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Chris J's Journey

User
Posted 28 Jun 2015 at 19:32

Welcome home Chris !!

Excellent news regarding the continence.
Good news about continence is good news to somebody so never be afraid to post.
You know yourself how much you benefited from the experience of others.
Sometimes that experience is negative but no knowledge is ever wasted.

Enjoy your pint. You deserve it!!

Best wishes to you and El and the little man
Sandra

We can't control the winds - but we can adjust our sails
User
Posted 28 Jun 2015 at 20:36
Hi Chris,

Great news you are home and the continence too, gives Stuart a little bit of hope as his op is in 10 days! Hope you enjoyed your well deserved pint too 😜😜

I am sure your lovely wife is also glad to have you back home.

Trish x

User
Posted 28 Jun 2015 at 21:04

yep keep them posts a coming it makes good reading, reading about good news

nidge

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

User
Posted 28 Jun 2015 at 21:35

Great news Chris,

You will probably be peeing even more after a couple of pints.

 

Keep us all posted.

 

Paul

THE CHILD HAS GROWN, THE DREAM HAS GONE
User
Posted 28 Jun 2015 at 22:41

That's excellent news, Chris. This forum offers experiences of all sorts, and it's great to hear success stories. Keep us informed of your progress and experiences - positive news is always good to hear.

Well done.

Paul

Stay Calm And Carry On.
User
Posted 29 Jun 2015 at 12:16

I agree with all of the others Chris good news should be shared , so glad that you are on the mend and on your way home. Enjoy that beer.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 30 Jun 2015 at 09:24

pleased your home Chris take care Andy

User
Posted 30 Jun 2015 at 13:51

Been called back tomorrow ( Weds ) 10.30 . Three days after discharge . Exactly 16 days after operation . Just cant understand and asked clarification , but you know how it is . Maybe Histology of prostate / Lymphs back . If it was good news couldn't they just say . Im nowhere near having a repeat PSA ( 4 wks away ) . Does the phrase Shi....ing it mean anything .
I can only wait and see , and report back
Getting kind of bored now . Just desperately need rest and sleep . Im a bit of a wimp im thinking . Awake all night last night as im off all my meds that caused the Neutropenia . But doctor is on it I think . They don't know whether to put me on Lithium again Grrrr , or watch and wait how my mood is . But you cant go on Diazepam and Zopiclone forever can you !!
But heaven to wake up with Elaine and have a cuddle this morning briefly , before " the monster " burst through the door .
Speak soon xx

User
Posted 30 Jun 2015 at 16:44

Good luck tomorrow Chris.
Hope the news is positive and/or doable.
I expect little man monster also wanted his cuddle too!!
He's also glad daddy is back home

Chin up
Sandra

We can't control the winds - but we can adjust our sails
User
Posted 30 Jun 2015 at 17:03
Hi Chris,

Will be thinking of you tomorrow guessing it's the histology report.

Trish

User
Posted 30 Jun 2015 at 17:51

Chris,

All the best for tomorrow. Hope that it is all something and nothing. 

 

Take care.

 

Paul

THE CHILD HAS GROWN, THE DREAM HAS GONE
User
Posted 30 Jun 2015 at 19:47

Sorry everyone prob just nothing. I expect they forgot / message not got across that I was in hospital for a fortnight. Probably a catheter out check which they already know is just dandy. Will fone in the morning first thing.

User
Posted 01 Jul 2015 at 00:34

Hoping you hear good news tomorrow.

Paul

Stay Calm And Carry On.
User
Posted 01 Jul 2015 at 05:47
Chris

It is human nature to try and second guess when someone calls you to say come in we want to chat and then can't tell you anything until you are there face to face.!

The really big ask is to try and think oh well nothing is going to change between then and now and if it did there is nothing I could do about it so I just have to plod along until that moment comes. Some people can actually do that.

