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Chris J's Journey

User
Posted 14 Aug 2024 at 06:51

Great to get your update Chris and your positivity gives us all a boost. Let’s hope you can keep your PSA within an acceptable range.

Wishing you all the best for the future.

Derek

User
Posted 14 Aug 2024 at 07:32

Thanks for keeping us updated on your incredible journey. It's always good to read your honest and frank wise words on here. You've given so much good advice on burning issues affecting us on this site. 

All the best.

Kev.

User
Posted 14 Aug 2024 at 10:07

Hi Chris. PSA maybe still rising but very very slowly. So that’s sounds pretty good to me. At that rate you’ll be years before you need Abi or Enza. 

Sorry to hear the legs are still playing up. These damned side effects are a bast*rd. Glad you’re still enjoying the flying and fishing though. Especially as you do both with your son, magic times. 


Yes, emotionally it’s a roller coaster for sure. I even wonder if I’m gonna be around or well enough to use up both our BA companion vouchers …  Some days are worse aren’t they. Last 2 days for me a bit emotional but seem ok today. I’m sat in my chemo chair catching up on my phone stuff 😁.. tea lady a bit late today missing my tea and kitkat 🤷‍♂️

 

Keep up the resistance Chris. We mustn’t let this disease grind us down. 

 

Take care 

Phil

Edited by member 14 Aug 2024 at 10:08  | Reason: Not specified

User
Posted 14 Aug 2024 at 16:08

Well done Chris, I’ve just read out your post to David and he said ‘ well done mate’ he’s sadly has no libido, and he hates that, but his PSA was < 0.1 in July. It’s nine years in September since he was diagnosed G9 Tb3. He gets tired, and has muscle pains most days. 
He writes music, plays, sings, gardens. He interested in economics ,and ,keeps abreast of world events. His latest song has been taken up by a well known singer, so he’s enjoying that. 
David’s 74, and still has a passion for life, and living, though he does find it very hard mentally sometimes. He hates the idea of having cancer. We are both involved with a local charity for cancer and he plays music at the local school concerts. 
Keep flying them planes, keep fishing and it’s brilliant you are supporting other lads with this bl##dy disease. 
Take care 

Leila 

User
Posted 14 Aug 2024 at 16:35

CJ, thanks for the update, you have been an inspiration to many of us on here. 

Keep going mate.

Thanks Chris 

User
Posted 14 Aug 2024 at 20:46

Chris J.,

Many thanks for the update.  I'm sorry to hear that your PSA is rising, even if slowly.  As others have said, hopefully it will take a long time to reach the threshold for intervention, and then you still have other options.  But that's being rational, and doesn't account for the emotional toll this illness takes on you (and most of us).  Sometimes, it feels as if we are at the mercy of the doctors, because it's they who will decide what the threshold is, and which interventions we are allowed to have.  

Best wishes,

JedSee.

User
Posted 14 Aug 2024 at 22:46
Keep going Chris. As you say plenty in the armoury

Bri

User
Posted 14 Aug 2024 at 22:46
Keep going Chris. As you say plenty in the armoury

Bri

User
Posted 14 Aug 2024 at 22:46
Keep going Chris. As you say plenty in the armoury

Bri

User
Posted 15 Aug 2024 at 23:43
Keep up the good work and the hobbies Chris you are a legend...
User
Posted 16 Aug 2024 at 17:40

Stay as strong, cool and funny as youve always been CJ.

Love at you man.

 

Jamie.

User
Posted 11 Feb 2025 at 13:30
So guys and gals , my four monthly check-in !

I’m now officially 10 years on from G9 diagnosis and June 15th will be 10 years from surgery where I was found to be ‘ incurable ‘ as well as ‘ insufferable ‘ 🤭.

G9T4 N1.

Been on Decapeptyl for exactly 4 years since Mets to spine and ribs and remote lymphs. Causes me little bother but for the most aching legs you could dream of. PSA has been steadily rising since nadir and this time has seen its highest jump from 0.56 to 0.75.

So I guess the beginning of failure of HT. Must admit I was a bit sad to see that rise and it’s so trying living with this disease. I try to remain positive and fill my time with my model planes and fishing. Can’t wait till summer. Love and wishes to all 💪

User
Posted 11 Feb 2025 at 13:44

Hi Chris. 
Sorry to see a rise in your PSA but still fairly low numbers. Let’s hope the next one is static or another low rise. I’m keeping my fingers crossed for you Chris as you’re really giving this disease a run for its money… 👍

Had my blood test today and hoping at next week’s consultation he’ll tell me I’ve not had a rise but not holding my breath. Last reading was 19 up from 12 a few weeks earlier. 

Keep enjoying your planes and fishing - way to go buddy 🙂

Phil

Edited by member 11 Feb 2025 at 13:45  | Reason: Spelling ….

User
Posted 11 Feb 2025 at 16:02

CJ, sorry to see the rise, is there a plan. Despite our reservations you can't say we haven't tried.

Thanks Chris

 

User
Posted 11 Feb 2025 at 16:05
Chris I think the plan because I refused upfront Abi or Enza is to wait till it reaches 4. Then go from there. We’ve both tried mate. You more than most. It just gets more unnerving when you plod on to ten years. Could say we are lucky of course but it’s tough looking over your shoulder each and every day
User
Posted 11 Feb 2025 at 16:17

Sorry to read about this recent rise Chris. It is hard living with this disease. Like you I will be 10 years from surgery this year on 23/7/2025. Wishing you all best wishes, Ian. 

Ido4

User
Posted 11 Feb 2025 at 18:04
Keep up the fight Chris , you’ve been inspirational to many men on this site . 10 years is a mighty achievement.enjoy your fishing and modeling .

Best wishes

Debby

User
Posted 11 Feb 2025 at 19:10
Chis, so there's still some different tools in the box for you. Your determination to do it your way is inspiring and I hope that continues.

All the best

Cheers

Bill

User
Posted 11 Feb 2025 at 22:39
As ever an inspiration Chris, good luck with fishing! Apparently the best trout fishing lake in Wales is about a mile away from me if you fancy trying trout anytime.
User
Posted 12 Feb 2025 at 07:09

Sorry to hear that your PSA is up Chris. 

Keep fighting and enjoying life. 

Good luck, 

Kev.

 
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