hat , his wife batting his ever stroking hand off her thigh as she was trying to read her book ( maybe cos she was frustrated herself ). Some bloke collapsing on the floor his back was so bad.

The tension was mounting and the nearer it got to my turn the more I wanted to be sat in a beer garden with a pint doing my crosswords. That’s me !

Anyway I could feel all burning and tenderness and flare and internal heat which I managed to negate with a bottle of Shiraz before I went to bed. Slept like a baby and woke up fine ( so far ). Thanks everyone for support as ever xx

User

Posted 11 Sep 2020 at 08:29

Good luck and best wishes Chris.

Kev

User

Posted 11 Sep 2020 at 09:16

Keep going Chris, keep your chin up lad.

User

Posted 11 Sep 2020 at 10:14

Sounds like a long day Chris. Glad you got through it. A nice bottle of Shiraz sounds wonderful! Take care.

Ido4

User

Posted 11 Sep 2020 at 15:53

Long long day but you hot through it mate. Hopefully a nice weekend ahead for you to try and have a beer or three in a beer garden somewhere 🤞🍺

Take care

Bri

User

Posted 12 Sep 2020 at 12:42

Forgot to say because of my present chosen path I was tentatively offered Radium 223 to catch all the upcoming bone mets. Need to find some posts on this

User

Posted 12 Sep 2020 at 14:40

Hi Chris

I've never posted in your conversation before but I've been following your journey since I joined here - it's both touching and inspirational. I wish you the very best. I just did a quick search on Radium 223 and found the following conversations - I know you can obviously search yourself! but just in case it's any help:

Radium 233 after Aberarerone by Davje1947

Radium223 by Banjobert

Radium 223 & spinal cord compression by MBS

Radian 223 by Newyork4 replies

Radium 223, pistachios & cannabis by MBS

Xtandi or Zytiga or Radiium 223 by Maryann

User

Posted 12 Sep 2020 at 22:42

https://community.prostatecanceruk.org/search?search=radium+223+&advanced=false

https://community.prostatecanceruk.org/search?search=Alpharadin&advanced=false

https://community.prostatecanceruk.org/posts/t9744-Radium-223-treatment#post155018

Edited by member 12 Sep 2020 at 22:48 | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 12 Sep 2020 at 23:15

Gosh what a day Chris, you write it so well it came to life. I hope today the crossword got completed and the garden was sat in as much deserved.

Thinking of you and the family

Clare

User

Posted 13 Sep 2020 at 02:24

I was going to change my avatar to me in the blue dress but decided to give you Tulip 🌷 instead because I know you love her .

My friend no one can choose your path , only you can . Life is a funny old F****r ( sorry for those that don’t know me ) . If any one is easily offended then please don’t read on .

Like a few others on here ( and I am thinking of all of the Mavericks that in the words of the song , “ I Did it my Way “ so far you have you have done exactly that . You have done it your way and I take my hat Of to you .

We can all offer advice but no one can live your life , it’s yours to own and my goodness you have owned it all the way through your journey .

as you know I don’t touch base on here very often anymore but I do sit back and watch , you have owned this shitty cancer from the start , and going forward you will make the right decision for you .

Trevor did the 6 months on radium 223 and I documented everything. It’s all on my posts if you want to look .

Lots of love

BFN xxx

Edited by moderator 13 Sep 2020 at 08:03 | Reason: Profanity

NEVER LAUGH AT A LIVE DRAGON

User

Posted 13 Sep 2020 at 10:39

😂😂😂😂

Julie, you got moderated for using profanity! That must be a first - usually you get moderated for swearing 😂

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 13 Sep 2020 at 14:10

The blond in the blue dress rebel yeh. The actual word was there till 8am and made me laugh like mad

User

Posted 14 Sep 2020 at 22:56

Chris, I have spent the last couple of hours reading your five year story, taking notes along the way. Sorry I can’t offer anything more than my best wishes for you 🌹

User

Posted 16 Sep 2020 at 22:30

So glad you got to read it Chris before I got moderated . I’ll take moderated any day because what I wanted to say to you needed the F word .

some times you can’t shilly shally and you just have to say it like it is .

I actually meant Fabidosa but spell corrector timed me out 🤗

BFN

NEVER LAUGH AT A LIVE DRAGON

User

Posted 17 Sep 2020 at 14:56

Chris, Hope this treatment will hold things back and also give you the QoL you so desire. Thumbs up to you 👍.

Pub garden with a beer In the sun sounds enticing ....

Phil

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