The latest situation is that I emailed the consultant again yesterday and he phoned John and did ask him if he wanted to go back into hospital, which he refused. So the plan is to see him on Tuesday at the hospital and possibly admit him then (gives me time to arrange it through BUPA if necessary as I'm still a member through work). He did say he had discussed John's case with colleagues and has some ideas he'd speak with us about on Tuesday. We are scheduled to see the oncologist ion Monday, it's been put back twice already as John hasn't been well enough so we will try to go.
He's still the same, can't stay up long, feet and legs filling up with water, bags getting blocked occasionally and bladder spasms. I've bought him a few nightshirts so that he can be decent, he's asking for a nightcap and candle, cheeky beggar.
The infection has been identified at the GP but I don't know if the hospital are aware, I'll check on Monday. The gunk hasn't been swabbed, probably that is needed.
Lyn, I asked if I could ring the hospice nurse and was told yes then no (by John) As we are seeing doctors next week I'm prepared to leave it for now, but I think we do need some support.
Our visitors are here and at least they made him smile. Lucky me, I live close to an M&S so we will be living in prepared food and takeaways as I have no interest at all in cooking at the moment. They have helped to tidy the kitchen and that's the main thing I worry about. I'm sure they'd run the Hoover round if I asked but they are popping to Bristol for the weekend so we have a couple of days of rest.
Thanks for the kind words everyone, it really helps.
Love Devonmaid xxxx
Edited to clarify who said no to the hospice nurse
Edited by member 01 Jul 2016 at 22:21
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