I know I can't do it I think about every possibility decide I have every one of them, chew my nails, can't sit still, can't focus properly on anything...you know exactly what I mean and yet I know all to well it does me no good at all.

As for your meds I know lithium is debilitating but it does work really well for most and was the only drug that really worked for my Dad. I guess a lot will depend on your blood work if you still have signs of neutropenia there may be a further delay. Remember no strawberries for you this Wimbledon.

I hope all is well today

Xx

Mo

User
Posted 02 Jul 2015 at 00:06

Chris, I have seen you respond to others but no update on your call to arms this morning. You might not realise that some of us have been thinking about you and worrying in case you had bad news? Put us all out of our misery :-(

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 02 Jul 2015 at 10:41

Hi Lyn ,
I really know this and am posting now -- I just totally blacked out tired last night . Im beginning to think you never sleep looking at your posts . And check your new picture out ( wolf -whistle )
My wife got hold of the prostate specialist nurse and explained id only been out 2 days and was highly tired/ stressed and did not want to come back unnecessarily. He basically said to ignore it unless he contacted us back -- which he didn't . But it is strange ? I had catheter out day 10. Would they normally see you day 15 ? And to be fair would they telephone you 20 hrs before ?They did say they were rushing Histology due me nearly in HDU , but if it was that they'd have got hold of me again surely . And as you know better than anyone else , my PSA etc wont be tested till end July . To be fair im just a bit down as expected , and cant be arsed at the mo. Not given up , but had enough for the moment.
REALLY sorry to worry anyone.
Chris

User
Posted 02 Jul 2015 at 11:15

Well Chris, we do worry about you, indeed we worry about a lot of us and the only way we can show we care is to respond to your postings.
When the postings stop, we worry even more.

I can understand that you have had enough at the moment and just want to forget it for a while.

We're here if you need us, you and El.

Glad you haven't given up - don't you dare!!

Best Wishes to you and El and little monster !!
Sandra

We can't control the winds - but we can adjust our sails
User
Posted 05 Jul 2015 at 10:24

Hello friends , just a quick update ! Sadly my near 100% continence post-op has taken a small slump. I wonder if some of you knew it would . Basically for two nights running I have awoken with a completely full TENA level 3 pad . Prior to this I have literally barely needed a pad at all day and night .
Im an unhealthy drinker - I always have been . Sadly it goes hand-in-hand with 70% of bi-polar sufferers . I'd been drinking more before the op , and am drinking quite heavily again re the stress , depression , frustration . Im still fine totally during the day - I expect its the alcohol having built up since discharge last Sunday . However I was fine drink / sleeping pills / waking up et al for 5 days . Oh well . Yes I hear a thousand " well don't drink so much" replies coming on which I guess I deserve. If only it was that easy.

Do you remember Raiden who posted 2 weeks ago - a guy in an even worse state than me if that's possible haha . Its his Da Vinci RP tomorrow . I don't know if he will post or not but is going through with it . We two have literally adopted each other these last 2 weeks and feel we may have a life-long "friendship" to help each other through an ordeal which seems to have literally ripped us up internally with fears of our age , future , sex-life etc etc.

If you are looking Trish best wishes for Hubby Thursday also
Chris xx

Edited by member 05 Jul 2015 at 10:42  | Reason: Not specified

User
Posted 05 Jul 2015 at 11:23
Hi Chris,

When I saw the continence nurse I took a 3 day chart on my input and output.She advised me to cut down my alcohol intake and drink caffeine free tea. Apparently they irritate the bladder.

http://www.webmd.boots.com/urinary-incontinence/guide/diet-medicine-incontinence

THE CHILD HAS GROWN, THE DREAM HAS GONE
User
Posted 05 Jul 2015 at 11:23
Hi Chris,

I did try with the alcohol but I love tea too much.

Edited by member 05 Jul 2015 at 11:25  | Reason: Not specified

THE CHILD HAS GROWN, THE DREAM HAS GONE
 
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