Just an update form me, which is more of a way of documenting what's happening than anything else. The three weeks since John's op have been pretty awful for him, lots of blockages (kidney sludge, yuck) and terrible, terrible bladder spasms, on a par with a late stage birth contraction without a doubt. Anyway, we've got through it and he had his 41 staples removed tonight (phew), it was his first trip outside for three weeks.
The plan now is to do a scan using a dye to check that the kidneys are ok and the bladder is not leaking, that's going to be in mid October and followed by a general anaesthetic to remove the stents and do a dilation, with an over night stay and the removal of the urinary catheter. It may not function at first especially as it will have been eleven months since it was last used, but fingers crossed. I've no doubt there will be a rehabilitation period if it does work. The SPC will remain in place for some time as he must not go back into retention.
It's been a lucky escape as both his kidneys were blocked and at least now, even if he has to keep the SPC, his kidneys shouldn't fail.
I must admit this last year has been very trying for both of us and I have been having a gentle meltdown in the last week. I guess hitting 60 and not being able to work plus nearly 6 years of this damnable disease is bound to take its toll occasionally. Of course I am immensely grateful to have my lovely hubby to keep me company and the consultant mentioned again this evening, how amazing that despite having a Gleason 10 disease he is still with us. I think the MDT found this pretty inspiring at their recent meeting from all accounts.
Anyway, that's where we are now. Hoping the stent removal goes well as it is a vital stage in his recovery.
Lots of love