Hello Terrie and welcome
So sorry for the troubles you've had in the past two years or so.
As far as your dad is concerned, as Fiona says, it is helpful if you can give more info regarding his PSA reading and Gleason scores.
Has any treatment been offered to him yet?
To obtain the Toolkit, which is a set of helpful booklets/leaflets on Pc, it's symptons, treatments, emotional well being etc, go to the Home page, then Information. On this page, at the bottom of the centre column is Publications.
First of all I would say, "Don't panic"
Easier said than done, I know, especially given your recent brush with cancer and your mum's death.
There are many treatment options available to men with prostate cancer now.
There are many men on this site who are terminally ill but continue to lead active lives because their treatment prolongs it.
There are bound to be others along at some stage to offer a welcome and advice. We are a very friendly bunch, all with the same thing in common.
We have, or we are close to somebody who has, Prostate Cancer so each and every one of us understands your panic and distress, and without exception we try and support each other.
Best Wishes
Sandra
We can't control the winds - but we can adjust our sails |
User
Hi Terrie ,
So sorry for your plight -- but it may be early days . The best thing you did today was join this forum , as I did only 3 weeks ago . The support is phenomenal , and you don't even have to post . Just look for what u are interested in and scour the previous conversations for handfuls of proper-life experiences. Im gripped by this disease at present and the help has been wonderful
Chris
User
Terrie
I just wanted to add hello from me, Fiona and Sandra have started you off really well and Chris is as he has said also new to the forum so I am really pleased you found us.
Your Dad might appreciate company when he goes for appointments so you could ask him if you can support him that way. Also it helps to have someone with him to take notes or ask questions.
You say you have epilepsy is this being successfully controlled with medication? I ask because my Sister has epilepsy and she tends to fit if she gets very upset or stressed. It is something all my family are accutely aware of so I wondered if you have any other immediate family or friends close by to help you?
Anyway when you feel able to let us know a bit more about your Dad's diagnosis and also about your own situation.
Loads of people here who can and will give you support so post again soon.
Best wishes
Xx
Mo
User
hi terrie
I am a relative newcomer on this forum, you will find all you need to know on this site, its really hard to get your head around whats happening, any test just produces more anxiety, you cannot wait to get the results and it seems an age before you get them, I have a notepad and pen at the side of the phone, record everything it all happens in a blur
Just give your dad some big hugs it helps well it does for me when I get them.
dont be afraid to post someone will always be here to offer advise, especially the specalists nurses.
run long and prosper
'pooh how do you spell love' 'piglet you dont spell love -you just feel it' |
User
Hello Terrie
I am sorry that you find yourself here but I am also a recent recruit too, last month, as my husband was diagnosed. I was very confused and found the help and assistance offered here fantastic, it kept me sane!
I phoned the specialist nurses on 08000748383, they were really helpful and reassuring, maybe you could have a chat to them tomorrow, they had all the time in the world to talk to me and no question is a stupid question.
Take care of yourself too.
Maureen x
"You're braver than you believe, stronger than you seem and smarter than you think." A A Milne |
User
Hi Terrie,
I also wanted to add a welcome to you it is all very overwhelming when you first hear those dreaded words but I promise everything will become easier as you get all of the results and then a clear plan of action. There are so many treatments know for pc. If it helps keep posting.
BFN
Julie X
NEVER LAUGH AT A LIVE DRAGON |
User
Thank you all very much for the support, iv had the truth from my dad that it was 7 samples they took but it wasn't 4 that came back positive it was all 7. He was happy to tell me because I was open with him, told him I joined here, I'm reading up all about it and that my mum is by he's side. God bless her.
Thank you all again xx
User
Be positive for him Terri, you say that you're reading up on it, have you ordered the "toolkit" from PCUK, it has a lot of useful information. You won't really know more until the MRI and next hospital chat, do you go with your dad to the hospital? If so take notes it helps.
All the best.
Chris.
Show Most Thanked Posts
User
Hi Terrie,
So sorry to read your Dad has PCa, you have clearly been through some dark times so not surprising you are struggling to cope emotionally and with whatever the future holds.
The community here is very welcoming and supportive, there are people with a wealth of experience and advice so glad you have found us. You are not alone in this. Do you know any more details of your Dad's diagnosis, for instance, his Gleason score or staging ? If this all sounds gobbledegook at present it might help to download the PCUK toolkit which has lots of info on the disease and the specialist nurses on the phone helpline are also great and a good shoulder to cry on.
But for the moment, please be reassured there will be many people here along to welcome you and express support. There are lots of treatments available for PCa and we have men on the forum who are going strong with a good quality of life for many years after diagnosis, even with advanced disease ! Do keep posting !
Fiona. x
User
Hello Terrie and welcome
So sorry for the troubles you've had in the past two years or so.
As far as your dad is concerned, as Fiona says, it is helpful if you can give more info regarding his PSA reading and Gleason scores.
Has any treatment been offered to him yet?
To obtain the Toolkit, which is a set of helpful booklets/leaflets on Pc, it's symptons, treatments, emotional well being etc, go to the Home page, then Information. On this page, at the bottom of the centre column is Publications.
First of all I would say, "Don't panic"
Easier said than done, I know, especially given your recent brush with cancer and your mum's death.
There are many treatment options available to men with prostate cancer now.
There are many men on this site who are terminally ill but continue to lead active lives because their treatment prolongs it.
There are bound to be others along at some stage to offer a welcome and advice. We are a very friendly bunch, all with the same thing in common.
We have, or we are close to somebody who has, Prostate Cancer so each and every one of us understands your panic and distress, and without exception we try and support each other.
Best Wishes
Sandra
We can't control the winds - but we can adjust our sails |
User
Hi Terrie ,
So sorry for your plight -- but it may be early days . The best thing you did today was join this forum , as I did only 3 weeks ago . The support is phenomenal , and you don't even have to post . Just look for what u are interested in and scour the previous conversations for handfuls of proper-life experiences. Im gripped by this disease at present and the help has been wonderful
Chris
User
Terrie
I just wanted to add hello from me, Fiona and Sandra have started you off really well and Chris is as he has said also new to the forum so I am really pleased you found us.
Your Dad might appreciate company when he goes for appointments so you could ask him if you can support him that way. Also it helps to have someone with him to take notes or ask questions.
You say you have epilepsy is this being successfully controlled with medication? I ask because my Sister has epilepsy and she tends to fit if she gets very upset or stressed. It is something all my family are accutely aware of so I wondered if you have any other immediate family or friends close by to help you?
Anyway when you feel able to let us know a bit more about your Dad's diagnosis and also about your own situation.
Loads of people here who can and will give you support so post again soon.
Best wishes
Xx
Mo
User
hi terrie
I am a relative newcomer on this forum, you will find all you need to know on this site, its really hard to get your head around whats happening, any test just produces more anxiety, you cannot wait to get the results and it seems an age before you get them, I have a notepad and pen at the side of the phone, record everything it all happens in a blur
Just give your dad some big hugs it helps well it does for me when I get them.
dont be afraid to post someone will always be here to offer advise, especially the specalists nurses.
run long and prosper
'pooh how do you spell love' 'piglet you dont spell love -you just feel it' |
User
All I know is they took 7 samples and 4 of them was positive, Next appointment MRI Friday week.
User
Hello Terrie
I am sorry that you find yourself here but I am also a recent recruit too, last month, as my husband was diagnosed. I was very confused and found the help and assistance offered here fantastic, it kept me sane!
I phoned the specialist nurses on 08000748383, they were really helpful and reassuring, maybe you could have a chat to them tomorrow, they had all the time in the world to talk to me and no question is a stupid question.
Take care of yourself too.
Maureen x
"You're braver than you believe, stronger than you seem and smarter than you think." A A Milne |
User
Hi Terrie,
I also wanted to add a welcome to you it is all very overwhelming when you first hear those dreaded words but I promise everything will become easier as you get all of the results and then a clear plan of action. There are so many treatments know for pc. If it helps keep posting.
BFN
Julie X
NEVER LAUGH AT A LIVE DRAGON |
User
Thank you all very much for the support, iv had the truth from my dad that it was 7 samples they took but it wasn't 4 that came back positive it was all 7. He was happy to tell me because I was open with him, told him I joined here, I'm reading up all about it and that my mum is by he's side. God bless her.
Thank you all again xx
User
Be positive for him Terri, you say that you're reading up on it, have you ordered the "toolkit" from PCUK, it has a lot of useful information. You won't really know more until the MRI and next hospital chat, do you go with your dad to the hospital? If so take notes it helps.
All the best.
Chris.
User
He gets the results Tuesday, I don't go to the hospital with him a friend of he's goes with him and iv asked her to take notes (I find it too hard to see my Nero, since I lost my mum). And I haven't sent for the pack yet. Thank you.